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POGO > Blog > cancer survivor
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Tag: cancer survivor


A Genetic Mutation: A Lifetime of Cancer Screening

Posted on May 28, 2019 by Kelly Zorzi

Yasmin Nasrati

Adapted from Yasmin Nasrati’s speech at the the annual Cadillac Fairview Run 

When I was a kid, my big brother was diagnosed with colon cancer and later with metastatic adenocarcinoma of the duodenum. Sadly he passed away. He was only 12 years old.

Shortly after his death, his oncologist at SickKids Hospital suggested that all of his siblings get genetic testing. That is when my family learned that I have an inherited gene mutation, which increases my risk of acquiring  malignancies and other serious health concerns. And so began my lifelong annual cancer screening.

I was 7 years old.  

Because of the regular screenings, they discovered my brain tumour early. At age 13, I received 33 daily radiation treatments and I was cured….per se, but I have certain side effects because of it.

This might shock you, but I am actually a four-time cancer survivor.

At age 15, I was diagnosed with cancer of my small bowel— and treated with surgery and 12 cycles of chemotherapy.

When I turned 18, I aged-out of the pediatric system. This was a very stressful time because all of the staff at SickKids Hospital are trained to take care of children, both physically and emotionally, so I felt very safe. At 18, I was still really young and didn’t feel ready to leave the children’s hospital.

My regular cancer screenings continued at Princess Margaret Hospital. At age 22, I was diagnosed and treated for colorectal cancer and a year later, breast cancer.

In addition to screening, I am monitored at the POGO AfterCare Clinic on a regular basis for late effects. Actually all survivors are monitored, not just those with a genetic mutation.  This is because even though the survival rate is up to 86%, as many as 60% of young adults will face a lifetime of complications that are a direct result of their childhood cancer or the treatment they received.

One of these complications is learning difficulties, including slowed rate of information processing, poor working memory, increased forgetfulness and more. These are all things that I struggle with on a daily basis.

I am 23 years old, and at this stage in my life, my education is my main priority, but for a while, my success at school was at risk. It was through my nurse practitioner at the AfterCare clinic that I was introduced to my POGO counsellor.

POGO’s academic and vocational counselling program is a donor-funded program that provides personalized support for childhood cancer survivors who need extra help to transition from high school on to college, university or into a vocational program.

Counsellors work one-on-one with survivors to provide them with special accommodations to complete tests and schoolwork; to help them match their career goals with their abilities; to facilitate scholarships targeted at survivors; and link survivors with the appropriate disability services and supports within colleges, universities or the community.

I am proud to say that I am now a college graduate and currently a student in York University’s Sociology and Human Rights Programs.

By Yasmin Nasrati


I recently had the opportunity to represent both the Hospital for Sick Children and POGO at the annual Cadillac Fairview Run/Walk, which raised $250,000 through sponsorship and employee participation. 

Posted in Misc | Tagged AfterCare, cancer survivor, genetics

Screening and Prevention – Empowering through Education

Posted on January 20, 2014 by admin


VIEW THE PRESENTATION

Presentation Description: 
Do you show up at your screening appointments wondering why you’re even there? Or maybe you haven’t gone at all and are worried you missed the memo? Screening and prevention can be a tricky subject because there isn’t a ‘one size fits all’ standard. This presentation provides an overview of exactly what screening is, why it’s important, who is at risk for what, and what you need to know to responsibly manage your health for years to come.

 

 

Speaker:
Paul Nathan, MD, MSc, FRCPC
Director, AfterCare Program
Hospital for Sick Children

Posted in 2013 Survivor Conference, Education for Survivors | Tagged cancer survivor, late effects, risk factors, screening, second cancer, second malignancy, secondary cancer

Workshop E – A Leg Up: Assistive Technology for Individuals with Cognitive Challenges

Posted on January 14, 2014 by admin


VIEW THE PRESENTATION

Presentation Description:
Many childhood cancer survivors struggle with cognitive challenges as a result of their diagnosis and/or treatment and assistive technologies may be able to help. This workshop provided an overview of new assistive devices/technologies available to cancer survivors that can aid and improve cognition; features to look for and how to get your hands on this technology; and complimentary learning strategies to help you reach your academic and career goals.  

Speaker:
Todd Cunningham, PhD, C. Psych (Supervised Practice)
Psychologist
Ontario Institute for Studies in Education (OISE)

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged assistive technology, cancer survivor, cognitive challenges, late effects, memory, neurocognitive symptoms, survivorship

Workshop F – Managing Your Health After Cancer

Posted on January 14, 2014 by admin


VIEW THE PRESENTATION

Presentation Description:
Managing your health after cancer can be overwhelming, but empowerment is the key. That’s why POGO created the Passport to Health and Survivor Care Plan Package, a tool that is specially customized to each survivor to help them learn about late effects they may be at risk for and keep track of treatment information. This workshop provided an overview of this innovative tool, how to get it and what you need to do to successfully manage your health for years to come.

Speaker:
Carla Bennett, RN, BN
Coordinator of Clinical Programs
Pediatric Oncology Group of Ontario (POGO)

 

 

 

Posted in 2013 Survivor Conference, Education for Survivors | Tagged cancer survivor, late effects, passport to health, Quality of Life, survivor care plan, survivorship

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