About Us

Privacy

Protecting Privacy and Personal Health Information at POGO

As a “45(1) entity,” under Ontario’s Personal Health Information Protection Act (PHIPA), 2004, POGO values and protects the personal health information of individuals. With this status, we balance preserving the privacy of children, families and survivors with collecting and using health information to support innovative research and health care planning. This includes the allocation of resources and service delivery to help build a better childhood cancer and survivor care system for everyone. Learn more about privacy and protecting personal health information at POGO on our FAQ page.

Our Commitment to Privacy

POGO respects personal privacy, safeguards the confidentiality of personal health information and ensures a secure database environment.

We achieve this through:

  • Upholding principles for the protection of personal health data
  • Enforcing strict policies which limit access to data
  • Maintaining organizational, technological and physical security measures
  • Mandatory privacy training and signed confidentiality agreements for all agents (e.g., employees, researchers, third parties, etc.)
  • Entering into data sharing agreements with our hospital partners, researchers and other 45 entities
  • A strict approval process for research proposals
  • Implementing processes for the review of privacy and security policies and procedures by the Data Security Committee
  • Regularly reviewing our policies to ensure they are compliant with current health information legislation and protection practices
  • Maintaining a privacy and security audit program

Data Security Committee

The Data Security Committee is made up of the following POGO staff:

Mark Greenberg, OC, MB, ChB, FRCP(C), FAAP, Senior Advisor, Policy and Clinical Affairs
Madeline Riehl, MHSc, Senior Associate, Research and Planning & Co-Privacy Officer
Bruna DiMonte, RN, BScN, Senior Database Administrator & Co-Privacy Officer
Jason Pole, PhD, Scientist
Sibel Yardimoglu, BSc, Database Administrator/Analyst and Programmer

Privacy FAQs

Find answers to frequently asked questions about protecting personal health information at POGO.
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Privacy References

Read our privacy brochure, newsletters and our approval letter from the Information and Privacy Commissioner of Ontario.
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Privacy Inquiries & Challenges

Questions or concerns? Contact our Privacy Officers.
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