Kirsten Efremov, Author at POGO

Doing Good for the Childhood Cancer and Survivor Community

Posted on August 29, 2022 by Kirsten Efremov

Austin: What was it like battling cancer as a young teen?

Eloise: I was 14 years old when I was diagnosed with cancer, just weeks shy of starting my Grade 10 year. I was already trying to grapple with big questions like, “Who am I?” and “Who do I want to become?” I was busy navigating life and all things that “normal” teenagers experience. Then, on top of this quest for identity, I was suddenly confronted with a life-threatening illness. I felt overwhelmed, confused and defeated. I had no idea how to react or how to feel. There is no better way to describe it than an absolute rollercoaster of emotions.

In my opinion, the fundamental difference between young kids going through cancer and teens, is their sense of awareness. Unlike many young kids next to me on the 8th floor of SickKids, I KNEW something was wrong. Actually, I knew EXACTLY what was wrong. I had cancer—a disease I never imagined I would have, especially at 14.

Many brave young children I encountered accepted this painful journey with a sense of “normalcy.” Despite all they were going through, they maintained their positivity and love for life. This was something I could not mirror—not for lack of trying. I wanted to exude the same level of strength, courage and positivity as many of those children but I was keenly aware of my painful, frustrating and exhausting journey with cancer. People sometimes forget that teenagers are far closer to identifying as adults than they are to children, yet, they are unique and require a certain approach to their care.

Austin: In what ways does your journey with cancer still impact you today?

Eloise while undergoing treatment

Eloise: Despite being cancer-free for nearly eight years, my journey through survivorship has been far from easy. Cancer continues to influence many areas of my life, both positively and negatively. On a professional level, I have built a career inspired by my experience. The Good Hood Club is a loungewear company that champions childhood cancer care, most notably by donating 50% of its profits to childhood cancer organizations like POGO. Given my journey and fortune with cancer, I constantly seek ways to give back. The Good Hood Club has provided me with a vehicle to do that.

Although cancer is a “distant memory,” the emotional turmoil it sparked is not. Daily, I battle anxiety primarily linked to having had cancer as a teen. This has been an ongoing challenge for me; however, I am committed to finding ways to help me manage it. More abstractly, cancer has taught me many invaluable life lessons. Undoubtedly, my biggest takeaway has been my appreciation and love for life.

Austin: How did you decide to start Good Hood Club as a business and how did you come up with the name?

Eloise: While studying commerce at Queen’s, I took a digital marketing class in my 3rd year. One of the projects required us to create an e-commerce-based business from scratch. While most of our classmates saw this as merely a school project, my group saw it as an opportunity to do something good. My best friend, Chloe, and I wanted to create something meaningful. We thought, “What can we sell that will do good?” Our answer, “Hoods.” We also wanted people to feel part of a more significant community, a club. Hence the name, Good Hood Club.

Eloise in her navy Good Hood hoodie

Austin: What does Good Hood Club mean to you, both on a personal and a professional level?

Eloise: On a professional level, I could not have asked for a better way to dive into the workforce. I have gathered experience across various areas. I have had unparalleled hands-on experience in marketing, operations, strategy, manufacturing, finance…you name it! I am incredibly grateful for the experience Good Hood Club has given me to date. Over time, I hope to watch the company grow, continuing to touch the lives of those battling childhood cancer.

On a personal level, Good Hood Club has been an invaluable healing method. The easiest way to deal with my pain is by transforming it into purpose. Good Hood Club has allowed me to do this, and for that, I am eternally grateful.

Austin: Do you think as a survivor of childhood cancer that there are enough support systems in place to help families and children?

Eloise: I think that there is always room for improvement. However, I am eternally grateful for the help and support I have received over my journey. The childhood cancer community is filled with exceptional individuals who have made invaluable contributions to the community. I would love to see additional resources in the realm of psychosocial support. For me, mental health has been a massive part of my journey with cancer; however, it has not necessarily been a massive part of my care. In my experience, cancer has been just as much a mental health disease as a physical one; yet, it is not treated as such. I hope for a future where both aspects are equally prioritized in cancer care protocols, right from the beginning.

