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POGO > Blog > Quality of Life
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Tag: Quality of Life


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Workshop A – The Impact of Osteosarcoma and its Management on Daily Activity, Mobility and Athletic Participation

Posted on February 1, 2013 by admin

Presentation Description:  Children and adolescents diagnosed with and who are treated for osteosarcomas face unique challenges.  Both multimodal chemotherapy and mechanisms necessary for local tumor control (surgery, radiation) impact cardiopulmonary, neurosensory and musculoskeletal structure and function.  Less than optimal function may impact physical performance and the ability to participate fully in daily life.  This presentation described mobility, daily activity and athletic participation outcomes in this population.  The associations between treatment (including local control mechanisms) and participation outcomes were also described.

Speaker:

Kirsten K. Ness, PT, PhD
Associate Member
Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital, Memphis, TN

Posted in 2010 Symposium, Education for Health Professionals | Tagged 2010 Symposium, late effects, mobility, osteosarcoma, pediatric sarcomas, Quality of Life, rhabdomyosarcoma

Workshop A – What is Quality of Life and How Should it be Measured?

Posted on January 31, 2013 by admin

Presentation Description:  There has been a tremendous growth of interest in the concept of quality of life in recent years as awareness that medical parameters such as mortality and morbidity are not the only important outcome variables to be considered systematically.  Although necessary and valuable, these outcome measures do not reflect that patient’s overall well-being and do not take into account subjective evaluation of health status and quality of life.  There are several issues and challenges that have arisen in quality of life research which have generated substantial amounts of controversy and debate.  These relate primarily to issues surrounding conceptualization, assessment and measurement, reflecting the lack of consensus on definition, interpretation and methods of measuring quality of life.  This workshop reviewed these issues and sought to provide insight for clinicians and researchers into the investigation of quality of life.

Workshop Facilitators:

Samantha J. Anthony, PhD, MSW, RSW
Social Worker, Transplant and Regenerative Medicine Centre
The Hospital for Sick Children, Toronto
Postdoctoral Fellow, Department of Pediatrics
McMaster University, Hamilton

Anne Klassen, BA, DPhil
Associate Professor, Department of Pediatrics
Associate Member, Department of Clinical Epidemiology & Biostatistics and
CanChild Centre for Childhood Disability Research
McMaster University, Hamilton

Adrienne D. Witol, Psy. D. R. Psych
Psychologist, Pediatric Oncology
Stollery Children’s Hospital
Assistant Professor, Department of Pediatrics
University of Alberta

Posted in 2012 Symposium, Education for Health Professionals | Tagged adolescents, AYA, conceptual framework, health status, QoL, Quality of Life, self-report, survivors, survivorship

Survivorship in Oncology: The Role of Exercise in Preservation and Restoration of Quality of Life

Posted on September 4, 2012 by admin

Presentation Description: This presentation provided an overview of exercise-based strategies for cancer survivors that serve to preserve and restore quality of life by overcoming the myriad of physical limitations and secondary risks imposed by previous cancer diagnoses, surgical interventions and therapeutic treatments.

Speaker:          Scott Adams, MSc (c)

                           Exercise Physiologist

                           Jewish General Hospital, Montreal

                           Masters Student, Concordia University, Montreal

 

Posted in 2011 Survivor Conference, Education for Survivors | Tagged exercise, physical limitations, prevention, Quality of Life, secondary cancer, surgical interventions

Hormonal Issues and Their Treatment

Posted on September 4, 2012 by admin

Presentation Description: Survivors of childhood cancer are at increased risk of developing chronic medical conditions, primarily as a direct result of the treatments they received to cure their cancers (for example radiation, combination chemotherapy). Endocrine or hormone problems are among the most common chronic medical conditions seen in adult survivors of childhood cancer. Hormone problems are most often seen in persons who were treated with radiation to the brain, neck or pelvic area and those who received high doses of a class of chemotherapy drugs called alkylation agents (such as cyclophosphamide, busulfan, melphalan, thiotepa). Hormone problems can affect growth, sexual development, stamina, and overall well being. Fortunately, many hormone problems are treatable.
This presentation reviewed the major hormone complications seen in survivors of childhood cancer, risk factors for these problems, as well as common symptoms and treatment approaches.

Speaker:          Mark Greenberg

                           Senior Adviser, Policy & Clinical Affiars

                           Pediatric Oncology Group of Ontario (POGO), Toronto

                           Senior Staff Oncologist

                           Division of Haematology/Oncology, SickKids, Toronto

                           Professor of Paediatrics & Surgery, University of Toronto

 

Posted in 2011 Survivor Conference, Education for Survivors | Tagged alkylation agents, chronic medical conditions, combination chemotherapy, endocrine, growth, hormonal issues, hormones, Quality of Life, radiation, risk factors, sexual function, stamina

Memory Changes Following Cancer Treatment: Effective Strategies for Milder Symptoms

Posted on September 4, 2012 by admin

Presentation Description: One of the most frequently reported and debilitating neurocognitive symptoms following a neurological illness involving the brain is that of memory impairment. The presentation provided an overview of the neurocognitive changes that can occur following cancer treatment with an emphasis on memory function. A few strategies were covered that are known to be effective in addressing milder memory symptoms, including commercial smartphones that are optimally suited to support day-to-day memory functioning.

Speaker:          Eva Svoboda, PhD

                         Neuropsychologist

                         Baycrest Health Centre, Toronto

                         West Park Healthcare Centre, Toronto

                         Adjunct Professor; Lecturer

                           York University; University of Toronto, Toronto

 

Posted in 2011 Survivor Conference, Education for Survivors | Tagged memory, memory function, memory impairment, neurocognitive symptoms, Quality of Life

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January 26, 2021

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