2015 POGO/Ooch Survivor Conference
On October 16-18, 2015, Camp Oochigeas and POGO presented the 3rd Life After Childhood Cancer Survivor Conference, a gathering for survivors of childhood cancer aged 19 and over. More than 70 adult survivors of childhood cancer joined us at Camp Oochigeas in beautiful Muskoka for a weekend of connecting with other survivors, learning about managing their health and living well after childhood cancer.
Scroll down to view the Survivor Conference slide presentations that POGO was granted permission to share. If you are interested in a specific subject, click on a subject tag at the bottom of a post to view all the slides or videos that cover that subject.
NOTE: The content of each presentation captures the unedited information and opinions presented by the speaker. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.
PLENARY SESSIONS
We Are All Storytellers: Discovering the Power of Knowing and Sharing Your Story
Michael Lang, MSc
Raymund Ong
Managing Your Fertility: Current Options, Practical Strategies
Sara R. Cohen, LL.B.
Karen Glass, MD, FRCS(C), FACOG
All in the Family: Talking to Siblings about Childhood Cancer
Norma D’Agostino, Ph.D., C.Psych.
Shamata, sibling of childhood cancer survivor
Kevin Wang, MD/PhD student
Beyond Survival: Emotional Equilibrium After Cancer
Christopher Recklitis, Ph.D., MPH
WORKSHOPS
Communicating with Family and Friends
Norma D’Agostino, Ph.D., C.Psych.
Common Workplace Issues: Tools and Strategies
Lori Otte, BA, RRP
Genetic Testing for Cancer Survivors – Who and When
Nikki Parkinson, MSc, CGC
Managing Your Fertility: Current Options, Practical Strategies
VIEW THE PRESENTATIONS
Presentation Description:
This session presented a brief overview of options for fertility preservation in female and male survivors of childhood cancer. Mostly, the session reviewed the options for survivors who are unable to conceive post treatment. The session discussed the options for building a family using third party reproduction. The practical and legal perspectives were discussed for surrogacy, donor eggs and donor sperm
Speakers:
Sara R. Cohen, LL.B.
Fellow of the American Academy of Assisted Reproductive Technology Attorneys
Adjunct Professor, Osgoode Hall Law School
Karen Glass, MD, FRCS(C), FACOG
Reproductive Endocrinologist, CReATe Fertility Centre
Director, Oncofertility Program
Assistant Professor, University of Toronto.
All in the Family: Talking to Siblings about Childhood Cancer
VIEW THE PRESENTATION
Presentation Description:
When a child is diagnosed with cancer, the focus automatically tends to fall on that child and how their disease will affect them. People rarely think about how the disease will affect their entire family, especially any siblings they may have. Whether the sibling is older or younger, at the hospital every day or away at school, having a sibling with cancer will inevitably not only change the dynamic with their brother/sister, but the family as a whole. This presentation looked at the disease through a less heard of, but equally important point of view: the sibling. The panel included the voices of an older brother, a younger sister, and a summary of relevant research presented by a health care professional.
Speakers:
Norma D'Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto
Jenna Shamata, BAH
Sibling of a childhood cancer survivor
Kevin Wang, BHSc, MD/PhD Candidate
Hospital for Sick Children
University of Toronto
Sibling of a childhood cancer survivor
Beyond Survival: Emotional Equilibrium After Cancer
VIEW THE PRESENTATION
Presentation description:
Childhood cancer can be an intensely stressful experience that may have emotional affects even years after treatment. While cancer can contribute to personal growth in some ways, it can also lead to emotional and social vulnerabilities later in life. This session explored common developmental challenges for survivors, highlighted the relationship between emotional and physical health, and considered the different ways survivors make sense of their cancer experiences as they move into adulthood.
Speaker:
Christopher J. Recklitis, Ph.D., MPH
Senior Psychologist
Dana-Farber Cancer Institute
Assistant Professor of Pediatrics
Harvard Medical School
Workshop B - Communicating with Family and Friends
VIEW THE PRESENTATION
Presentation description:
This workshop provided participants the opportunity to have small group discussions about challenges around communicating with family and friends about the hard things. Topics addressed included: a) When to tell people about your cancer history? b) How to explain to others that “It is not over” and c) Learning to ask for help when you need it. Through the discussion helpful strategies and techniques were identified and compiled. The goal was for participants to leave the workshop with increased confidence and comfort in their ability to tackle the difficult conversations with family and friends.
