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2015 POGO Psychosocial Education Seminar – Complex Care of Children with Cancer: The Psychosocial Dimensions

Posted on November 6, 2015 by admin


The 2015 POGO Psychosocial Education Seminar – Complex Care of Children with Cancer – enabled participants to: enhance their knowledge of complex care of children with cancer from the perspective of the psychosocial dimensions, including: best practices for psychosocial screening to promote improved and timely risk assessment of patients and survivors; identify optimal timing for intervention with special populations; improve pain management for children with cancer and identify ways to ease the burdens of end of life care.

Over 100 pediatric oncologists, nurses, social workers, and other health care professionals gathered to learn, listen and share their tools and strategies.

VIEW THE PROGRAM

NOTE: The content of each presentation below captures the unedited information and opinions presented by the speakers. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.

Opening Keynote

An Overview of Risk and Resilience for Psychosocial Late Effects
Cynthia A. Gerhardt, PhD

MODULE 1: RISK ASSESSMENT AND SCREENING BEST PRACTICES

Early Warning Signs of Psychosocial Risk in Children with Cancer and their Families
Maru Barrera, PhD, MA, CPsych

Lifting the Veil: Assessing and Treating Depression and Anxiety in Children with Cancer
Anna C. Muriel, MD, MPH

MODULE 2: PAIN MANAGEMENT FOR CHILDREN WITH CANCER

Managing Neuropathic Pain in Children with Cancer
Jennifer Stinson, RN-EC, PhD, CPNP

MODULE 3: EASING THE BURDEN

Medications Are Not Enough: Psychosocial Support for Children, their families and Care Providers at the End of Life
Kevin Weingarten, MD, MHSc, FRCPC

Family Decision Making when a Child Cannot be Cured
Cynthia A. Gerhardt, PhD

MODULE 4: INTERVENTIONS WITH SPECIAL POPULATIONS

Behaviour Management Interventions in the Care of Children with Cancer
Anna C. Muriel, MD, MPH

Pharmacological and Nonpharmacological Interventions for Cognitive Late Effects
Heather M. Conklin, PhD

Posted in 2015 Pre-Symposium Psychosocial Seminar, Pre-Symposium Seminars | Tagged 2015 Symposium, Multi-disciplinary, relapse

2015 POGO Symposium on Childhood Cancer

Posted on November 6, 2015 by admin


The 2015 POGO Multi-Disciplinary Symposium on Childhood Cancer – An Integrated Approach to Relapse – examined what happens to the child, family and health-care team at the time of, and following relapse, the associated psychosocial and medical issues that arise, and the resources, tools and strategies that may be harnessed to address these unique challenges.

Over 200 pediatric oncologists, nurses, social workers, and other health care professionals gathered to enhance their knowledge of management options for patients at the time of relapse and to look toward an ultimate goal of integrated care.

VIEW THE PROGRAM

NOTE: The content of each presentation below captures the unedited information and opinions presented by the speakers. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.

PLENARY SESSIONS

Care of the Relapsed Patient: The Current State of Affairs
Adam Rapoport, MD, FRCPC, MHSc
Brenda Weigel, MD, MSc

Toward Integrated Care
Donna Johnston, MD, FRCPC, FAAP

A Fine Balance: The Economics of Drug Therapy
Jaclyn Beca, MSc
Suzanne McGurn, RN, BScN, MPA
Judy Van Clieaf, RN, BScN, MN

Select Poster Presentations and Updates
Post-Chemotherapy Measles, Mumps and Rubella (MMR) Titers in a Pediatric Population
Lauren Friedman

An In-Progress Mixed Methods Study to Test the Usability of an Interactive Communication Tool to Help English-and French-Speaking Children Express their Cancer Symptoms
Rachel Hamilton

Impact of a Manualized Group Intervention for Bereaved Parents with Complicated Grief Symptoms: Month Follow-Up
Kyleigh Schraeder, PhD Candidate (clinical psychology)

POGO Mucositis Practice Guidelines
Paul Gibson, MD, FRCPC

Radiation, Palliation, Communication – Discussing Recurrent Malignancies and the Role of Radiotherapy
Normand Laperriere, MD, FRCPC, FRANZCR (Hon)

WORKSHOPS

Quality or Quantity: Guiding Families through Difficult Decisions
Andrea Frolic, PhD
Pamela Hinds,PhD, RN, FAAN
Shayna Zelcer, MD, FRCPC

