Workshop C – The Ethical and Legal Dilemma of Reporting Incidental Findings

Presentation Description:
This workshop offered an examination of instances when conducting research or clinical testing in a pediatric oncology context has yielded unexpected results for a participant, with a particular emphasis on next generation sequencing. What is the science behind the discovery of incidental findings, and what are the associated ethical and legal considerations related to the reporting of these findings? From the viewpoints of a geneticist, bioethicist/oncologist and lawyer, this complex topic was examined.

Jan Friedman, MD, PhD
Department of Medical Genetics
University of British Columbia, Vancouver

Conrad Fernandez, MD, FRCPC, Hon Bsc (Genetics)
Professor and Head
Division of Pediatric Hematology/Oncology
IWK Health Centre
Dalhousie University, Halifax

Ma’n Zawati, LL.B., LL.M.
Academic Coordinator
Centre of Genomics and Policy
McGill University, Montreal

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