Marking National Indigenous History Month with a Special Video for Parents and Caregivers of Children with Cancer
Introductory Note from POGO
The POGO Indigenous Children with Cancer Initiative, established in 2019, is dedicated to enhancing
equality and cultural safety in the care of Indigenous children with cancer and their families. This initiative brings together individuals with lived experience, healthcare providers from across the Ontario, Indigenous Navigators from hospitals, and members of the Indigenous Cancer Care Unit of Ontario Health.
In honour of National Indigenous History Month this June, we are proud to share a heartfelt video designed to increase understanding of a childhood cancer diagnosis. Recognizing the diverse caregiving roles within Indigenous communities, this video is intended for anyone in the child's support circle, including parents, community elders, extended family, and Indigenous healers.
Jennifer Keis, Nurse Practitioner at SickKids and a valued member of our initiative, shares her reflections below on the creation of this video and its impact on her practice.
Walking alongside Indigenous Patients and their Communities
In nursing, we are taught to provide culturally-safe, patient/family-centered, and holistic care. My experience with the POGO Indigenous Children with Cancer Committee has reinforced that achieving this requires an open mind and a willingness to listen and learn from others.
I am grateful for the wisdom, stories, and expertise shared by Indigenous healthcare providers, community members, and families who are part of the committee. Their strength in sharing the challenges and trauma of navigating the healthcare system with such honesty and integrity has had a profound impact on me. I recognize that I must continue to engage in learning, listening, and adapting to ensure I am providing meaningful and thoughtful care to Indigenous families.
I had the privilege of getting to know the patient featured in the video, Makenzy, and his mom, Wendy, during a long stay at SickKids, so you can imagine the emotional impact the video has had on me. In the video, Wendy, who, in her spare time, enjoys art as a hobby, shares with viewers a painting, which beautifully illustrates the family’s hope to remain connected to their Indigenous culture and practices while Makenzy was receiving treatment for leukemia. Wendy’s powerful symbol of resilience and connection is not unlike the hope of other Indigenous families who will need pediatric oncology care in the future.
Indigenous families deeply value preserving cultural identity, even as they navigate the challenges of western healthcare. This shared experience resonates with many and underscores the importance of walking alongside Indigenous patients and their communities—recognizing, respecting, and integrating their traditional practices and medicines into our care approach.
Supporting Families through Childhood Cancer Diagnoses
As nurses, we understand how overwhelming it can be for families to receive
a childhood cancer diagnosis. Suddenly, families are thrown into an unfamiliar world filled with medical jargon, blood tests, diagnostic procedures, and various healthcare providers. While trying to comprehend the gravity of the diagnosis, families are faced with making significant treatment related decisions that may feel overwhelming, all while grappling with the emotional shock of the news.
Now, imagine how much more difficult this experience is for families coming from a place of historical and medical trauma, racism and discrimination, loss of cultural identity, and health disparities. The intricate nature of these challenges can magnify the emotional toll, making it even harder for families to navigate this already overwhelming experience.
Creating a Culturally-Sensitive Support Tool for Indigenous Families
Our vision in creating the video is to provide an avenue to open communication, build rapport, and share information in a way that is culturally sensitive and less overwhelming for Indigenous families facing a new childhood cancer diagnosis. Acknowledging the significant value of connection within Indigenous communities and with their elders, we also understood the importance of providing an educational tool that families can share with others.
Thank you for reading my reflections on the privilege of participating in the POGO Indigenous Children with Cancer Committee and helping to create the video, Childhood Cancer: A Guide for First Nations Communities. If you haven’t watched it yet, I encourage you to do so.
Watch Childhood Cancer: A Guide for First Nations Communities
I hope it becomes a valuable resource for sharing with colleagues, but most especially, with Indigenous pediatric oncology families you support. As nurses, we have the privilege of spending meaningful time at the bedside, listening to families share their stories, building trust, and advocating when their voices need to be heard. My hope is that the video, along with other POGO Indigenous resources, will support you in fostering these important relationships with cultural humility, an openness to listen and learn, and compassion in the care we provide.
