All in the Family: Talking to Siblings about Childhood Cancer
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Presentation Description:
When a child is diagnosed with cancer, the focus automatically tends to fall on that child and how their disease will affect them. People rarely think about how the disease will affect their entire family, especially any siblings they may have. Whether the sibling is older or younger, at the hospital every day or away at school, having a sibling with cancer will inevitably not only change the dynamic with their brother/sister, but the family as a whole. This presentation looked at the disease through a less heard of, but equally important point of view: the sibling. The panel included the voices of an older brother, a younger sister, and a summary of relevant research presented by a health care professional.
Speakers:
Norma D'Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto
Jenna Shamata, BAH
Sibling of a childhood cancer survivor
Kevin Wang, BHSc, MD/PhD Candidate
Hospital for Sick Children
University of Toronto
Sibling of a childhood cancer survivor
Beyond Survival: Emotional Equilibrium After Cancer
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Presentation description:
Childhood cancer can be an intensely stressful experience that may have emotional affects even years after treatment. While cancer can contribute to personal growth in some ways, it can also lead to emotional and social vulnerabilities later in life. This session explored common developmental challenges for survivors, highlighted the relationship between emotional and physical health, and considered the different ways survivors make sense of their cancer experiences as they move into adulthood.
Speaker:
Christopher J. Recklitis, Ph.D., MPH
Senior Psychologist
Dana-Farber Cancer Institute
Assistant Professor of Pediatrics
Harvard Medical School
Workshop B - Communicating with Family and Friends
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Presentation description:
This workshop provided participants the opportunity to have small group discussions about challenges around communicating with family and friends about the hard things. Topics addressed included: a) When to tell people about your cancer history? b) How to explain to others that “It is not over” and c) Learning to ask for help when you need it. Through the discussion helpful strategies and techniques were identified and compiled. The goal was for participants to leave the workshop with increased confidence and comfort in their ability to tackle the difficult conversations with family and friends.
Speaker:
Norma D'Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto
Workshop C - Common Workplace Issues: Tools and Strategies
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Presentation description:
Working from “Rethinking Disability in the Private Sector,” a Government of Canada Report from the Panel on Labour Market Opportunities for Persons with Disabilities, this workshop explored the reasons why qualified people with disabilities are good employment prospects. Myths surrounding hiring people with disabilities are discounted. The pros and cons of disclosing disability status are discussed, as well as types of accommodations and what the employee can take responsibility for in the accommodation process.
Speaker:
Lori Turner-Otte, BA, RRP
SAVTI Counsellor
Pediatric Oncology Group of Ontario (POGO); London Health Sciences Centre
Workshop E - Genetic Testing for Cancer Survivors: Who and When
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Presentation description:
Genetics and genes are two words that we hear all the time in the news, especially when there are new discoveries in cancer. What do these words really mean in relation to cancer? And what do these words mean for survivors of childhood cancer? Workshop participants discussed some common genetic predisposition syndromes and what we can do to determine is a family has a genetic predisposition to cancer. Participants also discussed the pros and cons to having testing done for some of these conditions and discuss how some of these genetic tests are done.
Speaker:
Nikki Parkinson, MSc, CGC
Genetic Counsellor, Division of Clinical and Metabolic Genetics;
Coordinator, Molecular Genetics Laboratory, Division of Molecular Genetics, DPLM
The Hospital for Sick Children
Lecturer, Department of Molecular Genetics
University of Toronto
Life After Childhood Cancer – A Conference for Survivors
From setting life goals and dealing with the long-term health effects of treatment, to telling a new love interest about their experience with cancer, survivors of childhood cancer may struggle with many issues.
From October 16 – 18, 2015, POGO and Camp Oochigeas will present Life After Childhood Cancer, the third POGO survivor conference to address key issues survivors themselves have identified as being important to their health and well-being.
Matthew is a proud high school graduate, a college grad and a survivor. He has ongoing physical and cognitive challenges brought on by his disease and its treatment. He has difficulty with fine motor coordination, and a hard time listening and translating that information on paper. But he is driven to succeed and perseveres. Instead of taking notes by hand, he uses a laptop. If he doesn’t understand something, Matthew has no problem asking for help or researching until he figures it out. Matthew will attend the survivor conference for the first time this year.
“I’m looking forward to the survivor conference,” says Matthew. “I'm curious to hear from other survivors about their experiences and to share mine.”
In past years survivors of all ages have attended the conference and say it has helped them to better answer questions from others who have not experienced cancer.
“The conference aims to address educational and information needs in the context of social and recreational interaction – a combination we have found addresses survivors’ needs in a unique fashion, directly applicable to their daily life,” says Dr. Mark Greenberg, Senior Adviser, Policy & Clinical Affairs at POGO.
Practical approaches to their issues, like fertility and the disease’s impact on their families, are presented by leading experts, and also by other survivors. Survivors leave the conference knowing what questions to ask of their family doctor, who may never see another survivor in their practice.
“I’m happy that some sessions are run by other cancer survivors because it’s good to know I’m not the only one going through this,” says a past conference participant.
As for Matthew, his list of questions is building.
“I'm very interested to see what I can learn that will help me in the future,” he says.
