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2018 POGO Pre-Symposium Nursing Seminar

Posted on November 22, 2018 by Jamie Irvine


On November 1, 2018 POGO hosted a one-day nursing seminar the day before the 2018 Multi-Disciplinary Symposium on Childhood Cancer. Topics covered included: Practical strategies to improve Patient/Family Education; CAR-T and other Immunotherapies; Survivorship in the Age of Precision Medicine; and Strategies to Maintain Optimism and Build Resilience for Pediatric Oncology Nurses. 

Over 90 nurses and other health care professionals from across Ontario and beyond attended the conference.

VIEW THE PROGRAM

PLENARY SESSIONS

Closing the Gap, Bridging the Divide: How to Effectively Teach Patients and Families
Stephanie Cox, RN(EC), MN, NP-Pediatrics
Angela Filice, RN

Avoiding Information Overload: What do Families Actually Need to Know?
Jen Sullivan, MSN, RN, CPON

Managing Stress and Cultivating Optimism: Enhancing Resiliency in Pediatric Oncology Nurses
Teresa Conte, PhD, CPNP

QUICK-HIT SESSIONS

Management of Fatigue in Children and Adolescents with Cancer and Pediatric Recipients of Hematopoietic Stem Cell Transplants: A Clinical Practice Guideline
Lillian Sung, MD, PhD

CAR-T Cell Therapy: Patient Eligibility, Management, and Nursing Considerations
Colleen Callahan, RN, MSN, CRNP

Stopping Cancer Cell Evasion with Immune Therapies
Sue Zupanec, MN, NP Pediatrics

New Therapies, New Late Effects – Survivorship in the Age of Precision Medicine
Eleanor Hendershot, RN(EC), MN, BScN, NP Pediatrics

BRAF Inhibition and Fusion in Low Grade Glioma
Tara McKeown, MN NP Pediatrics

Posted in 2018 Pre-Symposium Nursing Seminar, Education for Health Professionals | Tagged 2018 symposium, CAR-T, fatigue, immune, new therapies, Nurses, stress

Closing the Gap, Bridging the Divide: How to Effectively Teach Patients and Families

Posted on November 22, 2018 by Jamie Irvine


VIEW THE PRESENTATION

Presentation Description:
A diagnosis of cancer is emotionally distressing news to process for a newly diagnosed pediatric oncology patient and their family. There is an enormous amount of information that these families require to learn about their child’s diagnosis, side effects and treatment.  According to APHON’s Scope and Standards of Practice, educating patients and families about the child’s treatment, side effects, symptom management, care at home, and the family’s readiness and preferred method of learning are essential elements of the pediatric hematology/oncology nurse (2009). Pediatric oncology nurses often do not have formal training on how to educate families. Since nurses provide a large portion of education, it is imperative to have the knowledge and skills required to facilitate this transfer of knowledge. The understanding of health literacy and clear communication are foundational principles for patient and family education.

The presentation will provide educational tools focused on improving the nurse’s content and delivery of information and ability to facilitate client-centered learning, when teaching newly diagnosed pediatric oncology patients and families.

Speakers:
Stephanie Cox
, RN(EC), MN, NP Pediatrics
Nurse Practitioner

Stephanie Cox has been practicing at McMaster Children’s Hospital as a nurse practitioner in pediatric hematology/oncology since 2004. She received her Master’s of Nursing and Acute Care Nurse Practitioner-Pediatrics degree from the University of Toronto in 2004 and her Bachelor Science in Nursing from the University of British Columbia in 2000. Her clinical and research interests include the care of adolescents and young adults with cancer and the supportive care aspects of pediatric oncology therapy. Stephanie currently is the Disease Committee Nurse for the Myeloid Committee at the Children’s Oncology Group. In addition, her most recent focus has been developing and implementing improved educational strategies for pediatric oncology patients and their families.

Angela Filice, RN, BA, BScn, CPHON
Quality and Safety Nurse

Angela Filice earned her bachelor of arts in psychology at the University of Western Ontario in 2000 and went on to complete her bachelor of science in nursing at McMaster University. She has worked in the inpatient pediatric hematology/oncology unit for the past twelve years.

In 2016, she was awarded an Advanced Clinical Practice Fellowship with the Registered Nurses’ Association of Ontario entitled “educational strategies to improve content and delivery of education by pediatric oncology nurses to families of pediatric patients that are newly diagnosed with cancer.” She has delivered several nursing workshops on improving delivery of patient education.

Angela has been in the Quality and Safety nurse position for the past year where she works on quality improvement projects and safety initiatives.

