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All in the Family: Talking to Siblings about Childhood Cancer

Posted on November 26, 2015 by admin


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Presentation Description: 
When a child is diagnosed with cancer, the focus automatically tends to fall on that child and how their disease will affect them.  People rarely think about how the disease will affect their entire family, especially any siblings they may have.  Whether the sibling is older or younger, at the hospital every day or away at school, having a sibling with cancer will inevitably not only change the dynamic with their brother/sister, but the family as a whole.  This presentation looked at the disease through a less heard of, but equally important point of view: the sibling. The panel included the voices of an older brother, a younger sister, and a summary of relevant research presented by a health care professional.

Speakers:
Norma D’Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto

Jenna Shamata, BAH
Sibling of a childhood cancer survivor

Kevin Wang, BHSc, MD/PhD Candidate
Hospital for Sick Children
University of Toronto
Sibling of a childhood cancer survivor

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference, families, siblings

Workshop B – Communicating with Family and Friends

Posted on November 26, 2015 by admin


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Presentation description:
This workshop provided participants the opportunity to have small group discussions about challenges around communicating with family and friends about the hard things. Topics addressed included: a) When to tell people about your cancer history? b) How to explain to others that “It is not over” and c) Learning to ask for help when you need it. Through the discussion helpful strategies and techniques were identified and compiled. The goal was for participants to leave the workshop with increased confidence and comfort in their ability to tackle the difficult conversations with family and friends.

Speaker:
Norma D’Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference, families, friends, siblings

Early Warning Signs of Psychosocial Risk in Children with Cancer and their Families

Posted on November 6, 2015 by admin


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Presentation Description:
 
It is well established that a diagnosis of childhood cancer and its treatment can lead to psychosocial distress in the affected child and the family, particularly during the early stages of treatment. Identifying early warning signs of psychosocial risk in this population may lead to a reduction of psychosocial distress and better allocation of resources. This presentation provided an overview of psychosocial distress and risk in this population; guidelines and standards for psychosocial services in pediatric oncology; barriers to psychosocial screening, assessment, and care; psychosocial screening tools and recommendations for psychosocial screening and follow-up plan.

Speaker:
Maru Barrera, PhD, MA, CPsych
Psychologist, Dept. of Psychology, Division of Haematology/Oncology
Senior Associate Scientist
The Hospital for Sick Children

Posted in 2015 Pre-Symposium Psychosocial Seminar, Misc, Pre-Symposium Seminars | Tagged 2015 Pre-Symposium Psychosocial Seminar, families, parents, psychological distress, screening

Medications Are Not Enough: Psychosocial Support for Children, their Families and Care Providers at the End of Life

Posted on November 6, 2015 by admin


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Presentation Description: 
For many, the image of end-of-life care includes a patient in a hospital bed receiving medication.  While this may be one possible scenario, it is by no means the only one, nor should it be the model.  At end-of-life, support for the child, family and care providers is imperative, in order to meaningfully affect the dying process, legacy of the child and coping strategies after death for all included.

This presentation provided an overview of pitfalls, tools and strategies in supporting children, their families and their care providers at the end of life.

Speaker:
Kevin Weingarten
, MD, MHSc, FRCPC
Staff Haematology/Oncology & Palliative care
The Hospital for Sick Children

Posted in 2015 Pre-Symposium Psychosocial Seminar, Pre-Symposium Seminars | Tagged 2015 Pre-Symposium Psychosocial Seminar, caregivers, end of life care, families, parents

Family Decision Making when a Child Cannot be Cured

Posted on November 6, 2015 by admin


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Presentation Description: 
Despite improvements in survival rates, cancer remains the leading cause of disease-related death in childhood. Research indicates significant symptom burden and suffering among children who die of cancer, as well as barriers to the provision of pediatric palliative care. In these cases, communication and decision making are vitally important to families and healthcare providers when a child cannot be cured. Novel approaches to working with families regarding advanced directives and decision-making are highlighted.

This presentation provided an overview of some of the challenges experienced by healthcare providers and families of children near the end of life.

Speaker:
Cynthia A. Gerhardt, PhD
Director, Center for Biobehavioral Health, The Research Institute at Nationwide Children’s Hospital,
Associate Professor of Pediatrics and Psychology, The Ohio State University, Columbus, OH

 

Posted in 2015 Pre-Symposium Psychosocial Seminar, Pre-Symposium Seminars | Tagged 2015 Pre-Symposium Psychosocial Seminar, advanced directives, end of life care, families, parents

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@POGO4Kids

January 21, 2021

Throwback to last year’s POGO PJ Party where we came together in our pajamas to raise critical funds for #childhoodcancercare. It is about time we have fun again, but in a new way. Stay tuned! #TBT

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