Outstanding Leadership from Our Partner Bruce Power
In 2019, Bruce Power made a five-year pledge of $300,000 to POGO initiatives. The financial investment demonstrated their commitment to provide children and youth with cancer, survivors and families with access to ongoing treatment, care and financial support. But it is the activity that ensued that illustrated their true dedication to champion childhood cancer care.
From catalyzing more champions for POGO, to supporting the ongoing professional development of our healthcare professionals, to delighting our young patients and their families with some extra special fun activities, Bruce Power’s outstanding leadership has distinguished them as a true POGO partner—here for kids with cancer. For now. For life.
Watch this animated video for a snapshot of Bruce Power’s support of POGO.
Forty Years of Progress in Childhood Cancer Care Focus of 2023 POGO Symposium
In 2023, rather than homing in on one specific disease group, we took the opportunity to look broadly at POGO’s 40-year history, and the significant changes in childhood cancer care over four decades. With this broad appeal, more than 215 participants joined the POGO Symposium with representation from nursing, pharmacy, physicians, students, government, allied health and community supporters; a testament to the true team effort required to care for our patients.
Dr. Mark Greenberg, POGO co-founder, opened the two-day event by guiding us from POGO’s inception and the many challenges faced, and the incredible successes along the way, to the important work that remains to be done. It was clear that POGO’s early achievements required tremendous persistence, tenacity and optimism by the founders, and led to POGO becoming a Ministry of Health-funded contributor to the childhood cancer care system. Our respective institutions and the children of this province are so fortunate for the work that has gone into creating and building POGO from the ground up and the vast improvements in childhood cancer care that POGO has facilitated.
A Comprehensive Approach to Childhood Cancer Care
One of the loudest themes that reverberated through this year’s event was the recognition that the best possible cancer care system moving forward will take a holistic approach to treating the child and supporting the family.
We heard about inspiring advances in therapeutics and how novel drugs such as blinatumomab, and entirely new classes of drugs, are showing promise to cure previously incurable cancers. Across all sessions, led by national and international experts, we reflected on improvements in outcomes and strategies for the future across many forms of childhood cancer, including acute lymphoblastic leukemia, neuroblastoma, Hodgkin lymphoma and solid tumours. Taking a step further into the future, Drs. Malkin and Shlien described incredible new technologies that bring together advances in molecular genetics and artificial intelligence, holding the promise to better elucidate the biological differences in seemingly similar tumours and more accurately target treatment to specific biological subtypes.
However, we also had the opportunity to acknowledge that cancer-directed therapy is not the totality of childhood cancer care, and that there are critical elements of high-quality treatment whose value is too often under-appreciated. Dr. Bob Phillips took us on an adventure through the world of supportive care and strategies for implementing clinical practice guidelines, POGO’s included. Dr. Kira Bona discussed the often overlooked and vital need to recognize and intervene on health disparities affecting our patients and their families. Food insecurity and material deprivation can have as big an impact on treatment outcome as many of the conventional prognostic factors we use routinely in clinical practice. Dr. Fiona Schulte spoke about the imperative need to provide psychosocial supports and measurable interventions for our patients, and Maria Talotta shared new opportunities for mental health supports for our patients and their families through Ontario’s Youth Wellness Hubs. As adverse social determinants of health become increasingly prevalent in Canadian society, it is more urgent than ever that we develop methods and infrastructure to reduce their impact on children with cancer.
We must also keep at the forefront of our minds that cure is not where our patients’ cancer journey ends. Many patients are left with late effects, and excellent survivorship care is paramount. Dr. Jennia Michaeli and Stacy Whiteside brought light to the importance of establishing fertility preservation for our patient population as standard of care. Finally, we heard through multiple sessions the inherent value in ensuring that our patients have a voice in their own decision making, and how best to enable this.
