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Life After Childhood Cancer – A Conference for Survivors

Posted on August 27, 2015 by admin

From setting life goals and dealing with the long-term health effects of treatment, to telling a new love interest about their experience with cancer, survivors of childhood cancer may struggle with many issues.

From October 16 – 18, 2015, POGO and Camp Oochigeas will present Life After Childhood Cancer, the third POGO survivor conference to address key issues survivors themselves have identified as being important to their health and well-being.

Matthew is a proud high school graduate, a college grad and a survivor.  He has ongoing physical and cognitive challenges brought on by his disease and its treatment. He has difficulty with fine motor coordination, and a hard time listening and translating that information on paper. But he is driven to succeed and perseveres.  Instead of taking notes by hand, he uses a laptop. If he doesn’t understand something, Matthew has no problem asking for help or researching until he figures it out. Matthew will attend the survivor conference for the first time this year.

“I’m looking forward to the survivor conference,” says Matthew. “I’m curious to hear from other survivors about their experiences and to share mine.”  

In past years survivors of all ages have attended the conference and say it has helped them to better answer questions from others who have not experienced cancer.

“The conference aims to address educational and information needs in the context of social and recreational interaction – a combination we have found addresses survivors’ needs in a unique fashion, directly applicable to their daily life,” says Dr. Mark Greenberg, Senior Adviser, Policy & Clinical Affairs at POGO.

Practical approaches to their issues, like fertility and the disease’s impact on their families, are presented by leading experts, and also by other survivors. Survivors leave the conference knowing what questions to ask of their family doctor, who may never see another survivor in their practice. 

“I’m happy that some sessions are run by other cancer survivors because it’s good to know I’m not the only one going through this,” says a past conference participant.

As for Matthew, his list of questions is building.

“I’m very interested to see what I can learn that will help me in the future,” he says.

While no one wants to think about cancer after they have beaten it, the thought of attending Life After Childhood Cancer would be one that is not wasted.

Get details about the 2015 Ooch/POGO Survivor Conference.

 

Posted in In the News | Tagged 2015 survivor conference, brain tumor survivors, late effects, psychosocial, savti, survivorship

Interactive Group Discussion – Looking Through the “Retrospectoscope”: Discussing the Burden of Curing

Posted on March 6, 2014 by admin

Presentation Description:
Treating survivors with profound and devastating late effects is a sobering and sometimes guilt-inducing experience. We can ‘cure’, but at what cost? This interactive group discussion, moderated by Jonathan Hellmann, Neonatologist and Ethicist at SickKids in Toronto, explored the burden of curing and the ambiguity that pediatric oncology professionals delivering survivor care may face when re-examining treatment decisions made years ago, and their consequences. Three vignettes were presented to kick-start the discussion.

Moderator:

Jonathan Hellmann, MBBCh, FCP, FRCPC
Clinical Director, Neonatal Intensive Care Unit
Hospital for Sick Children, Toronto

Posted in 2014 AfterCare Education Day, Education for Health Professionals | Tagged 2014 AfterCare Education Day, brain tumor survivors, childhood cancer survivors, ethics

An Overview of Exercise Based Neuro-Rehabilitation in Brain Tumor Survivors

Posted on February 7, 2013 by admin

Presentation Description: Brain tumors are the leading cause of death and disability from childhood disease in developed countries.  With treatment advances over the last 25 years, survival rates have improved dramatically.  However, survival is often achieved at considerable cost.  Cranial radiation is frequently required for effective tumor control, and associated with significant neuro-toxicity, including white matter damage and cognitive morbidity.  In order to achieve the best possible outcome for survivors and ultimately conquer the long-term consequences of this disease, new interventions must be developed to ameliorate the neuro-toxic effects experienced by children. This presentation provided an overview of an ongoing study of an exercise based neuro-rehabilitation program and preliminary findings were discussed.

Speaker:

Don Mabbott, Psychologist, PhD
University of Toronto, ON
The Hospital for Sick Children, Toronto, ON

Posted in 2012 AfterCare Education Day, Education for Health Professionals | Tagged 2012 AfterCare Education Day, AfterCare, brain tumor survivors, brain tumors, exercise, neuro-rehabilitation, neuro-toxicity, survivorship

Moderated Round Table: Socialization/Isolation of Brain Tumor Survivors and Intervention Strategies

Posted on February 7, 2013 by admin

POGO was not granted permission to post this presentation. We apologize for the inconvenience.

Posted in 2012 AfterCare Education Day, Education for Health Professionals | Tagged AfterCare, brain tumor survivors, survivorship

Brain Cancer Stem Cells – the Evolving Story

Posted on February 5, 2013 by admin

POGO was not granted permission to post this presentation. We apologize for the inconvenience.

Posted in 2008 Symposium - New Frontiers: Building on 25 Years of Progress, Education for Health Professionals | Tagged 2008 Symposium - New Frontiers: Building on 25 Years of Progress, 25th anniversary, brain tumor survivors, brain tumors, stem cell

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@POGO4Kids

January 30, 2023

We’re excited to have @TD_Canada as a POGO PJ Party sponsor! Thank you for the support to help ensure everyone affected by #childhoodcancer has access to the best care and support. Learn more here: http://pogopjparty.com #POGOPJParty

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