Jennifer Keis is a pediatric nurse practitioner at The Hospital for Sick Children, working with families facing leukemia or lymphoma.
A New Era in the Treatment of Pediatric B-ALL
Expert Recommendations for Administration of Blinatumomab and Looking to the Future
For those working in pediatric oncology, there’s been no shortage of conversation this past year about a new era in treating pediatric B-ALL. The Children’s Oncology Group (COG) Nursing Steering Committee hosted a webinar earlier this year, providing insights into the widely discussed AALL1731 study and sharing practical strategies for managing blinatumomab infusions. This webinar was presented by the Children’s Oncology Group (COG) Nursing Steering Committee on February 12, 2025.
The intended audience for this webinar is primarily nurses, although allied health professionals will also find it beneficial. Attendees will gain insights into the AALL1731 study results and learn how nurses have effectively addressed challenges related to blinatumomab infusions in their institutions.
The webinar objectives are:
- Review AALL1731 study results
- Highlight nursing contributions to success of blinatumomab on COG clinical trials
- Brief review of qualitative results – perspective of caregivers
- Framework for improving healthcare experiences
- Perceived risks (to patient/family outcomes) with care delivery
- Consideration of hypogammaglobulinemia
- Sharing examples of delivery practices
- Rural populations
- 7-day bags
- Equipment challenges
- Prior authorization
If you missed the live webinar, you can still watch it here – COG Nursing Webinar Blinatumomab
If you collect Continuing Education Units, you can earn 1.5 hours by watching this presentation and using the QR code to access the evaluation.
Articles of Interest
- Bernhardt MB, Militano O, Honeyford L, Zupanec S. Blinatumomab use in pediatric ALL: Taking a BiTE out of preparation, administration and toxicity challenges. J Oncol Pharm Pract. 2021 Mar;27(2):376-388. doi: 10.1177/1078155220979047. Epub 2020 Dec 18. PMID: 33334253.
- Montgomery KE, Zupanec S, Yun C, Okada M, Kubaney H, Feehily E, Withycombe JS. A Quality Approach to Blinatumomab Delivery in Pediatric Oncology: A Children’s Oncology Group Study, 2024, J Pediatr Hematol Oncol Nurs (Epub 9 Sept 2024).
- Withycombe JS, Kubaney HR, Okada M, Yun CS, Gupta S, Bloom C, Parker V, Rau RE, Zupanec S. Delivery of Care for Pediatric Patients Receiving Blinatumomab: A Children’s Oncology Group Study. Cancer Nurs. 2024 Nov-Dec 01;47(6):451-459. doi: 10.1097/NCC.0000000000001309. Epub 2023 Nov 22. PMID: 38016041; PMCID: PMC11128477.
Cancer-Related Fatigue and What Pediatric Oncology Nurses Need to Know
Cancer-related fatigue is a major but often under-recognized aspect of childhood cancer care. As treatments become more effective and survival rates improve, attention is shifting to the overall well-being of young patients during therapy. Fatigue stands out as a common experience that can affect every part of a child’s life, from play to school to home. Understanding fatigue is an essential step in providing truly comprehensive pediatric oncology care.
What does the evidence say about fatigue in pediatric oncology?
We know that fatigue is one of the most prevalent, severe and distressing symptoms and it can persist long-term into survivorship. Fatigue is associated with a decreased quality of life and can co-occur with other symptoms such as depression and sleep disturbance.
So, what can we do about it?
POGO’s Guidelines Program provides healthcare professionals in Ontario and worldwide with the best options for managing the adverse effects of cancer and its treatment with the goal of improving the health and quality of life of children with cancer.
Read more about the program here.
Recently, this POGO program released a fatigue clinical practice guideline (CPG) to get you moving in the right direction. The purpose of the fatigue CPG is to guide healthcare providers in the management of fatigue in children and adolescents with cancer and pediatric recipients of hematopoietic stem cell transplants (HCT).