While no one wants to think about cancer after they have beaten it, the thought of attending Life After Childhood Cancer would be one that is not wasted.
Get details about the 2015 Ooch/POGO Survivor Conference.
Canadian Oncology Nursing Day
The annual Canadian Oncology Nursing Day provides an opportunity for nurses across the country to host educational sessions on new an important oncology nursing topics and to celebrate the numerous contributions nurses make to the field of oncology.
On Thursday, April 7th, 2015, POGO and SickKids co-hosted the 2nd Annual Garron Family Cancer Centre Visiting Scholar Program featuring:
Kathleen Ruccione, PhD, MPH, RN, CPON, FAAN
Nurse Researcher
Children's Center for Cancer and Blood Diseases
Children's Hospital Los Angeles
Professor of Clinical Pediatrics
University of Southern California
To watch an archived video of the day's presentations, please click here. Username & password: COND2015. Please click here to view the event program and speakers.
Cadillac Fairview Run raises $250K for kids with cancer
Thank you to the families and friends who came out to support POGO and The Hospital for Sick Children!
On Sunday, April 26th, the 11th annual Cadillac Fairview 5K Run/Walk took place at its new venue at Shops at Don Mills.
Every year, this family-friendly event is a great way to take in the outdoors and support childhood cancer care. With both 5km and 1km routes, there is something for everyone.
In 2015, the Cadillac Fairview 5K Run/Walk raised over $250,000 for POGO and the Hospital for Sick Children, which goes towards essential programs for children with cancer, including counselling programs for survivors and financial support for families. Melissa Vella spoke about her experience as a young childhood cancer patient
Cadillac Fairview, a longstanding partner with POGO, is committed to supporting the communities in which it operates. Each year, they invite their friends – business partners, tenants, consumers, and employees – to participate in a meaningful and fun morning of physical activity and community engagement.
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PBS Cancer Documentary, Part 3
Wednesday's episode: 6-year old Emily has leukemia and Doug Rogers, a 60-year-old NASCAR mechanic with melanoma. Each is a pioneer in new immunotherapy treatments. Both see their advanced cancers recede and are able to resume normal lives.
This episode picks up the story at another moment of buoyant optimism in the cancer world: Scientists believe they have cracked the essential mystery of the malignant cell and the first targeted therapies have been developed, with the promise of many more to follow. But very quickly cancer reveals new layers of complexity and a formidable array of unforeseen defenses. In the disappointment that follows, many call for a new focus on prevention and early detection as the most promising fronts in the war on cancer. But other scientists are undeterred, and by the second decade of the 2000s their work pays off. The bewildering complexity of the cancer cell, so recently considered unassailable, yields to a more ordered picture, revealing new vulnerabilities and avenues of attack. Perhaps most exciting of all is the prospect of harnessing the human immune system to defeat cancer.
Tune in to Cancer: The Emperor of All Maladies, 3-part documentary
Airing on PBS, 9 - 11 p.m. (Check your local listings)
Monday, March 30 - Magic Bullets
Tuesday, March 31 - The Blind Men and the Elephant
Wednesday, April 1 - Finding the Achilles Heel
This three-part film tells the comprehensive story of cancer, from its first documented appearances to the modern-day fight for a cure. Based on the Pulitzer Prize-winning book by Siddhartha Mukherjee, Ken Burns' film weaves together a captivating historical narrative with intimate stories about contemporary patients, and an investigation into the latest scientific breakthroughs that may bring a cure within reach.
Learn more at www.pbs.org.
Purchase the series at www.shoppbs.org.
Watch Katie Couric interview Mukherjee and Burns on Yahoo News.
PBS Cancer Documentary, Part 2
Tuesday's episode: The story of Dr. Lori Wilson, a surgical oncologist diagnosed with invasive breast cancer in both breasts in 2013. Her emotional and physical struggles with the disease provide a bracing counterpoint to the historical narrative that picks up in the wake of the declaration of a “war on cancer” by Richard Nixon in 1971. Flush with optimism and awash with federal dollars, the cancer field plunges forward in search of a cure. In the lab, rapid progress is made in understanding the essential nature of the cancer cell, leading to the revolutionary discovery of the genetic basis of cancer. But at the bedside, where patients are treated, few new therapies become available, and a sense of disillusionment takes hold, leading some patients and doctors to take desperate measures. It is not until the late 1990s that the advances in research begin to translate into more precise targeted therapies with the breakthrough drugs Gleevec and Herceptin.
Tune in to Cancer: The Emperor of All Maladies, 3-part documentary
Airing on PBS, 9 - 11 p.m. (Check your local listings)
Monday, March 30 - Magic Bullets
Tuesday, March 31 - The Blind Men and the Elephant
Wednesday, April 1 - Finding the Achilles Heel
This three-part film tells the comprehensive story of cancer, from its first documented appearances to the modern-day fight for a cure. Based on the Pulitzer Prize-winning book by Siddhartha Mukherjee, Ken Burns' film weaves together a captivating historical narrative with intimate stories about contemporary patients, and an investigation into the latest scientific breakthroughs that may bring a cure within reach.
Learn more at www.pbs.org.
Purchase the series at www.shoppbs.org.
Watch Katie Couric interview Mukherjee and Burns on Yahoo News.
