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Workshop D – In Their Own Words: Reflections from Lymphoma Survivors

Posted on January 2, 2015 by admin


Presentation Description:
A conference on pediatric lymphomas wouldn’t be complete without a session to explore the unique experiences of patients and survivors. This interactive workshop enabled participants to hear directly from two lymphoma survivors who graciously agreed to tell their stories. What is it truly like to be on the other side of a lymphoma diagnosis? How are these two former patients doing today and if there is anything they could change about the care they received, what would it be? Attendees participated in a candid discussion and came away with valuable insights about how care can be improved for tomorrow’s patient.

Speakers:

Diana M. Merino, MSc, PhD candidate
Genetics and Genome Biology Program
Hospital for Sick Children, Toronto

Michael Rosenberg, CAP, CA, CFE, MAcc, BAFM

Jane Cassano, MSW, RSW
Pediatric Oncology Social Worker
McMaster Children’s Hospital, Hamilton

Posted in 2014 Symposium, Education for Health Professionals | Tagged 2014 Symposium, childhood cancer survivors, lymphoma, patient care, survivors

Beyond the Satellite Clinic: Late Effects of Cancer Treatment

Posted on July 29, 2013 by admin

Presentation Description: Overall cure rates for childhood cancer patients now exceeds 80%. Many survivors are thriving; however, we know that the cost of cure may include lifelong impediments that can challenge the transition to adulthood and impact quality of life. Transitioning to adulthood can be more challenging for survivors when compounded by the physical, social/vocational and psychological late effects of childhood cancer.

Brain tumor survivors, especially those who receive cranial radiation at a young age, are among the most severely impacted by late effects. Many assets such as self confidence, social skills, a well developed support network, opportunities for educational and vocational success, along with a supportive AfterCare team, are essential for these survivors to achieve their full potential.

This presentation will provide an overview of the profile of the survivors at risk and the patterns of late effects. A focus on some of the common late effects and their management or prevention, using a multidisciplinary approach, will be highlighted.

Speakers:

Patricia McCarthy, RN (EC), MSc(A)
Nurse Practitioner, Pediatric Oncology
Children’s Hospital of Eastern Ontario (CHEO)

Posted in 2013 Satellite Education Day, Education for Health Professionals | Tagged late effects, survivors, survivorship

2012 AfterCare Education Day

Posted on February 7, 2013 by admin

POGO’s 2012 AfterCare Education Day examined selected clinical and psychosocial issues impacting childhood cancer survivors and provided delegates with theoretical knowledge and practical strategies to manage these issues in order to improve care provided to survivors of pediatric cancers. Pediatric oncologists, nurses, social workers, and other provincial interdisciplinary AfterCare staff working with childhood cancer survivors attended in order to enhance their knowledge of late effects associated with childhood cancer and to be exposed to new strategies to manage this unique patient population.

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NOTE: The content of each presentation below captures the unedited information and opinions presented by the speakers. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.

Posted in 2012 AfterCare Education Day, Education for Health Professionals | Tagged 2012 AfterCare Education Day, AfterCare, late effects, survivors, survivorship

The Developmental Trajectory of the Childhood Cancer Survivor

Posted on February 5, 2013 by admin

Presentation Description: It is widely known that growing up with childhood cancer may have consequences in adulthood.  Little is known about possible predictors of these consequences. The course of life (fulfilling developmental tasks and achieving developmental milestones) may be an important mediator of later quality of life and psychological functioning. The course of life of 353 Dutch survivors in comparison to 508 peers was discussed in this presentation.

Speaker:

Martha Grootenhuis, PhD
Head, Psychosocial Research Department
University of Amsterdam, Amsterdam, Holland
Head, Psychosocial Research Department
Emma Children’s Hospital, Academic Medical Center, Amsterdam, Holland

Posted in 2008 Symposium - New Frontiers: Building on 25 Years of Progress, Education for Health Professionals | Tagged 2008 Symposium - New Frontiers: Building on 25 Years of Progress, 25th anniversary, late effects, psychological late-effects, Quality of Life, survivors, survivorship

Survivorship and Childhood Cancer: An Historical Perspective

Posted on January 31, 2013 by admin

Presentation Description: Beginning in the 1950s, late effects of cancer therapy began to be realized.  It was, however, only until survival rates dramatically increased in the 1970s that studies began to investigate how cancer therapy could affect developing organ systems of children.  Since that time, there have been several major scientific advances contributing to our understanding of the risks of late effects of cancer and cancer therapy and methods to prevent or reduce the incidence and severity of these risks.  As we have witnessed a growing number of children survive their cancer to die years later of an often preventable therapy-related condition, the operating paradigm of the survivorship research community has evolved to ‘maintain the cure, maintain the quality of the cure.’

Speaker:

Kevin C. Oeffinger, MD
Full Member and Attending Director, MSKCC Adult Long-Term Follow-Up Program
Department of Pediatrics and Medicine
Memorial Sloan-Kettering Cancer Center, New York

Posted in 2012 Symposium, Education for Health Professionals | Tagged adolescents, AYA, late effects, survival rates, survivors, survivorship

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@POGO4Kids

January 30, 2023

We’re excited to have @TD_Canada as a POGO PJ Party sponsor! Thank you for the support to help ensure everyone affected by #childhoodcancer has access to the best care and support. Learn more here: http://pogopjparty.com #POGOPJParty

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