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New POGO Clinic Helps Teen Stay Connected with Friends

Posted on October 12, 2018 by admin

In September 2018, at the launch of the new POGO Pediatric Oncology Satellite Clinic at Peterborough Regional Health Centre (PRHC), Theresa Serracino-Inglott, husband Mario and son Anthony spoke on behalf of the parents and young patients who will be receiving care.

Last year in late August, Anthony was gearing up to start his Grade 11 year when he was diagnosed with acute lymphoblastic leukemia (ALL). Anthony spent most of his first six months at SickKids hospital because of complications and an extremely tough protocol for his high-risk diagnosis. Throughout the past year – and more so in the last six months – the Pediatric Outpatient or POP Clinic at PRHC has been our second home.

In April, Anthony was here for supportive care close to 20 days, and every day he was greeted with a smile and the exceptional care we have come to know from Shay Cannon and the POP Clinic Team. This was such a relief because as parents of children with a cancer diagnosis, we are continually being bombarded with difficult and gut-wrenching fears – and leaving the safety of SickKids Hospital is one of them.

Having to take your child to a new place for their care and allowing unfamiliar medical staff to provide treatment leaves us parents feeling vulnerable and scared – but once we walked through the doors of the POP Clinic and met Shay and the POP Clinic team, our fears subsided. Anthony immediately made a connection with the staff that has only strengthened over the months. Being closer to home to attend to such things as his fevers and blood work has meant a lot to Anthony. When he was admitted with a fever and had to stay at PRHC for more than a couple of days, it meant that his friends could easily come and keep him company to pass the time.

Throughout this time, the POP Clinic team was already beginning the transition to become an official POGO Satellite Clinic, which included staff training in all of the specialized areas of care we knew Anthony would need.

Now that this is an official POGO Satellite site, I can’t help but think of “future POGO families” in our area. Perhaps today, the news of the new clinic may not even register, but when they are burdened with their child’s diagnosis, they will have these things to ease their journey:

  • Closer access to chemo treatments
  • A “fever card” that is our direct route to the in-patient unit, allowing us to bypass emergency
  • Coordinated care between PRHC and SickKids that meets the high standard of care that POGO Satellite Clinics deliver
  • A trusting relationship with qualified staff that go above and beyond for patients in their care
  • Support from other POGO families that become lifelong friends because of this journey they’ve shared together

Having a POGO Clinic close to us makes life as a parent a whole lot easier. Feeling financially strapped is a common thread among families of children with cancer and satellite clinics give some relief to that. The shorter distance helps us save money on gas for the car, the need to eat out, motel costs, and childcare needed for siblings.

Anthony has already benefitted from shorter clinic visits. This is important because as a teen with cancer, many occasions have been missed because of treatment. Having the accessibility of the POGO Clinic gets him back to his friends who play a very important part in his recovery.

Parents of  children with cancer certainly would have never chosen this path for our children, but because this is where we find ourselves, I want to say how grateful we are to POGO and to Peterborough Regional Health Centre for making it possible for families like ours to have an official POGO Satellite Clinic right in our community. We can’t thank you enough for easing the burden by keeping many aspects of our child’s cancer treatment closer to home. Thank you.

Read the media release

Related Content

What’s so loved about POGO Satellite Clinics?

Posted in Misc, This is My Story | Tagged acute lymphoblastic leukemia (ALL), adolescents, AYA, care close to home, peterborough, satellite clinic

Peterborough Home to 8th POGO Satellite Clinic

Posted on September 26, 2018 by admin

New POGO Satellite Clinic brings care closer to home for children with cancer in Peterborough area

On Monday, September 24, the Pediatric Oncology (POGO) Satellite Clinic at Peterborough Regional Health Centre (PRHC) officially opened its doors to provide care for children with cancer right in their community.

For these patients and their families, care closer to home means a reduction in travel time, costs to receive care elsewhere are avoided, and less loss of income and separation from home and community, all while maintaining confidence that their child is receiving the best quality care.

Mario, Anthony and Theresa

“Having a POGO clinic close to us makes life as a parent a whole lot easier,” says Theresa Serracino-Inglott, whose son Anthony is currently receiving treatment at PRHC after being diagnosed with Acute Lymphoblastic Leukemia in August 2017.  “Feeling financially strapped is a common thread among families of children with cancer, and these satellite clinics give some relief to that. I want to say how grateful we are to POGO and to Peterborough Regional Health Centre for taking on this partnership to bring a POGO Satellite Clinic to our community. I can’t help but think of future ‘POGO families’ in our area, and how the availability of this clinic will ease their journey.”

