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POGO > Blog > Quality of Life
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Tag: Quality of Life


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Toward Integrated Care

Posted on November 6, 2015 by admin


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Presentation Description:
Pediatric palliative care provides support to patients with life limiting illnesses.  The integration of palliative care with oncology patients has been shown to increase quality of life, yet there is often hesitation on the part of oncologists to introduce palliative care to patients.  Both the challenges of early introduction of palliative care in pediatric oncology as well as the many benefits were discussed.

Speaker:
Donna Johnston, MD, FRCPC, FAAP
Pediatric Hematologist/Oncologist, Children’s Hospital of Eastern Ontario
Professor of Pediatrics, University of Ottawa

Posted in 2015 Symposium | Tagged 2015 Symposium, integrated care, palliative care, Quality of Life

Workshop A – Quality or Quantity: Guiding Families through Difficult Decisions

Posted on November 6, 2015 by admin


Presentation Description: 
Using a case based approach, this interactive workshop  discussed the challenges children and their families, healthcare providers, and the healthcare team face in the setting of relapsed disease. This workshop discussed eliciting parents’ definition of “being a good parent to my very ill child” and using this to inform care. Conversely, the assembled group examined the clinician’s definition of “being a good doctor/nurse/provider to this very ill child”, and how this compares and contrasts with what patients and parents value.  This session explored what happens to the family and family dynamics at the time of diagnosis or relapsed disease.  In addition, team dynamics (internal and external)  during times of crucial decision-making and conflict were explored. Conceptual clarification of palliative care and end of life care were discussed along with tools for incorporating this into our communication with families and health care providers, and in our decision-making.

Andrea Frolic, PhD
Director, Office of Clinical & Organizational Ethics, Hamilton Health Sciences, Hamilton
Assistant Professor, Department of Family Medicine, McMaster University, Hamilton

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Pamela Hinds, PhD, RN, FAAN
Director, Department of Nursing Research and Quality Outcomes
Children’s National Medical Center, Washington

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Shayna Zelcer, MD, FRCPC
Staff Physician, Paediatric Hematology/Oncology
Children’s Hospital, London Health Sciences Centre
Associate Professor, Department of Paediatrics
Schulich School of Medicine and Dentistry

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Posted in 2015 Symposium | Tagged 2015 Symposium, end of life care, families, parents, Quality of Life, relapse

Exercise: Benefits and Implementation in Long-Term Childhood Cancer Survivors

Posted on March 6, 2014 by admin

Presentation Description:
Emphasis on cancer survivorship is increasing yearly both for adults and children diagnosed with cancer. The incorporation of exercise as a standard component of cancer therapy has not yet been established. However a growing amount of research is directed at investigating the effects of exercise on cancer survivors. This presentation summarized recent evidence supporting incorporation of exercise following cancer diagnosis, reviewed exercise safety considerations and highlighted the CanWell Exercise and Education program for cancer survivors.

Speaker:

Oren Cheifetz, PhD
Clinical Specialist in Physiotherapy, Hamilton Health Sciences
Canadian Cancer Rehabilitation and Education Institute (CCREI)

Posted in 2014 AfterCare Education Day, Education for Health Professionals | Tagged 2014 AfterCare Education Day, childhood cancer survivors, exercise, Quality of Life, survivorship

Workshop F – Managing Your Health After Cancer

Posted on January 14, 2014 by admin


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Presentation Description:
Managing your health after cancer can be overwhelming, but empowerment is the key. That’s why POGO created the Passport to Health and Survivor Care Plan Package, a tool that is specially customized to each survivor to help them learn about late effects they may be at risk for and keep track of treatment information. This workshop provided an overview of this innovative tool, how to get it and what you need to do to successfully manage your health for years to come.

Speaker:
Carla Bennett, RN, BN
Coordinator of Clinical Programs
Pediatric Oncology Group of Ontario (POGO)

 

 

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged cancer survivor, late effects, passport to health, Quality of Life, survivor care plan, survivorship

The Developmental Trajectory of the Childhood Cancer Survivor

Posted on February 5, 2013 by admin

Presentation Description: It is widely known that growing up with childhood cancer may have consequences in adulthood.  Little is known about possible predictors of these consequences. The course of life (fulfilling developmental tasks and achieving developmental milestones) may be an important mediator of later quality of life and psychological functioning. The course of life of 353 Dutch survivors in comparison to 508 peers was discussed in this presentation.

Speaker:

Martha Grootenhuis, PhD
Head, Psychosocial Research Department
University of Amsterdam, Amsterdam, Holland
Head, Psychosocial Research Department
Emma Children’s Hospital, Academic Medical Center, Amsterdam, Holland

Posted in 2008 Symposium - New Frontiers: Building on 25 Years of Progress, Education for Health Professionals | Tagged 2008 Symposium - New Frontiers: Building on 25 Years of Progress, 25th anniversary, late effects, psychological late-effects, Quality of Life, survivors, survivorship

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@POGO4Kids

January 30, 2023

We’re excited to have @TD_Canada as a POGO PJ Party sponsor! Thank you for the support to help ensure everyone affected by #childhoodcancer has access to the best care and support. Learn more here: http://pogopjparty.com #POGOPJParty

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