How Religion and Culture Affect Advanced Care Medical Decision Making
Pamela Mosher, MD, MDiv
Gerardo Quintanar, BA (Ph), PhD (Th)
Randi Zlotnik Shaul, JD, LLM, PhD

Canada on Capacity: Legal and Ethical Implications
Rose Geist, BSc, MD, FRCP(C)
Hon. Stephen Goudge, Q.C.
Lawrence Jardine, MD, FRCPC

Bridging the Divide: The Role of Complementary Therapies in End of Life Care
Lynda Balneaves, PhD, RN
Elena Ladas, PhD, RD

Posted in 2015 Symposium, Education for Health Professionals | Tagged 2015 Symposium, Multi-disciplinary, relapse

Care of the Relapsed Patient: The Current State of Affairs

Posted on November 6, 2015 by admin


VIEW THE PRESENTATION

Presentation Description:
This session  identified the two main “streams” in the current approach to care of the relapsed patient – the palliative perspective and the “aggressive” Phase 1 perspective – and elaborated on how these two streams co-exist within the current patient care model.

Speakers:
Adam Rapoport, MD, FRCPC, MHSc
Medical Director, Paediatric Advanced Care Team (PACT)
Hospital for Sick Children
Medical Director, Emily’s House Children’s Hospice
Assistant Professor, Departments of Paediatrics and Family & Community Medicine, University of Toronto

Brenda Weigel, MD, MSc
Associate Professor, Department of Pediatrics; Director, Division of Pediatric Hematology/Oncology
Lehman/Children’s Cancer Research Fund Endowed Chair in Pediatric Cancer; Chair, Children’s Oncology Group Developmental Therapeutics Committee
University of Minnesota, Minneapolis       

Note: POGO was not granted permission to share Dr. Brenda Weigel’s slides

Posted in 2015 Symposium | Tagged 2015 Symposium, integrated care, palliative care, phase 1, relapse

A Fine Balance: The Economics of Drug Therapy

Posted on November 6, 2015 by admin


VIEW THE PRESENTATION

Presentation Description: 
This panel discussion discussed approaches to securing funding for new drug therapies used for relapsed disease and the decision-making process around the development and dissemination of these novel drug therapies.  The panel presentation involved three different perspectives on cost and resource implications from a provincial, medical economics and hospital administration perspective. 

Speakers:
Jaclyn Beca, MSc
Manager, Pharmaeconomics Research Unit
Cancer Care Ontario, Toronto

Suzanne McGurn, RN, BScN, MPA
Assistant Deputy Minister and Executive Officer
Ontario Public Drug Programs

Judy Van Clieaf, RN, BScN, MN
Vice-President, Clinical
The Hospital for Sick Children

Note: POGO was not granted permission to share Jaclyn Beca’s or Judy Van Clieaf’s slides.

Posted in 2015 Symposium | Tagged 2015 Symposium, drug therapies, funding, pharmaeconomics, relapse

Workshop A – Quality or Quantity: Guiding Families through Difficult Decisions

Posted on November 6, 2015 by admin


Presentation Description: 
Using a case based approach, this interactive workshop  discussed the challenges children and their families, healthcare providers, and the healthcare team face in the setting of relapsed disease. This workshop discussed eliciting parents’ definition of “being a good parent to my very ill child” and using this to inform care. Conversely, the assembled group examined the clinician’s definition of “being a good doctor/nurse/provider to this very ill child”, and how this compares and contrasts with what patients and parents value.  This session explored what happens to the family and family dynamics at the time of diagnosis or relapsed disease.  In addition, team dynamics (internal and external)  during times of crucial decision-making and conflict were explored. Conceptual clarification of palliative care and end of life care were discussed along with tools for incorporating this into our communication with families and health care providers, and in our decision-making.

Andrea Frolic, PhD
Director, Office of Clinical & Organizational Ethics, Hamilton Health Sciences, Hamilton
Assistant Professor, Department of Family Medicine, McMaster University, Hamilton

VIEW THE PRESENTATION

Pamela Hinds, PhD, RN, FAAN
Director, Department of Nursing Research and Quality Outcomes
Children’s National Medical Center, Washington

VIEW THE PRESENTATION

Shayna Zelcer, MD, FRCPC
Staff Physician, Paediatric Hematology/Oncology
Children’s Hospital, London Health Sciences Centre
Associate Professor, Department of Paediatrics
Schulich School of Medicine and Dentistry

VIEW THE PRESENTATION

Posted in 2015 Symposium | Tagged 2015 Symposium, end of life care, families, parents, Quality of Life, relapse

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