The fatigue CPG ultimately highlights four recommendations and one good practice statement (see table below). Nurses at the bedside and in clinics are uniquely positioned to implement these evidence-based recommendations.
I’ve reviewed the fatigue CPG, now what?
Start with the good practice statement. You can ask your patients about fevers, nausea and vomiting, pain and more, so now is the time to start asking about fatigue. There are many tools to help you assess fatigue; see if your institution is using any of them. Some examples include: Peds-PRO-CTCAE, PROMIS and SSPedi: Symptom Screening in Pediatrics Tool.
Next, try recommendation 1, the use of physical activity. There is no perfect intervention for physical activity, but you can assess what brings your patient joy and start small and scale up. Maybe it is a dance party that the unit holds for 10 minutes a day or maybe your unit has organized scavenger hunts that have the patients up and moving around the unit and hospital. Encourage families to get involved and plan activities such as walks, bike rides or yoga.
Guided by the POGO fatigue CPG, the Children’s Oncology Group (COG) New Diagnosis Guide now incorporates information about fatigue, including describing fatigue as a symptom of cancer and cancer therapy and offering suggestions to families on how to manage fatigue. This guide can help you start the conversation.
Find the New Diagnosis Guide and other COG family resources here. https://childrensoncologygroup.org/cog-family-handbook
Review POGO’s clinical practice guidelines on fatigue, and other topics, here.
AboutKidsHealth has also developed some great resources about fatigue which you can read more about here: Cancer-related fatigue
Denise Mills, MN, RN(EC), NP Pediatrics
POGO Provincial Clinical Lead, Pediatric Oncology Nursing
References
- Hooke, M.C., & Linder, L.A. (2019). Symptoms in children receiving treatment for cancer-part 1: fatigue, sleep disturbance, and nausea/vomiting. Journal of Pediatric Oncology Nursing, 36(4), 244-261.
- Patel, P., et al. (2023). Guideline for the management of fatigue in children and adolescents with cancer or pediatric hematopoietic cell transplant recipients: 2023 update. www.thelancet.com Vol 63 September, 2023.
Meet Renee Smith, Compassionate and Experienced Pediatric Oncology Nurse at Windsor Regional Hospital
As a nurse at the POGO Satellite Clinic at Windsor Regional Hospital (WRH), Renee Smith plays a pivotal role in ensuring that pediatric oncology patients in the Windsor-Essex County area receive the care they need, closer to home. Her work is a testament to the power of empathy, teamwork, and dedication that makes a lasting impact on the families she serves. Here, Renee shares her experiences, insights, and the reasons why pediatric oncology nursing is so close to her heart.
Helping Children Receive Optimal Care
Renee’s role is focused on coordinating care for childhood cancer patients residing in the community. A key part of her mission is to help these children and families avoid long travel on the highway to reach a larger hospital with a specialized childhood cancer program.
“I work as the RN in the clinic, organizing appointments and working closely with our pediatrician and pharmacists to administer chemotherapy,” Renee explains. “Patients come to me for lab work, port access, blood transfusions, and supportive care as needed. If a child is feeling unwell, they can come to our POGO Satellite Clinic and be assessed on-site.”
The POGO Satellite Clinic at WRH also coordinates imaging and communicates with their partner hospital, Children’s Hospital, London Health Sciences Centre, to ensure patients receive optimal care. The highlight for Renee is the deep relationships she forms with the POGO families, helping them through one of the most difficult times in their lives.
“I love meeting the POGO families and working with them throughout their journey. It’s rewarding to be part of their lives, especially knowing that our work can help make a terrible time a little more bearable. I also love how the role allows me to continuously learn new information and grow as a nurse.”
A Journey in Nursing
Renee’s career journey is one of passion, dedication, and a deep love for pediatric care. She worked in pediatrics for 19 years before she began covering shifts in the POGO Satellite Clinic at WRH. She then spent three years in the chemotherapy suite of the Adult Cancer Centre, with a primary oncologist, managing patients with solid tumours, melanoma, and hematology.