Childhood Cancer Survivors Thriving in the Medical Field
We had the pleasure of watching several digital stories from childhood cancer survivors who shared pieces of their journey. Each of these incredible individuals also shared how they were inspired by members of their care team to work in health care, in such roles as a nurse, physician, child life specialist, and program assistant. These stories remind us about the importance of the role we, as care providers, each play in the lives of our young patients.
The Path Ahead
We had the incredible opportunity to hear from a diverse panel about where the next healthcare dollars should be spent in improving care. We heard about the importance of integrating health disparities studies and interventions into our frontline trials, the need for improved psychosocial supports for patients and families, and the future potential of gene sequencing for both early detection and targeted therapy in childhood cancer. Chantelle Bacon and Iain Macri of Fight Like Mason Foundation and Mason’s parents, emphasized the need to provide education and support to physicians in recognizing red flags to enable earlier suspicion and diagnoses of childhood cancers. At the end, it was clear that a comprehensive approach that encompasses all of these elements is imperative.
POGO has shown us over 40 years that we are better together and that our collaboration and collegiality is what builds our successes. Cheers to 40 years of POGO and to the successes to come!
By Dr. Jennifer Seelisch, Director, Pediatric Undergraduate Medical Education, Children’s Hospital, London Health Sciences Centre. Dr. Seelisch was the 2023 recipient of the inaugural POGO Early Career Professional Award.
POGO Pre-Symposium Nursing Seminar Amplifies Nursing Perspective on Childhood Cancer Care
By Denise Mills
On Thursday, November 2, POGO’s 2023 Pre-Symposium Nursing Day presented a rich offering of niche programming that attracted more than 130 nurses and other allied healthcare professionals from across Canada.
Dr. Kitty Montgomery set the stage by discussing Patient Reported Outcomes (PROs), a theme that resonated throughout the entire Symposium. She highlighted how nurses are uniquely positioned to help children voice their symptoms, which is critical to patient-centred care. In her presentation on bioethics at the bedside, Dr. Kim Pyke-Grimm brought the issue of moral distress to the forefront and provided examples of ethics liaison programs.
We heard from many of Ontario’s skilled nurse practitioners as they shared their knowledge and leadership in such areas as late effects of neuroblastoma, skin care for patients receiving MEK inhibitors and providing care with blinatumomab.
The importance of supportive care was a central theme of the day. Dr. Lindsay Jibb shared her findings from her study on “Parental Distress and Trauma in Parents of Children Diagnosed with ALL.” We were also transported into the world of preventing and managing mucositis and how nursing can play a role in implementing clinical practice guidelines. We learned about the role that nurses play in providing care and discussing sensitive topics when caring for adolescent and young adult cancer patients and survivors, and we explored essential knowledge and skills to bring into practice when caring for children with cancer and autism.
Nurses comprise the highest number of healthcare professionals working in pediatric oncology, and this day was important in bringing these clinicians together from across Ontario and beyond to share and discuss nursing practice in caring for patients and families faced with a childhood cancer diagnosis.
A New Normal: My Post-cancer Reality
Adapted from Jacob's Speech at the 2023 POGO PJ Party
Before cancer, I was a very active high school student: I played the guitar, saxophone, piano and bass, and I was involved with the Burlington Teen Tour Band. I also stage-managed my school’s theatre program and worked at Cineplex Theatres part-time.
Everything changed the moment I was diagnosed with osteosarcoma (the same cancer as Terry Fox’s) in March 2019 at the age of 16. Immediately, I started to think about all the things I had planned but would have to miss due to treatments. It was a hard reality to face.
Over the next few months, I went through chemotherapy to shrink the tumour in my pelvis. Thankfully, I was able to take a break from treatment to go to France to perform with the Burlington Teen Tour Band. I was thrilled to spend time with my friends and not feel like the “sick guy.” It was one of the highlights of my cancer journey before what would eventually become the darkest time.
