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POGO Satellite Manual

5.7.5 The Grief Experience

5.8 References

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  1. Center to Advance Palliative Care, 2011 Public Opinion Research on Palliative Care. 2011. URL: https://www.capc.org/documents/500/.
  2. Chen J. and Lau E. (Ed.). SickKids Drug Handbook and Formulary. The Hospital for Sick Children: Toronto, ON. 2013 and 2014.
  3. Dipchand A. and Friedman J. (Ed.). The Hospital of Sick Children Handbook of Pediatrics. 11th Edition. 2009.
  4. Hauser JM, Preodor M, Roman E, Jarvis DM, Emanuel L. The Evolution and Dissemination of the Education in Palliative and End-of-Life Care Program. J Palliat Med. 2015 Sep;18(9):765-70. doi: 10.1089/jpm.2014.0396. PMID: 26302426.
  5. Feudtner C, Kang TI, Hexem KR, Friedrichsdorf SJ, Osenga, Siden H, Friebert SE, Hays RM, Dussel V, Wolfe J. Pediatric palliative care patients: a prospective multicenter cohort study. Pediatrics. 2011;127(6):1094-1101.
  6. Friedrichsdorf SJ. Pain management in children with advanced cancer and during end-of-life care. Pediatr Hematol Oncol. 2010;27(4):257-261.
  7. Goldman, Hann, Liben. Oxford Textbook of Palliative Care for Children, 2nd Ed. Oxford University Press, 2012.
  8. Hain R. and Jassal S. Paediatric Palliative Medicine, Oxford Specialist Handbooks in Paediatrics. 2010.
  9. Levine D, Lam C, et al. Best Practices for Pediatric Palliative Cancer Care: A Primer for Clinical Providers. Journal of Supportive Oncology 2013; 11: 114-125.
  10. Liben S, Papadatou D, and Wolfe J. (2008). Paediatric palliative care: Challenges and emerging ideas. 371(9615), 852-864. doi:10.1016/S0140-6736(07)61203-3.
  11. Mack JW, Wolfe J, Cook EF, Grier H, Cleary PD, Weeks JC. Hope and Prognostic Disclosure. Journal of Clinical Oncology. 25:5636-5642. 2007.
  12. Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J. Clin. Oncol. Nov 20 2006;24(33):5265-5270.
  13. Palliative Care: An Explanation of Palliative Care. (n.d.). Retrieved January 8, 2016 from https://www.nhpco.org/palliative-care-overview/explanation-of-palliative-care/.
  14. Pastrana et al. A matter of definition – key elements identified in a discourse analysis of palliative care. Palliative Medicine 2008; 22: 222–232.
  15. POGO/PCMCH Provincial Pediatric Palliative Care Steering Committee. Symptom Management Guidelines.
  16. Rainbow Children’s Hospice Basic Symptom Control in Paediatric Palliative Care. 11th Edition. 2011. Accessed June 3, 2014.
  17. Schadenberg A. (2013, August 20). Dr. Balfour Mount: Reflection on palliative care and euthanasia. Retrieved from http://alexschadenberg.blogspot.ca/2013/08/dr-balfour-mount-reflection-on.html.
  18. Shaw T. Pediatric Palliative Pain and Symptom Management. Pediatric Annals, 2012. 41(8): 329-334.
  19. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early palliative care for patients with metastatic non-small-cell lung cancer. NEJM. 2010;363(8):733-742.
  20. Thorns A, Sykes N. Opioid use in last week of life and implications for end-of-life decision-making. Lancet. 2000;356(9227):398-399.
  21. Waterloo Wellington Symptom Response Kit Order Form. Revised 2014.
  22. Wolfe J, Hinds PS, Sourkes BM, eds. Textbook of Interdisciplinary Pediatric Palliative Care. Philadelphia, PA: Elsevier; 2011.
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You are welcome to download and save a local copy of this document in the Word and/or PDF formats provided. As the POGO Satellite Manual is subject to ongoing revisions and updates by POGO, we recommend you regularly check the online version posted at https://www.pogo.ca/satellite-manual/ to ensure you have the most up-to-date content. In the event of any inconsistency between the content of a local copy and the online version of the POGO Satellite Manual, the content of the online version shall be considered correct. Please see also the POGO Satellite Manual Disclaimer.