However, Renee’s heart always remained with pediatric patients, and when the opportunity to return to the POGO Satellite Clinic became available, she jumped at the chance to be back with children and their families.
“I’ve always felt deeply connected to the pediatric population, and being part of the POGO team has been a dream come true,” says Renee.
Advice for Aspiring Nurses
For those interested in pursuing a career in pediatric oncology nursing, Renee offers some valuable advice:
“Be patient, listen actively, and develop strong communication skills. Children and families need to feel heard and supported. It’s also important to find healthy coping strategies through hobbies or exercise to maintain a balanced life and avoid burnout.”
She also emphasizes the importance of ongoing education. POGO offers several educational opportunities, including Satellite Education Day, AfterCare Education Day and virtual education.
“Pediatric oncology is constantly evolving, so staying up to date with new treatments and technologies is key. Work as part of a strong team, advocate for your patients, and always take the time to celebrate the small wins along the way.”
The Emotional Toll of Pediatric Oncology Nursing
Renee highlights one of the most pressing challenges in pediatric oncology nursing: the emotional toll. Nurses in this field witness the pain and suffering of children and their families, which can be incredibly difficult to cope with.
Above all, Renee reminds aspiring nurses not to neglect their own well-being.
“Taking care of yourself is just as important as taking care of your patients. It’s important to acknowledge the emotional strain that comes with the job. Nurses are there to support both the patients and their families, but sometimes we forget to take care of our own emotional needs. It’s crucial to recognize when burnout is a concern and to take steps to manage it.”
A Family Legacy of Nursing Begins
One recent achievement that Renee is particularly proud of is seeing her son, Owen, enter the nursing program at Western University.
“When I asked him why he chose nursing, he said it was because he remembers me always speaking so highly of the profession and its impact on helping people. He told me he wanted to follow in my footsteps and become the best nurse he could be. It was such an emotional and proud moment for me.”
Inspiring the Next Generation of Nurses
Renee’s story is one of inspiration, dedication, and unwavering commitment to the families she serves. Her work in pediatric oncology nursing touches the lives of children and families, making a profound impact during some of their most difficult times. Through her work, she exemplifies what it means to provide compassionate, high-quality care with a heart full of empathy.
We thank Renee for sharing her journey and insights. Her dedication continues to inspire not only the patients and families she cares for, but also the next generation of nurses, including her own son.
Reflections of a Bedside Nurse
Reflective practice is a cornerstone of pediatric hematology/oncology nursing—strengthening team collaboration, elevating standards of care, and supporting the emotional well-being of nurses. Its benefits are far-reaching, touching not only the nurses themselves but also the young patients and families they care for. Reflective Practice Corner is a standing section in The RePORTer—POGO’s Nursing Newsletter—featuring reflections from nurses across the province and offering insights into their experiences. It also invites readers to pause and consider the questions posed.
Clare Holton has been a registered nurse for five years and found her passion for pediatric oncology two years ago when she joined the pediatric oncology team at McMaster Children’s Hospital, Hamilton Health Sciences.
What lessons have you learned from your patients?
It is a privilege to care for children and their families as they navigate the challenges and milestones of the cancer journey. Every day offers something meaningful, especially through the invaluable lessons I have learned from my patients, which cause me to pause and reflect.
I remember caring for a five-year-old patient with neuroblastoma. His love for the small things in life and his ability to live for the moment were truly inspiring. His perspective was untainted by fear or doubt. This was truly a breath of fresh air and a resounding lesson in resilience. There was something profoundly inspiring in this patient’s unshakeable hope and pure-hearted view on life. He had a strong fighting spirit and a bright outlook that resonated with everyone around him. I remember walking into his room after he had several grueling days of chemotherapy. I heard Elton John’s “I’m Still Standing” playing and there he was playing with his race cars quietly singing along. That moment stuck with me, reminding me that even on our hardest days we can still stand on our own two feet and keep moving forward, even if it’s small steps. This has become one of the most powerful lessons I have learned working in pediatric oncology: to be hopeful, keep going, and never underestimate the strength found in resilience. Every time I hear that song, I think of this patient and his unwavering spirit, brightness, and strength in the highs and the lows. I carry this memory, especially on my own tough days, as a reminder of the incredible courage and resilience of the patients we care for.