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Austin: Do you have any advice for young adults that survived childhood cancer that are struggling to find a career that will be fulfilling for them?

Eloise: It is easy to get caught up in what you think you want and should do versus exploring what you truly want and were meant to do. As a business student, I was on a path to a corporate career. I thought that was what I wanted. The second I took the opportunity to try new things and explore, I uncovered newfound passions I wanted to pursue. My advice would be to always experiment and try. Don’t stay committed to one path until you have taken the opportunity to see what else you might want to explore.

Eloise founded Good Hood Club with her university best friend, Chloe, to make their love for hoodies more meaningful and promote comfort during stressful times. 50% of Good Hood earnings go to POGO (Pediatric Oncology Group of Ontario) and their mission to achieve the best childhood cancer care system for children, youth, survivors and their families in Ontario and beyond.

You can find Good Hood at:
Website: https://goodhoodclub.com
Facebook: https://www.facebook.com/goodhoodclub/
Instagram: https://www.instagram.com/goodhood.club/

Austin is an ALL survivor who is interested in music and is an avid drummer. He’s also passionate about giving back to cancer charities that helped him and his family during their cancer journey.

Virtual Learning When You Have ADHD

Posted on August 29, 2022 by Kirsten Efremov

From the Perspective of a Childhood Cancer Survivor – Leigha Bartholomew

Leigha Bartholomew, childhood cancer survivor

Being a childhood cancer survivor, I know what it is like to fall behind in school. Months of my schooling were spent in a hospital and attending weekly medical appointments. I began to feel overwhelmed thinking I’d never be able to catch up or that I wasn’t doing as well as my peers. It was never expected that I would be at the same level as everyone else while I was going through treatment, at the time I believed I just wasn’t good enough. I’m sure a lot of cancer survivors have felt the same way at one point or another.

I had a similar feeling when post-secondary schools introduced a virtual learning environment in the midst of the pandemic. I started noticing a shift in my capabilities. A new learning atmosphere meant new challenges that I couldn’t adapt to as quickly as I had in the past. Attending classes became more difficult, focusing on work and remembering to finish assignments on time developed into more of an issue than it had been just a few months before, and my motivation to be involved in class discussions decreased. On top of that, I couldn’t bring myself to speak with my professors over Zoom about the challenges that I was facing. It seemed like I was in a rut and I didn’t know how to pull myself out.

My ADHD diagnosis came just a few months after we started learning virtually. While I was familiar with ADHD, I was surprised to learn that I had the disorder myself. Adding this on top of the other issues I had with mental health (I was diagnosed with Generalized Anxiety Disorder in high school) was not something I had even considered, especially so far into my education. If someone were to look at my grades, I bet they wouldn’t have considered it either. Luckily, I didn’t have to go through these challenges all on my own.

Because mental health and learning disabilities pose a challenge for a number of young people, there are resources that have been put into place by schools to help students get through their education. In post-secondary school, there are learning strategists or assistive/adaptive technologists for students seeking academic support. Your academic advisor is also available to help you find programs or services tailored for your specific challenges.

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Being a childhood cancer survivor can further complicate things. While some survivors may already be predisposed to having mental health and learning challenges, others can develop them due to the treatments they received or other related factors and experiences. These issues can also continue into adolescence and adulthood. Since most people working in pediatric oncology are aware of these challenges, there are specific resources available to survivors and their families. POGO AfterCare Clinic professionals, such as counsellors, art therapists, clinical psychologists and social workers are some of the resources available to help cancer survivors develop strategies related to the difficulties they might be facing with school or everyday life, and POGO School and Work Transitions Counsellors can help you to access these various resources!