Speaker:
Norma D'Agostino, Ph.D., C.Psych.
Clinical Health Psychologist, University Health Network
Lecturer, Department of Psychiatry, University of Toronto
Workshop C - Common Workplace Issues: Tools and Strategies
VIEW THE PRESENTATION
Presentation description:
Working from “Rethinking Disability in the Private Sector,” a Government of Canada Report from the Panel on Labour Market Opportunities for Persons with Disabilities, this workshop explored the reasons why qualified people with disabilities are good employment prospects. Myths surrounding hiring people with disabilities are discounted. The pros and cons of disclosing disability status are discussed, as well as types of accommodations and what the employee can take responsibility for in the accommodation process.
Speaker:
Lori Turner-Otte, BA, RRP
SAVTI Counsellor
Pediatric Oncology Group of Ontario (POGO); London Health Sciences Centre
Workshop E - Genetic Testing for Cancer Survivors: Who and When
VIEW THE PRESENTATION
Presentation description:
Genetics and genes are two words that we hear all the time in the news, especially when there are new discoveries in cancer. What do these words really mean in relation to cancer? And what do these words mean for survivors of childhood cancer? Workshop participants discussed some common genetic predisposition syndromes and what we can do to determine is a family has a genetic predisposition to cancer. Participants also discussed the pros and cons to having testing done for some of these conditions and discuss how some of these genetic tests are done.
Speaker:
Nikki Parkinson, MSc, CGC
Genetic Counsellor, Division of Clinical and Metabolic Genetics;
Coordinator, Molecular Genetics Laboratory, Division of Molecular Genetics, DPLM
The Hospital for Sick Children
Lecturer, Department of Molecular Genetics
University of Toronto
2013 POGO/Ooch Survivor Conference
In October 2013, POGO partnered with Camp Oochigeas to host the second childhood cancer survivor conference. Over 90 survivors of childhood cancer from across the province and Canada attended the two-day event. The educational sessions addressed topics including: screening and prevention, emotional health, sex and relationships after cancer and fertility, among others.
VIEW THE PROGRAM
Videos of all of the presentations from the Survivor Conference that POGO has permission to post are available here, along with the accompanying presentation slides. As a starting point, check out this recap video from the weekend!
OOCH/POGO SURVIVOR CONFERENCE RECAP VIDEO:
NOTE: The content of each presentation captures the unedited information and opinions presented by the speaker. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.
PLENARY SESSIONS
Screening and Prevention – Empowering through Education
Paul Nathan, MD, MSc, FRCPC
Healing Beyond the Body: Emotional Health After Cancer
Christopher J. Recklitis, PhD, MPH
WORKSHOPS
Female Fertility: Your Questions Answered
Ellen Greenblatt, MD, FRCSC
Male Fertility: Your Questions Answered
Mike Neal, BSc (Hons), MSc
“How did you get that scar?”… and other Socially Uncomfortable Moments of Being a Childhood Cancer Survivor
Natalie Wilson, MA, CCLS
Vanessa Pastoric, BHSc, CCLS
A Leg Up: Assistive Technology for Individuals with Cognitive Challenges
Todd Cunningham, Assistive Technologies Expert
Helping You Manage Your Health After Cancer
Carla Bennett, RN, BN
Screening and Prevention – Empowering through Education
VIEW THE PRESENTATION
Presentation Description:
Do you show up at your screening appointments wondering why you’re even there? Or maybe you haven’t gone at all and are worried you missed the memo? Screening and prevention can be a tricky subject because there isn’t a ‘one size fits all’ standard. This presentation provides an overview of exactly what screening is, why it’s important, who is at risk for what, and what you need to know to responsibly manage your health for years to come.
Speaker:
Paul Nathan, MD, MSc, FRCPC
Director, AfterCare Program
Hospital for Sick Children
Healing Beyond the Body: Emotional Health After Cancer
VIEW THE PRESENTATION
Presentation Description:
Childhood cancer can be an intensely stressful experience that may have emotional effects even years after treatment. While cancer can enhance personal growth in some ways, it can also lead to emotional vulnerabilities later in life. This session will explore common developmental challenges for survivors, highlight the relationship between emotional and physical health, and consider the different ways survivors make sense of their cancer experiences as they move into adulthood.
Speaker:
Christopher Recklitis, PhD, MPH
Director of Research and Support Services
Perini Family Survivors' Centre, Dana-Farber Cancer Institute
Assistant Professor of Pediatrics
Harvard Medical School, Boston