Posted in 2018 Pre-Symposium Nursing Seminar | Tagged 2018 pre-symposium, nursing, stress

Managing Stress and Cultivating Optimism: Enhancing Resiliency in Pediatric Oncology Nurses

Posted on November 22, 2018 by Jamie Irvine


VIEW THE PRESENTATION

Presentation Description:
Working in pediatric oncology can be an emotional rollercoaster. Exposure to the triumphs and tragedies of the patients and their families while working in a fast-paced, chaotic environment can leave nurses struggling to maintain their own wellness as they care for everyone around them.  This presentation will provide some time for reflection and laughter and demonstrate tools to help nurses build and maintain their resiliency.

Speaker:
Teresa Conte, PhD, CPNP
Associate Professor, Department of Nursing
University of Scranton

Teresa Conte is an Associate Professor at the University of Scranton in Scranton, Pennsylvania, USA. She also practices as a pediatric nurse practitioner. Dr. Conte spent 18 years as a bedside pediatric nurse, 10 of which were with the Oncology/Bone Marrow Transplant Unit at Children’s Hospital of Philadelphia in Philadelphia, PA. Dr. Conte’s research has focused on the experiences of pediatric oncology nurses and survivorship experiences of young adult cancer survivors. She has lectured throughout the United States on resiliency building, self-care, work-related loss and grief and compassion fatigue prevention.

Posted in 2018 Pre-Symposium Nursing Seminar | Tagged 2018 pre-symposium, nursing, stress

Is Overprotective Parenting Linked to Anxiety and Depression?

Posted on January 30, 2018 by Kelly Zorzi

#BellLetsTalk #mentalhealthawareness

Ms. Amanda Sherman, BA, MA, PhD(c),  discusses her POGO-funded research study.

Your study looked at overprotective and overcontrolling parenting. Can you give us some examples of these two parenting styles?
I would define overprotection as a style of parenting that does not allow the child or emerging adult to experience stressful things. These parents might try to reduce harm even where the situation doesn’t require it. An overprotective parent might call their child’s friends to solve a problem or insist on driving them to destinations where they can easily walk or ride a bike. It is excessive care. Overcontrolling parenting has more to do with discipline and getting a child to behave in a specific way. A parent might say, “You can’t go out tonight because I don’t like some of your friends.” It is excessive control.

What is non-productive coping?
Coping strategies that are not effective in helping that person feel better (worrying, swearing,
avoidance and isolation, for example) are nonproductive because they may lead to more distress and anxiety. In children, one correlate of the development of anxiety disorders is overprotective parenting.

Are childhood cancer survivors more at risk for depression and anxiety?
When looking at levels of depression, we did not find that our sample differed significantly from  normative populations; but we did find that anxiety levels were markedly higher than the general population—participants’ scores on our questionnaire were within one standard deviation from the mean score of people with anxiety disorders. That was surprising to me and something we don’t yet know how to account for. Maybe for this population so much of their childhood was focused on getting better, that learning to cope with stress was less important than getting by and managing their illness. Now they are emerging adults and they are facing the potential late effects of their childhood disease, as well as regular life stresses, and perhaps they are less equipped to cope. These are hard questions to answer.


Amanda Sherman, BA, MA, PhD(c)

Ms. Amanda Sherman, BA, MA, PhD(c) was the recipient of the 2013 POGO Fellowship Award. Her research focused on maternal overprotection/overcontrol and its relationship to coping strategies, anxiety and depression in survivors of childhood cancer. Her study looked at 109 survivors aged 18-30 attending the POGO AfterCare Clinic at Princess Margaret Cancer Centre. POGO AfterCare Clinics  monitor survivors at regular intervals so that potential long-term effects of treatment can be identified as early as possible.


You are doing your PhD in psychology. How did your career path lead you to study childhood cancer patients? 
I did a practicum placement with Norma D’Agostino at Princess Margaret, where I was doing therapy exclusively with young adult survivors of childhood cancer. We noticed that problems with lack of autonomy, separating from parents and non-productive coping strategies kept coming up.

What can we take away from this research?
Now that we have this evidence that says overprotective parenting and anxiety are an issue in this  population, we can target those parents and teach them how to socialize coping in their children. Even the oncologist can spend five minutes asking the parents and children a few targeted questions to
determine if there is a bigger issue, flag it, and refer the family to a psychologist to help them develop better coping skills. 

What do you hope will come from your study?
This is preliminary research but even posing the question is opening doors and people are looking for potential issues when perhaps they weren’t looking for them before. Next steps from a research standpoint: our measure of overprotective and overcontrolling parenting needs to be validated and the study needs to be replicated with a non-cancer control group. I want to disseminate this research any way I can. 

What does this POGO Fellowship Award do for your career?
This grant has allowed me to have time, space and community to do research. What I have enjoyed so much about POGO is how open minded everyone is about psychosocial issues, and psychosocial  development. It has been nice to be accepted and encouraged for studying these kinds of issues, and working with medical professionals has helped provide a different perspective. It has been humbling, rewarding and encouraging at the same time.

Posted in Misc, Research | Tagged anxiety, depression, emotional health, late effects, parenting, psychosocial, stress

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