Workshop B – To Test or Not to Test: Am I my Second Degree Relative’s Keeper?

Presentation Description: This presentation addressed team member interaction with the “reluctant” parent – a parent who may be unwilling or disinclined to approve genetic testing. Additional issues covered in this workshop included: how to frame information in order to provide the facts that parents need to hear; how to interpret/convey the risks; how to identify and address parental/patient questions and fears; managing parental hesitation (e.g. fear of the results, fear of the burden of knowing, denial, cultural differences); and ethical issues arising from unexpected circumstances.

Workshop Facilitators:

Michelle A. Mullen, MHP, PhD
Associate Professor Departments of Paediatrics & Women’s Studies
University of Ottawa, ON
Consultant Bioethicist
Children’s Hospital of Eastern Ontario, Ottawa, ON

Harriet Druker, MSc
Genetic Counsellor
Cancer Genetics Program, The Hospital for Sick Children
Department of Molecular Genetics and Microbiology, University of Toronto
Associate Member, Department of Molecular and Medical Genetics, University of Toronto

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