Shortly after coming back to Canada, I had surgery to remove the tumour. I was hopeful that the life I knew before my cancer diagnosis would be something I could get back to within a short period. I wasn’t at all prepared for what was to come post-surgery.
I stayed at the hospital for three more months to undergo additional chemotherapy. My experience was nothing short of a nightmare. I couldn’t sit up or move properly. I had blood clots, infections and blood transfusions. Every day I spent in a hospital room took a toll on my mental health. All I wanted was to be cleared to go home and to continue my treatment as an outpatient, but it got to a point where the end of treatment wasn’t even on my radar anymore.
Finally, after months of treatment, I was discharged from the hospital in August 2019. Though it was difficult for me to navigate my environment without my parents’ assistance, I was still happy to be back in the comfort of my home. It made all the difference for my mental health and gave me the space to adjust to a “new normal.”
With the support of my family, friends and incredible organizations like POGO, I went on to accomplish some amazing goals: I returned to school virtually and earned enough credits to graduate with my class; I went from using a wheelchair to crutches and started physical rehabilitation and; I started my Bachelor of Arts program in Popular Music Studies at the University of Western Ontario, where I joined the school’s marching band. I have dreams of becoming a professional music producer, and I’m excited to see where my learning takes me.
Like many childhood cancer survivors, my disease and its treatment have left a mark that has affected my cognitive function, ability to learn and retain math, and overall mobility. Only time will tell if these complications will ever improve, but I am content with where I am at in my journey.
I am grateful for the many kind and compassionate individuals at POGO who played, and will continue to play, a significant role in my transition from a childhood cancer patient to a survivor. This includes the POGO Transitions Counsellors who have helped me ensure that I’m set up for success in university, and the POGO AfterCare nurses who continue to provide me with post-treatment support at my Clinic.
It is an honour to have been given this opportunity to speak on behalf of the childhood cancer community. Though this is the first time I am sharing my story publicly, I hope that it will transcend the limits of this space and inspire children, youth, fellow survivors, and their families in some way.
By Jacob McKenzie
Related Content
Childhood Cancer Survivors Share How Oncology Professionals Helped Shape Their Lives
POGO recruited five individuals whose lives have been impacted by a childhood cancer diagnosis and are now working in the field of pediatric oncology in different capacities, to work with Mike Lang, an expert in digital storytelling facilitation. Digital storytelling guides participants to use personal images and videos, voiceover narration, music, and various video-editing techniques to bring the meaningful moments of their life to the screen.
These stories, which premiered at the 2023 POGO Symposium in November, shed light on how the experience of having cancer as a young person, and the interactions with oncology professionals along the way, can shape a person's life profoundly. It is POGO’s hope that everyone who engages with these stories will learn something new about the childhood cancer experience, by seeing it through the eyes of survivors.
Alexx’s Story
Alexx was diagnosed with acute myeloblastic leukemia as a child.
Today, she is a child life specialist, using her firsthand experience as a childhood cancer survivor to advocate for children, youth, fellow survivors and their families with various diagnoses.
Lindsay’s Story
Lindsay was diagnosed with Ewing sarcoma as a child.
Today, she is a pediatric oncology nurse, drawing from her personal journey as a childhood cancer survivor to care for children and youth with cancer.
Noor's Story
Noor had the misfortune of navigating both a cancer diagnosis and virtual school during the COVID-19 pandemic. Inspired by the oncology professionals who cared for her during treatment, she is now studying to become a nurse at Toronto Metropolitan University.
Eugene’s Story
Dr. Eugene Chang was a young medical student when he was diagnosed with Leukemia. His experiences as a patient helped him identify a gap in the system, which he has sought to fill since becoming Canada’s first physiatrist specializing in rehabilitation for cancer patients.
Kirsten’s Story
Kirsten is a two-time childhood cancer survivor and a young adult cancer survivor.
A strong advocate for childhood cancer and young adult cancer survivors, she now works as POGO's Program Coordinator for clinical and support programs.
Last updated: June 2024