POGO now supports highly coordinated care at eight Satellite Clinics across the province, each linked to one of the five major hospitals with a pediatric cancer program. In addition to the benefits for patients and their families, shifting thousands of visits and hundreds of inpatient days to POGO Satellite Clinics each year provides additional capacity for specialized care in these hospitals’ pediatric cancer programs.

Read the media release

Posted in In the News | Tagged community partners, peterborough, satellite clinic

Feedback from the Frontlines: Patient & Family Perspectives on Satellite Care

Posted on June 26, 2015 by admin

Presentation Description: 
Parents of children who have undergone care in two different satellite clinics discussed their experiences with the satellite system.

Parent Panelists:
Julie Tobler
Tanya & Neil van Voorst

Session Moderator:
Mark L. Greenberg, OC MBChB FRCPC
Senior Adviser, Policy & Clinical Affairs
Pediatric Oncology Group of Ontario
Professor of Pediatrics and Surgery
University of Toronto

Posted in 2015 Satellite Education Day | Tagged 2015 Satellite Education Day, parents, satellite clinic

Risk Assignment in ALL Protocol Development

Posted on June 26, 2015 by admin

Presentation Description: 
This session reviewed the development of strategies to identify patients at higher risk of having a recurrence of their leukemia. Contemporary criteria used in the Children’s Oncology Group trials for allocation to different risk groups for patients with acute lymphoblastic leukemia was reviewed. Modifications of therapy based on risk assignment were summarized.

Speaker:
Sarah Alexander, MD
Clinical Director, Haematology/Oncology
Hospital for Sick Children, Toronto

Posted in 2015 Satellite Education Day | Tagged 2015 Satellite Education Day, acute lymphoblastic leukemia (ALL), ALL, recurrence, risk factors, satellite clinic

POGO Programs Update – From Innovation to Application

Posted on March 4, 2014 by admin

Presentation Description: The umbrella that POGO provides to ensure the equity of care for children with cancer across the province encompasses a wide range of programs and activities. These commonly engage numerous stakeholders in the hospitals, other institutions, government and the community. While it is not possible to highlight all the programs that POGO has engaged in over the last 30 years, this session  focused on four innovative activities that POGO has led, and that have left indelible marks on the enhancement of care for children both in Ontario as well as beyond its borders.  1) Guidelines for supportive care have been developed, adopted and implemented throughout the pediatric oncology community; 2) the POGO satellite system has enhanced the quality of care close to home and enhanced the quality of life for families across the province; 3) a new initiative of a centralized ethics review will lead to improved efficiencies and comprehensive engagement of all treating centres for children eligible for enrollment on clinical trials; 4) development of a set of benchmarks (quality indicators) has provided a unique framework to evaluate the quality of systems for the delivery of care for children with cancer.  These efforts showcase the impact that POGO has had on the pediatric cancer community.

Guidelines for Supportive Care

Carol Portwine, MD, FRCPC, PhD
Pediatric Oncologist, McMaster Children’s Hospital
Associate Professor, Department of Pediatrics
McMaster University, Hamilton

Satellite system

Childhood cancer care is definitionally intense, arduous and takes place over elongated time frames. Since care is typically centralized in tertiary centers, this pattern of care imposes enormous stress on families and patients. In an attempt to address this disruption of lives, POGO developed a system of devolved designated care centers in which defined components of care can be delivered. This presentation briefly described that system.

Mark Greenberg, OC, MB, ChB, FRCPC
Senior Adviser, Policy & Clinical Affairs
Pediatric Oncology Group of Ontario (POGO), Toronto, ON

Centralized Ethics Review

Ronald M. Grant, MD, FRCPC
Pediatric Oncologist
The Hospital for Sick Children, Toronto

Quality Indicators

Nicole Bradley, MHSc (Epidemiology)
Senior Healthcare Analyst & Project Manager
Pediatric Oncology Group of Ontario (POGO), Toronto

 

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, ethics, OCREB, patient care, Provincial Pediatric Oncology Satellite Program, quality indicators, satellite clinic, supportive care guidelines

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