My advice to fellow survivors would be to understand that you are not alone if you find yourself struggling. I am sure a lot of people can relate to me when I say that I prefer in-person schooling over the virtual classroom, but that doesn’t mean it’s any less scary having to make the transition. If my own experiences have taught me anything, it’s that everyone has a different style of learning. If you need help, reach out. No matter how difficult things might seem, there are always people and programs available to students and survivors if they need help.

Boxing for Mental Health

Posted on August 29, 2022 by Kirsten Efremov

18-year-old Isla MacIntosh discusses how boxing helps her cope with her mental stressors

Isla MacIntosh, childhood cancer survivor

Taneisha: Can you tell me a little bit about yourself and your experience with childhood cancer?

Isla: I was diagnosed with leukemia when I was four years old and have been in remission since the age of seven. I work at a golf course in Ottawa and I just finished my first year in the Behavioural Science Program at St. Lawrence College.

Taneisha: Other than your family, does anyone else know about your diagnosis? Did you have to miss any school due to your cancer and its treatment?

Isla: My parents mentioned it to people they knew and our surrounding neighbours and, of course, my school knew. I missed kindergarten entirely so my first year attending school in person was in Grade 1. Everyone was very supportive.

Taneisha: Do you feel you continue to get the support you need?

Isla: My sister has done everything she could to support me ever since I was young. She pretty much gave up her childhood because of me. In my early teens, I realized how big my diagnosis really was, and I needed to find an outlet to relieve stress. At 14, boxing became that outlet. My whole family is supportive of my boxing.

Taneisha: How did you discover boxing?

Isla: I found this youth recreational boxing class in Ottawa where I grew up. The coach was the first female boxing coach. She was a big inspiration to me because she had cancer so I felt that I could relate to her. She also helped me find a great boxing school when I started going to school in Kingston. Now I train 3-4 days in person and on the other days, I do dryland training. Dryland training means conditioning, running, weights and other strength activities.

Taneisha: How did boxing help you with your mental health stressors and how did it help you get through your first year of college?

Isla: When I moved away for school in Kingston, I found a safe place for boxing with nice people, which helped me not worry as much about school. Boxing is very technical. When you are in the middle of it, you have to focus on boxing and nothing else. It takes you out of any stressful situation you might feel you are in.

Taneisha: What are your goals—both for boxing and your education?

Isla: I like to compete so my goal for boxing would be to go to nationals. My goal for school is to find a full-time job that relates to behavioural science.

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Taneisha: Do you have any advice for other childhood cancer survivors who are going through something similar to what you are going through?

Isla: My advice would be to find an outlet that is important to you, especially if you are older and there are external pressures. It could be sports, music or something else. An outlet can be a safe place for you to express yourself.

Taneisha Kandiah was diagnosed with leukemia when she was 18 months old. She has been in remission since the age of three. She recently graduated from the University of Ottawa in life sciences.

Creative Corner with Holly

Posted on August 29, 2022 by Kirsten Efremov

Holly Bokor’s Port Illustration

Port is part of a triptych* of self-portraits about my memories from when I had cancer at age 14. A lot of medical experiences and journeys can result in feeling dehumanized, objectified. Port focuses on the wires and tools, with no identifying features of the figure. The background contains scans of old documentation from my own treatment. Though it’s a drawing of myself, the sense of identity is purposefully removed. It reflects my feelings of emotional detachment. Essentially, it’s an attempt to capture that strange dissociation that occurred while I was in treatment.

*Artwork made up of three pieces or panels

Holly is a recent graduate of Seneca College’s illustration program. They find solace in expressing thoughts through line. You can find more of their work at congercine.com.

Check out Creative Corner work done by Josh and Kathleen

Dr. Ewurabena Simpson Discusses Culturally Respectful Health Care

Posted on February 17, 2022 by Kirsten Efremov

A conversation with POGO Transitions Counsellor Sarah Brandon and her respected colleague Dr. Ewurabena Simpson.

