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New POGO Clinic Helps Teen Stay Connected with Friends

Posted on October 12, 2018 by admin

In September 2018, at the launch of the new POGO Pediatric Oncology Satellite Clinic at Peterborough Regional Health Centre (PRHC), Theresa Serracino-Inglott, husband Mario and son Anthony spoke on behalf of the parents and young patients who will be receiving care.

Last year in late August, Anthony was gearing up to start his Grade 11 year when he was diagnosed with acute lymphoblastic leukemia (ALL). Anthony spent most of his first six months at SickKids hospital because of complications and an extremely tough protocol for his high-risk diagnosis. Throughout the past year – and more so in the last six months – the Pediatric Outpatient or POP Clinic at PRHC has been our second home.

In April, Anthony was here for supportive care close to 20 days, and every day he was greeted with a smile and the exceptional care we have come to know from Shay Cannon and the POP Clinic Team. This was such a relief because as parents of children with a cancer diagnosis, we are continually being bombarded with difficult and gut-wrenching fears – and leaving the safety of SickKids Hospital is one of them.

Having to take your child to a new place for their care and allowing unfamiliar medical staff to provide treatment leaves us parents feeling vulnerable and scared – but once we walked through the doors of the POP Clinic and met Shay and the POP Clinic team, our fears subsided. Anthony immediately made a connection with the staff that has only strengthened over the months. Being closer to home to attend to such things as his fevers and blood work has meant a lot to Anthony. When he was admitted with a fever and had to stay at PRHC for more than a couple of days, it meant that his friends could easily come and keep him company to pass the time.

Throughout this time, the POP Clinic team was already beginning the transition to become an official POGO Satellite Clinic, which included staff training in all of the specialized areas of care we knew Anthony would need.

Now that this is an official POGO Satellite site, I can’t help but think of “future POGO families” in our area. Perhaps today, the news of the new clinic may not even register, but when they are burdened with their child’s diagnosis, they will have these things to ease their journey:

  • Closer access to chemo treatments
  • A “fever card” that is our direct route to the in-patient unit, allowing us to bypass emergency
  • Coordinated care between PRHC and SickKids that meets the high standard of care that POGO Satellite Clinics deliver
  • A trusting relationship with qualified staff that go above and beyond for patients in their care
  • Support from other POGO families that become lifelong friends because of this journey they’ve shared together

Having a POGO Clinic close to us makes life as a parent a whole lot easier. Feeling financially strapped is a common thread among families of children with cancer and satellite clinics give some relief to that. The shorter distance helps us save money on gas for the car, the need to eat out, motel costs, and childcare needed for siblings.

Anthony has already benefitted from shorter clinic visits. This is important because as a teen with cancer, many occasions have been missed because of treatment. Having the accessibility of the POGO Clinic gets him back to his friends who play a very important part in his recovery.

Parents of  children with cancer certainly would have never chosen this path for our children, but because this is where we find ourselves, I want to say how grateful we are to POGO and to Peterborough Regional Health Centre for making it possible for families like ours to have an official POGO Satellite Clinic right in our community. We can’t thank you enough for easing the burden by keeping many aspects of our child’s cancer treatment closer to home. Thank you.

Read the media release

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What’s so loved about POGO Satellite Clinics?

Posted in Misc, This is My Story | Tagged acute lymphoblastic leukemia (ALL), adolescents, AYA, care close to home, peterborough, satellite clinic

Workshop A – Adolescents with Lymphoma: Managing a Myriad of Issues

Posted on January 2, 2015 by admin


Presentation Description:
Adolescence is a transformative and often trying time in any young person’s life; throwing in a lymphoma diagnosis creates a veritable web of challenges. This interactive workshop tackled issues that are common in adolescents diagnosed with lymphoma, specifically: treatment-related toxicities, mental health concerns and sexuality. Attendees left with practical strategies to bring back to the bedside.  