How do you prioritize self-care?
While caring for my patients is my priority, on my days off I like to spend time in nature, reading, and at my family cabin with my family and with my dog. Working in an acute, fast-paced, and unpredictable environment is challenging at times especially during 12-hour shifts. I encounter both ups and downs, and I frequently experience emotionally difficult situations. On my days off, I really take advantage of doing the things I enjoy. I also engage in mindfulness and reflective practices to support a healthy work-life balance. This is important to me so that I can continue to provide family-centered compassionate care. I try to incorporate the same mindfulness into the workplace by embracing the ability to “take things as they come” while balancing it with the planning and the structure my job requires.
How do you stay motivated and inspired on tough days?
Caring for a child with cancer means supporting the entire family unit. One of the most difficult parts of this role is to navigate the delicate balance of offering hope with the reality of their diagnosis. I aim to be honest while maintaining compassion, giving the families space to process. It is a balance of holding hope while also preparing for the worst possible outcomes, and I try to walk that line with humility and grace.
Clare Holton, RN, has been a registered nurse for five years. She found her passion for pediatric oncology when she joined the pediatric oncology team at McMaster Children’s Hospital, Hamilton Health Sciences.
Related content: Reflective Practice IS Nursing Practice
Boxing for Mental Health
18-year-old Isla MacIntosh discusses how boxing helps her cope with her mental stressors
Taneisha: Can you tell me a little bit about yourself and your experience with childhood cancer?
Isla: I was diagnosed with leukemia when I was four years old and have been in remission since the age of seven. I work at a golf course in Ottawa and I just finished my first year in the Behavioural Science Program at St. Lawrence College.
Taneisha: Other than your family, does anyone else know about your diagnosis? Did you have to miss any school due to your cancer and its treatment?
Isla: My parents mentioned it to people they knew and our surrounding neighbours and, of course, my school knew. I missed kindergarten entirely so my first year attending school in person was in Grade 1. Everyone was very supportive.
Taneisha: Do you feel you continue to get the support you need?
Isla: My sister has done everything she could to support me ever since I was young. She pretty much gave up her childhood because of me. In my early teens, I realized how big my diagnosis really was, and I needed to find an outlet to relieve stress. At 14, boxing became that outlet. My whole family is supportive of my boxing.
Taneisha: How did you discover boxing?
Isla: I found this youth recreational boxing class in Ottawa where I grew up. The coach was the first female boxing coach. She was a big inspiration to me because she had cancer so I felt that I could relate to her. She also helped me find a great boxing school when I started going to school in Kingston. Now I train 3-4 days in person and on the other days, I do dryland training. Dryland training means conditioning, running, weights and other strength activities.
Taneisha: How did boxing help you with your mental health stressors and how did it help you get through your first year of college?
Isla: When I moved away for school in Kingston, I found a safe place for boxing with nice people, which helped me not worry as much about school. Boxing is very technical. When you are in the middle of it, you have to focus on boxing and nothing else. It takes you out of any stressful situation you might feel you are in.
Taneisha: What are your goals—both for boxing and your education?
Isla: I like to compete so my goal for boxing would be to go to nationals. My goal for school is to find a full-time job that relates to behavioural science.
Taneisha: Do you have any advice for other childhood cancer survivors who are going through something similar to what you are going through?
Isla: My advice would be to find an outlet that is important to you, especially if you are older and there are external pressures. It could be sports, music or something else. An outlet can be a safe place for you to express yourself.
Taneisha Kandiah was diagnosed with leukemia when she was 18 months old. She has been in remission since the age of three. She recently graduated from the University of Ottawa in life sciences.