Record of Updates
Version NumberDate of EffectSummary of Revisions
18/24/2021Original version posted.
6.0 POGO Satellite Program Administration Documents
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In this Section

  • 1.1 History and Overview
  • 1.2 Acknowledgements
  • 1.3 Committees and Working Groups
  • 1.4 POGO Satellite Manual Disclaimer
  • 2.1 Principles of POGO Satellite Clinic Care
    • 2.1.1 POGO Satellite Care Decision Flowchart
  • 2.2 Eligible Patients
    • 2.2.1 Children Eligible for Chemotherapy Administration in a POGO Satellite Clinic
    • 2.2.2 Children Eligible for the Management of Complications in a POGO Satellite Clinic
    • 2.2.3 Children Eligible for Supportive Care in a POGO Satellite Clinic
  • 2.3 Scope of POGO Satellite Clinic Practice
  • 2.4 Expanded POGO Satellite Clinic Practice
  • 3.1 Safe Handling, Administration and Disposal of Chemotherapy Agents
    • 3.1.1 Personal Protective Equipment
    • 3.1.2 Preparation, Transport and Storage
    • 3.1.3 Administration of IV Hazardous Drugs
    • 3.1.4 Administration of Oral Hazardous Drugs
    • 3.1.5 Disposal of Equipment/Personal Protective Equipment used to Administer Hazardous Drugs
    • 3.1.6 Safe Handling for Pharmacy
    • 3.1.7 References
  • 3.2 Accidental Exposure/Spills
  • 3.3 Extravasation Management
    • 3.3.1 Prevention and Management of Extravasations
    • 3.3.2 Antidotes and Treatments for Extravasation
    • 3.3.3 Sample Extravasation Documenting Tool
    • 3.3.4 References
  • 3.4 Injecting SC Medication Via an Insuflon
  • 3.5 Chemotherapy Administration Reference List
  • 3.6 Central Venous Catheter Care
  • 3.7 Chemotherapy Quick Reference
    • 3.7.1 Rapid Hydration
    • 3.7.2 Provider Guide: Prevention and Management of Irinotecan-Induced Diarrhea
    • 3.7.3 Capizzi Methotrexate
    • 3.7.4 Erwinia Asparaginase
    • 3.7.5 Crisantaspase (Rylaze) Asparaginase
    • 3.7.6 Nelarabine
  • 4.1 Management of Fever and Neutropenia
    • 4.1.1 Routine Order Sample Sheet
    • 4.1.2 Sample Fever Cards
    • 4.1.3 Outpatient Fever and Neutropenia in POGO Satellites
  • 4.2 Pentamidine Administration
    • 4.2.1 Inhaled Pentamidine
    • 4.2.2 Intravenous Pentamidine
  • 4.3 Antiemetics
  • 4.4 Treatment of Varicella-Zoster Infections
  • 4.5 Immunization of Children with Cancer
  • 4.6 Transfusion
  • 4.7 Clinical Circumstances that Warrant Consultation with the Specialized Childhood Cancer Program
  • 5.1 Palliative Care Overview
  • 5.2 Communication
  • 5.3 Settings of Care
  • 5.4 Symptom Management
  • 5.5 End of Life
  • 5.6 When a Child Dies at the POGO Satellite Clinic
  • 5.7 Appendix: Sample Bereavement Materials
    • 5.7.1 Reconciling Your Grief
    • 5.7.2 Funeral Arrangement Checklist
    • 5.7.3 Helping Children Who Grieve
    • 5.7.4 Coping with the Holidays
    • 5.7.5 The Grief Experience
  • 5.8 References
  • 6.1 Goals and Objectives
  • 6.2 Participant Site Selection
    • 6.2.1 Tertiary Hospital Site Selection
    • 6.2.2 Community Hospital Site Selection
  • 6.3 POGO’s Roles
    • 6.3.1 PHIPA, Privacy and Research
  • 6.4 Funding
    • 6.4.1 Funding Support for Tertiary Hospital Activity
    • 6.4.2 Funding Support for Community Hospital Activity
  • 6.5 Infrastructure and Formal Requirements
    • 6.5.1 Specialized Childhood Cancer Program Partners’ Role in the POGO Satellite Program
    • 6.5.2 POGO Satellite Clinic Partners’ Role in the POGO Satellite Program
  • 7.1 Preamble
  • 7.2 Investigator Responsibilities
  • 7.3 Training Requirements
    • 7.3.1 General Training for Conduct of Research
    • 7.3.2 Protocol-Specific Training
  • 7.4 Research Activities That May Be Completed in POGO Satellite Clinics Under Supervision of DSI
  • 7.5 Research Activities to be Completed in Specialized Childhood Cancer Programs Only
  • 7.6 Recognition and Reporting of Adverse Events (AEs)
  • 7.7 Data Transfer
  • 7.8 Pharmacy Drug Accountability
  • 7.9 Site Inspections and Quality Assurance
  • 8.1 Pediatric Oncology Shared Care Initial Data Transfer Sheet
  • 9.1 POGO Satellite Clinic Preparedness Checklist
  • 9.2 POGO Satellite Clinic Quality Assurance Checklist
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