Dr. Ewurabena Simpson is a staff physician in the Division of Hematology/Oncology at CHEO where she works with childhood cancer patients. She is also the Program Lead for CHEO’s Sickle Cell Disease Program, the Assistant Dean for Equity, Diversity and Inclusion at the University of Ottawa Faculty of Medicine, as well as an Assistant Professor. Outside of work, Dr. Simpson is a proud mum and family member, an avid tennis fan and a seriously outstanding soccer player.

Sarah: We know that representation matters. Can you describe what that means for Black patients and their families?

Dr. Simpson: Speaking from my own experience as a patient, having a pediatrician who was also from the Black community had an important impact on the therapeutic relationship that my pediatrician had with me and with my family. Seeing someone from a similar cultural background meant that our pediatrician understood how our skin tone may have changed the way that certain conditions manifested on my complexion and how our cultural background influenced my family’s views on health and learning. It also meant that our family felt safe discussing specific challenges and experiences of subtle or overt racism as we settled into our life in Canada. One of the most lasting impacts that having a Black pediatrician had for me was that it helped me to see myself as a future physician, that I also belonged and that I could make a difference in the lives of all children regardless of their backgrounds.

Sarah: What does culturally respectful health care mean to you and what are 3 goals to strive for?

Dr. Simpson: I don’t think that there is a right answer to this question but in my mind, a commitment to culturally respectful health care would imply that we as healthcare providers will maintain an awareness and openness to others regardless of whether they are similar to or different from ourselves.

Dr. Simpson’s Three Goals for Culturally Respectful Health Care

It is important to acknowledge that we all come from different life experiences and cultural backgrounds that will influence the way that we experience health and access health care.
As healthcare providers, we should be aware that we cannot know everything about another person’s experience.
We should remain humble and open to learning about our patients’ cultural backgrounds and experiences so that we can respond to and support their health needs in a way that is sensitive to and respectful of their culture.

Sarah: What can healthcare providers do in their practice to ensure Black patients feel safe and heard in our care?

Dr. Simpson: With each and every patient, it is important for us to check our personal biases and to be aware of how they may unconsciously influence our daily interactions and our approaches to patient care. When caring for Black patients, it is important to recognize that being Black does not represent a specific belief system, group of behaviours or any cluster of health attributes. Each patient is an individual and every family is a unique unit. As a healthcare provider, you should treat every patient encounter with an open mind and avoid making generalizations or assumptions that are based on a patient’s racial or cultural background. While being of African or Caribbean descent may be associated with race-based disparities in health, we should always remember that a patient’s health and experiences are shaped by much more than their physical attributes.

Sarah: What is the importance of honouring Black History Month in hematology and oncology as part of the continued fight against racism?

Dr. Simpson: Black History Month is our opportunity to celebrate the ongoing contributions of African, Caribbean and Black communities in Canada. By acknowledging these contributions and these communities in medicine and in hematology/oncology, this inclusion reinforces the fact that we all belong in this community, that we all have a role and that we all have a voice.

Sarah: Do you have a message for our Black childhood cancer survivors this Black History Month?

Dr. Simpson: You have gone through a long and difficult journey to overcome your illness and to get to a place of better health. You are among our champions for childhood cancer and for Black history. You inspire all of us and we hope that you feel cared for and safe in your medical care and in your day-to-day lives. If there are ways that we, as your healthcare providers, can be more supportive and sensitive in your care, we are open to doing better.

While this article was written in recognition of February being Black History Month, POGO recognizes that continually providing culturally respectful health care contributes to our vision of an excellent childhood cancer system. Read POGO’s Diversity, Equity and Inclusion statement.

Sarah Brandon is a POGO Transitions Counsellor working at CHEO and Kingston General Hospital to empower youth and young adult survivors of childhood cancer and brain tumours in their transition from high school to post-secondary education or work.

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Author: Kirsten Efremov

Doing Good for the Childhood Cancer and Survivor Community

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