Research & Data

Data Anatomy

POGONIS is POGO’s active registry and database on childhood cancer in Ontario. It is a rich source of data, which are available to inform childhood cancer system policy and planning and for research purposes.

POGONIS Data Dictionary

For a copy of the POGONIS Data Dictionary Manual, please contact the POGO Data team.

Disease Diagnosis Overview

Disease Diagnosis Overview Diagram

Status Markers

  • POGO Code
  • Hospital ID
  • Health Card Number
  • Date of birth
  • Postal code (at diagnosis)
  • Patient Registration ID
  • Race
  • Sex
  • Limited Registry
    • Out of Country
    • Out of Province
    • Aged 18 years at diagnosis
    • Etc.

Disease Diagnosis

  • POGO Code
  • Diagnosis
    • Date of definitive diagnostic procedure
    • Pathologically confirmed diagnosis and date
    • Diagnostic code
    • Method of diagnosis
    • ICD-O M Code
    • Benign/NIB/malignant
    • Histology/morphology
    • First or subsequent primaries
    • Biological markers
    • Revised diagnosis and date
    • PET
  • Diagnosis History: Patient
    • Main complaint
      • Date of onset
      • Date of first health care contact
      • First health care contact professional
      • First health care contact setting
      • Date of initial diagnostic procedure
    • Diagnosing institution
    • Referring physician: Name and speciality
    • Responsible physician
    • Protocol/clinical trial
    • Enrolment
    • Height/weight/BSA
    • Treatment start/end date
  • Medical History: Patient
    • Predisposing conditions
  • Disease
    • Stage code
    • Primary site (T code)
    • Site description
    • Extent of disease
    • Relapse site and date
    • Metastatic site(s)
    • Minimal residual disease
    • True disease conversion
    • WBC (ALL)

POGONIS Data Elements

POGONIS Data Elements Diagram

Death Record

  • Date
  • Cause
  • Location
  • Autopsy

Medical Treatments

  • POGO Centre
  • POGO Code
  • Protocol/clinical trial
  • Radiation
  • Cancer surgery
  • Systemic therapy
    • Chemotherapy
    • Biomodifiers
  • HSCT/cellular therapy
  • Secondary surgery
  • Other supportive care
  • Active follow-up treatment
  • Complications of treatment
    • Fever and neutropenia
    • Palliative treatment
    • Major organ system complications
  • Shared care: Type and location

Treatment Service Record

  • POGO Code
  • POGO Centre health service utilization
  • Treatment/service type
  • Treatment/service: Start/end/report year
  • Treatment/service institution
  • Treatment/service provider: Staff/discipline/non-professional
  • Number of events/treatment units
  • Transfer out

POGO Satellite Clinic Program

  • Name of POGO Satellite Clinic

Late Effects

  • POGO Pediatric and Adult AfterCare Clinic
  • POGO Code
  • Late effects by system
  • Neurocognitive/neuropsychological assessment: Yes/no and date