Virtual Learning When You Have ADHD
From the Perspective of a Childhood Cancer Survivor - Leigha Bartholomew
Being a childhood cancer survivor, I know what it is like to fall behind in school. Months of my schooling were spent in a hospital and attending weekly medical appointments. I began to feel overwhelmed thinking I’d never be able to catch up or that I wasn’t doing as well as my peers. It was never expected that I would be at the same level as everyone else while I was going through treatment, at the time I believed I just wasn’t good enough. I’m sure a lot of cancer survivors have felt the same way at one point or another.
I had a similar feeling when post-secondary schools introduced a virtual learning environment in the midst of the pandemic. I started noticing a shift in my capabilities. A new learning atmosphere meant new challenges that I couldn’t adapt to as quickly as I had in the past. Attending classes became more difficult, focusing on work and remembering to finish assignments on time developed into more of an issue than it had been just a few months before, and my motivation to be involved in class discussions decreased. On top of that, I couldn’t bring myself to speak with my professors over Zoom about the challenges that I was facing. It seemed like I was in a rut and I didn’t know how to pull myself out.
My ADHD diagnosis came just a few months after we started learning virtually. While I was familiar with ADHD, I was surprised to learn that I had the disorder myself. Adding this on top of the other issues I had with mental health (I was diagnosed with Generalized Anxiety Disorder in high school) was not something I had even considered, especially so far into my education. If someone were to look at my grades, I bet they wouldn’t have considered it either. Luckily, I didn’t have to go through these challenges all on my own.
Because mental health and learning disabilities pose a challenge for a number of young people, there are resources that have been put into place by schools to help students get through their education. In post-secondary school, there are learning strategists or assistive/adaptive technologists for students seeking academic support. Your academic advisor is also available to help you find programs or services tailored for your specific challenges.
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Being a childhood cancer survivor can further complicate things. While some survivors may already be predisposed to having mental health and learning challenges, others can develop them due to the treatments they received or other related factors and experiences. These issues can also continue into adolescence and adulthood. Since most people working in pediatric oncology are aware of these challenges, there are specific resources available to survivors and their families. POGO AfterCare Clinic professionals, such as counsellors, art therapists, clinical psychologists and social workers are some of the resources available to help cancer survivors develop strategies related to the difficulties they might be facing with school or everyday life, and POGO School and Work Transitions Counsellors can help you to access these various resources!
My advice to fellow survivors would be to understand that you are not alone if you find yourself struggling. I am sure a lot of people can relate to me when I say that I prefer in-person schooling over the virtual classroom, but that doesn’t mean it’s any less scary having to make the transition. If my own experiences have taught me anything, it’s that everyone has a different style of learning. If you need help, reach out. No matter how difficult things might seem, there are always people and programs available to students and survivors if they need help.
Doing Good for the Childhood Cancer and Survivor Community
Austin: What was it like battling cancer as a young teen?
Eloise: I was 14 years old when I was diagnosed with cancer, just weeks shy of starting my Grade 10 year. I was already trying to grapple with big questions like, “Who am I?” and “Who do I want to become?” I was busy navigating life and all things that “normal” teenagers experience. Then, on top of this quest for identity, I was suddenly confronted with a life-threatening illness. I felt overwhelmed, confused and defeated. I had no idea how to react or how to feel. There is no better way to describe it than an absolute rollercoaster of emotions.
In my opinion, the fundamental difference between young kids going through cancer and teens, is their sense of awareness. Unlike many young kids next to me on the 8th floor of SickKids, I KNEW something was wrong. Actually, I knew EXACTLY what was wrong. I had cancer—a disease I never imagined I would have, especially at 14.
Many brave young children I encountered accepted this painful journey with a sense of “normalcy.” Despite all they were going through, they maintained their positivity and love for life. This was something I could not mirror—not for lack of trying. I wanted to exude the same level of strength, courage and positivity as many of those children but I was keenly aware of my painful, frustrating and exhausting journey with cancer. People sometimes forget that teenagers are far closer to identifying as adults than they are to children, yet, they are unique and require a certain approach to their care.
Austin: In what ways does your journey with cancer still impact you today?