Speakers (in presentation order):

Kara Kelly, MD
Associate Director, Division of Pediatric Hematology/Oncology/Stem Cell Transplant, Columbia University, New York
Medical Center Chair, Hodgkin Lymphoma Committee, Children’s Oncology Group

Megan Harrison, MD, FRCPC
Pediatrician, Divison of Adolescent Health, Children’s Hospital of Eastern Ontario, Ottawa
Assistant Professor, Department of Pediatrics, University of Ottawa

Anne Katz, PhD, RN
Clinical Nurse Specialist & AASECT-Certified Sexuality Counselor
CancerCare Manitoba

 

Posted in 2014 Symposium, Education for Health Professionals | Tagged 2014 Symposium, adolescents, lymphoma, mental health, psychosexual well-being, sexuality, toxicities

New & Now – Four Innovative Studies that are Changing the Landscape of Care

Posted on March 4, 2014 by admin


Presentation Description:
This presentation highlighted four innovative studies that are having a major impact on the diagnosis and/or treatment of childhood cancer.

Impact of Ethnicity on the Donor Search for Pediatric Patients Considered for Stem Cell Transplantation

Speaker:
Julia DiLabio, MSc, MD Candidate
University of Toronto, Toronto

Neuropathic Pain Related to Vincristine: A Pediatric Descriptive Study

Speakers:
Catherine Goudie, MD
Fellow in Pediatric Hematology-Oncology
McGill University, Montreal

Christine Racette, MD
Pediatric Resident
Laval University, Quebec City

Bringing 131I-MIBG Therapy Closer to Home

Speaker:
Denise Mills, RN(EC), MN, NP Pediatrics, CPN, ACNP
Division of Haematology/Oncology
The Hospital for Sick Children, Toronto

Relations Among Anxiety and Depression, Autonomy and Mothers’ Overprotective Parenting Practices in Young Adult Survivors of Childhood Cancer

Speaker:
Amanda Sherman, MA, PhD Candidate
Department of Psychology, University of Toronto, Toronto
POGO Research Fellow

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, adolescents, anxiety, ethnicity, MIBG, neuropathic pain, parents, Pediatric Stem Cell Transplantation

New & Now – Four Studies that are Changing the Landscape of Care

Posted on March 3, 2014 by admin


Presentation Description: 
This presentation highlighted four innovative nursing studies that impact pediatric cancer care.

Continuous Quality Improvement in Pediatric Oncology – Utilizing Lean Methodology to Standardize Chemotherapy

Speakers:
Erin O’Shaughnessy, RN, MScN
Martha Pinheiro-Maltez, RN, MScN

Rapid Hydration: Small Change with Big Gains

Speaker:
Julie Watson, MSN, RN(EC)

Feasibility, Acceptability and Effectiveness of a Sleep Hygiene and Relaxation Intervention to Improve Sleep and Fatigue for Children on Maintenance Chemotherapy for ALL

Speaker:
Sue Zupanec, MN, NP Pediatrics

Understanding Body Image, Sexuality, Dating, Friendships and Fertility in Adolescents with Cancer from an Adolescent and Parent Perspective

Speaker:
Lindsay Jibb,RN, MSc, PhD student

Posted in 2013 Pre-Symposium Nursing Seminar - Innovation in Pediatric Oncology Nursing, Education for Health Professionals | Tagged 2013 Pre-Symposium Nursing Seminar, adolescents, ALL, chemotherapy, fertility, psychosocial, rapid hydration, sleep

Whose Choice is it? The Dilemma of Complex Decision Making

Posted on February 1, 2013 by admin

Presentation Description:  This panel discussion explored the ethical dilemma of decision making by young adolescents considered cognitively able to make treatment decisions, but potentially challenged by the time horizon typical of their age.  It explored the decision making options available for local control of osteosarcoma of the lower limb through the eyes of a young survivor, his mother, a second survivor who now practices orthopedic oncology, and an ethicist.

Speakers:

Mark Greenberg, OC, MB, ChB, FRCPC, FAA
Medical Director, Pediatric Oncology Group of Ontario (POGO)
Professor of Paediatrics and Surgery, University of Toronto
POGO Chair in Childhood Cancer Control, University of Toronto

Michelle A. Mullen, MHP, PhD
Associate Professor Departments of Paediatrics & Women’s Studies
University of Ottawa, Ottawa, ON
Consultant Bioethicist
Children’s Hospital of Eastern Ontario, Ottawa, ON

Kurt Richard Weiss, MD
Parent and Survivor
Assistant Professor, Department of Orthopaedic Surgery
University of Pittsburgh School of Medicine, Division of Musculoskeletal Oncology
Pittsburgh, PA

Posted in 2010 Symposium, Education for Health Professionals | Tagged 2010 Symposium, adolescents, decision-making, ethics, osteosarcoma, pediatric sarcomas, rhabdomyosarcoma

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