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About Us

POGO > About Us > Privacy
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Privacy

Protecting Privacy and Personal Health Information at POGO

As a “45(1) entity,” under Ontario’s Personal Health Information Protection Act (PHIPA), 2004, POGO values and protects the personal health information of individuals. With this status, we balance preserving the privacy of children, families and survivors with collecting and using health information to support innovative research and health care planning. This includes the allocation of resources and service delivery to help build a better childhood cancer and survivor care system for everyone. Learn more about privacy and protecting personal health information at POGO on our FAQ page.

Our Commitment to Privacy

POGO respects personal privacy, safeguards the confidentiality of personal health information and ensures a secure database environment.

We achieve this through:

  • Upholding principles for the protection of personal health data
  • Enforcing strict policies which limit access to data
  • Maintaining organizational, technological and physical security measures
  • Mandatory privacy training and signed confidentiality agreements for all agents (e.g., employees, researchers, third parties, etc.)
  • Entering into data sharing agreements with our hospital partners, researchers and other 45 entities
  • A strict approval process for research proposals
  • Implementing processes for the review of privacy and security policies and procedures by the POGO Privacy and Data Security Committee
  • Regularly reviewing our policies to ensure they are compliant with current health information legislation and protection practices
  • Maintaining a privacy and security audit program

POGO Privacy and Data Security Committee

The POGO Privacy and Data Security Committee is made up of the following POGO staff:

Chief Executive Officer
Director of Information Technology, Data, and Analytics
Medical Director
Senior Database Administrator & Privacy Officer
Program Coordinator, Information Technology, Data, Analytics, and Privacy

Privacy FAQs

Find answers to frequently asked questions about protecting personal health information at POGO.
Learn More >

Privacy References

Read our privacy brochure, newsletters and our approval letter from the Information and Privacy Commissioner of Ontario.
Learn More >

Privacy Inquiries & Challenges

Questions or concerns? Contact our Privacy Officer.
Learn More >

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@POGO4Kids

January 30, 2023

We’re excited to have @TD_Canada as a POGO PJ Party sponsor! Thank you for the support to help ensure everyone affected by #childhoodcancer has access to the best care and support. Learn more here: http://pogopjparty.com #POGOPJParty

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    • Indigenous Resource Guide
    • All Education Events & Conferences
  • Healthcare Practice
    • COVID-19 Updates
    • Pediatric Oncology Nursing
    • Clinical Practice Guidelines
    • POGO Satellite Manual
  • Research & Data
    • 2020 POGO Surveillance Report
    • POGO Research Unit
    • POGONIS – Childhood Cancer Database
    • Data Reports
    • Data Requests
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    • Pajamas and Pancakes
    • Birthday Parties for POGO
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    • Donate
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    • Become a Corporate Partner
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