Eloise: Despite being cancer-free for nearly eight years, my journey through survivorship has been far from easy. Cancer continues to influence many areas of my life, both positively and negatively. On a professional level, I have built a career inspired by my experience. The Good Hood Club is a loungewear company that champions childhood cancer care, most notably by donating 50% of its profits to childhood cancer organizations like POGO. Given my journey and fortune with cancer, I constantly seek ways to give back. The Good Hood Club has provided me with a vehicle to do that.
Although cancer is a “distant memory,” the emotional turmoil it sparked is not. Daily, I battle anxiety primarily linked to having had cancer as a teen. This has been an ongoing challenge for me; however, I am committed to finding ways to help me manage it. More abstractly, cancer has taught me many invaluable life lessons. Undoubtedly, my biggest takeaway has been my appreciation and love for life.
Austin: How did you decide to start Good Hood Club as a business and how did you come up with the name?
Eloise: While studying commerce at Queen’s, I took a digital marketing class in my 3rd year. One of the projects required us to create an e-commerce-based business from scratch. While most of our classmates saw this as merely a school project, my group saw it as an opportunity to do something good. My best friend, Chloe, and I wanted to create something meaningful. We thought, “What can we sell that will do good?” Our answer, “Hoods.” We also wanted people to feel part of a more significant community, a club. Hence the name, Good Hood Club.
Austin: What does Good Hood Club mean to you, both on a personal and a professional level?
Eloise: On a professional level, I could not have asked for a better way to dive into the workforce. I have gathered experience across various areas. I have had unparalleled hands-on experience in marketing, operations, strategy, manufacturing, finance...you name it! I am incredibly grateful for the experience Good Hood Club has given me to date. Over time, I hope to watch the company grow, continuing to touch the lives of those battling childhood cancer.
On a personal level, Good Hood Club has been an invaluable healing method. The easiest way to deal with my pain is by transforming it into purpose. Good Hood Club has allowed me to do this, and for that, I am eternally grateful.
Austin: Do you think as a survivor of childhood cancer that there are enough support systems in place to help families and children?
Eloise: I think that there is always room for improvement. However, I am eternally grateful for the help and support I have received over my journey. The childhood cancer community is filled with exceptional individuals who have made invaluable contributions to the community. I would love to see additional resources in the realm of psychosocial support. For me, mental health has been a massive part of my journey with cancer; however, it has not necessarily been a massive part of my care. In my experience, cancer has been just as much a mental health disease as a physical one; yet, it is not treated as such. I hope for a future where both aspects are equally prioritized in cancer care protocols, right from the beginning.
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Austin: Do you have any advice for young adults that survived childhood cancer that are struggling to find a career that will be fulfilling for them?
Eloise: It is easy to get caught up in what you think you want and should do versus exploring what you truly want and were meant to do. As a business student, I was on a path to a corporate career. I thought that was what I wanted. The second I took the opportunity to try new things and explore, I uncovered newfound passions I wanted to pursue. My advice would be to always experiment and try. Don’t stay committed to one path until you have taken the opportunity to see what else you might want to explore.
Eloise founded Good Hood Club with her university best friend, Chloe, to make their love for hoodies more meaningful and promote comfort during stressful times. 50% of Good Hood earnings go to POGO (Pediatric Oncology Group of Ontario) and their mission to achieve the best childhood cancer care system for children, youth, survivors and their families in Ontario and beyond.
You can find Good Hood at:
Website: https://goodhoodclub.com
Facebook: https://www.facebook.com/goodhoodclub/
Instagram: https://www.instagram.com/goodhood.club/
Austin is an ALL survivor who is interested in music and is an avid drummer. He’s also passionate about giving back to cancer charities that helped him and his family during their cancer journey.
Creative Corner with Holly
Holly Bokor's Port Illustration
Port is part of a triptych* of self-portraits about my memories from when I had cancer at age 14. A lot of medical experiences and journeys can result in feeling dehumanized, objectified. Port focuses on the wires and tools, with no identifying features of the figure. The background contains scans of old documentation from my own treatment. Though it’s a drawing of myself, the sense of identity is purposefully removed. It reflects my feelings of emotional detachment. Essentially, it’s an attempt to capture that strange dissociation that occurred while I was in treatment.
*Artwork made up of three pieces or panels
Holly is a recent graduate of Seneca College's illustration program. They find solace in expressing thoughts through line. You can find more of their work at congercine.com.
Dr. Ewurabena Simpson Discusses Culturally Respectful Health Care
A conversation with POGO Transitions Counsellor Sarah Brandon and her respected colleague Dr. Ewurabena Simpson.
Sarah: We know that representation matters. Can you describe what that means for Black patients and their families?
Dr. Simpson: Speaking from my own experience as a patient, having a pediatrician who was also from the Black community had an important impact on the therapeutic relationship that my pediatrician had with me and with my family. Seeing someone from a similar cultural background meant that our pediatrician understood how our skin tone may have changed the way that certain conditions manifested on my complexion and how our cultural background influenced my family’s views on health and learning. It also meant that our family felt safe discussing specific challenges and experiences of subtle or overt racism as we settled into our life in Canada. One of the most lasting impacts that having a Black pediatrician had for me was that it helped me to see myself as a future physician, that I also belonged and that I could make a difference in the lives of all children regardless of their backgrounds.
Sarah: What does culturally respectful health care mean to you and what are 3 goals to strive for?
Dr. Simpson: I don’t think that there is a right answer to this question but in my mind, a commitment to culturally respectful health care would imply that we as healthcare providers will maintain an awareness and openness to others regardless of whether they are similar to or different from ourselves.
Dr. Simpson’s Three Goals for Culturally Respectful Health Care
- It is important to acknowledge that we all come from different life experiences and cultural backgrounds that will influence the way that we experience health and access health care.
- As healthcare providers, we should be aware that we cannot know everything about another person’s experience.
- We should remain humble and open to learning about our patients’ cultural backgrounds and experiences so that we can respond to and support their health needs in a way that is sensitive to and respectful of their culture.
Sarah: What can healthcare providers do in their practice to ensure Black patients feel safe and heard in our care?
Dr. Simpson: With each and every patient, it is important for us to check our personal biases and to be aware of how they may unconsciously influence our daily interactions and our approaches to patient care. When caring for Black patients, it is important to recognize that being Black does not represent a specific belief system, group of behaviours or any cluster of health attributes. Each patient is an individual and every family is a unique unit. As a healthcare provider, you should treat every patient encounter with an open mind and avoid making generalizations or assumptions that are based on a patient’s racial or cultural background. While being of African or Caribbean descent may be associated with race-based disparities in health, we should always remember that a patient’s health and experiences are shaped by much more than their physical attributes.
Sarah: What is the importance of honouring Black History Month in hematology and oncology as part of the continued fight against racism?
Dr. Simpson: Black History Month is our opportunity to celebrate the ongoing contributions of African, Caribbean and Black communities in Canada. By acknowledging these contributions and these communities in medicine and in hematology/oncology, this inclusion reinforces the fact that we all belong in this community, that we all have a role and that we all have a voice.
Sarah: Do you have a message for our Black childhood cancer survivors this Black History Month?
Dr. Simpson: You have gone through a long and difficult journey to overcome your illness and to get to a place of better health. You are among our champions for childhood cancer and for Black history. You inspire all of us and we hope that you feel cared for and safe in your medical care and in your day-to-day lives. If there are ways that we, as your healthcare providers, can be more supportive and sensitive in your care, we are open to doing better.
While this article was written in recognition of February being Black History Month, POGO recognizes that continually providing culturally respectful health care contributes to our vision of an excellent childhood cancer system. Read POGO's Diversity, Equity and Inclusion statement.
Sarah Brandon is a POGO Transitions Counsellor working at CHEO and Kingston General Hospital to empower youth and young adult survivors of childhood cancer and brain tumours in their transition from high school to post-secondary education or work.