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Workshop D – In Their Own Words: Reflections from Lymphoma Survivors

Posted on January 2, 2015 by admin


Presentation Description:
A conference on pediatric lymphomas wouldn’t be complete without a session to explore the unique experiences of patients and survivors. This interactive workshop enabled participants to hear directly from two lymphoma survivors who graciously agreed to tell their stories. What is it truly like to be on the other side of a lymphoma diagnosis? How are these two former patients doing today and if there is anything they could change about the care they received, what would it be? Attendees participated in a candid discussion and came away with valuable insights about how care can be improved for tomorrow’s patient.

Speakers:

Diana M. Merino, MSc, PhD candidate
Genetics and Genome Biology Program
Hospital for Sick Children, Toronto

Michael Rosenberg, CAP, CA, CFE, MAcc, BAFM

Jane Cassano, MSW, RSW
Pediatric Oncology Social Worker
McMaster Children’s Hospital, Hamilton

Posted in 2014 Symposium, Education for Health Professionals | Tagged 2014 Symposium, childhood cancer survivors, lymphoma, patient care, survivors

Dr. Paul Rogers: The Role of Nutrition in Childhood Cancer

Posted on November 27, 2014 by Kelly Zorzi

 

Dr. Paul Rogers explains that malnourishment can in fact result from receiving very high dose chemotherapy, and, as a consequence, medical teams need to be more proactive in supporting children’s dietary needs. He suggests that weight, though it’s the most common measure, isn’t a sufficient indicator on its own. Dr. Rogers points out that while nutritional supports can diminish the effects of chemotherapy and help a child maintain their health while in treatment, he is clear that research is still needed to determine the overall impact on disease.

Dr. Paul Rogers is a pediatric oncologist at BC Children’s Hospital and Professor Emeritus at the University of British Columbia. He presented “The Role of Nutrition in Pediatric Oncology” at the 2013 POGO Symposium on Childhood Cancer, an annual education event to help health care professionals remain up-to-date in the rapidly advancing field of pediatric oncology.

Straight Talk about Childhood Cancer is POGO’s new series of video shorts featuring the insights of experts whose leading-edge work impacts the care, treatment and quality of life of childhood cancer patients, survivors and their families.

Posted in Education for Health Professionals, Straight Talk Videos | Tagged 2013 Symposium, complementary medicine, nutrition, patient care, Paul Rogers, side effects, Straight Talk

Facebook, Twitter, Tumblr…and Cancer – Social Media in Pediatric Oncology

Posted on March 4, 2014 by admin

Presentation Description: The advent of social media has prompted a major shift in the clinician-patient relationship. The opportunities for patients and their family members to engage with health care providers using social networking sites hold the promise of enhancing communication, strengthening the therapeutic alliance, and bolstering patient satisfaction. Indeed, some would argue that clinicians have an ethical obligation to interact with their patients in the electronic space and we now have numerous examples of providers who have succeeded in doing so. On the other hand, clinicians’ increasing use of social media and their interactions with patients in that setting can yield new ethical dilemmas. The potential for lapses in medical professionalism has led some to adopt very restrictive policies which would limit or even prevent clinicians from communicating with patients using social media.

This presentation elucidated both the promise and the pitfalls of integrating social media into the clinician-patient relationship. Unique considerations relevant to both cancer care and pediatric practice were reviewed. Moreover, we considered how to educate clinicians and develop ethically sound policy to allow for optimal interactions with patients using social media.

Speaker:

Jennifer Kesselheim, MD, MBE, EdM
Pediatric Oncologist
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center
Arnold P. Gold Foundation Assistant Professor of Pediatrics
Harvard Medical School, Boston

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, ethics, patient care, social media

POGO Programs Update – From Innovation to Application

Posted on March 4, 2014 by admin

Presentation Description: The umbrella that POGO provides to ensure the equity of care for children with cancer across the province encompasses a wide range of programs and activities. These commonly engage numerous stakeholders in the hospitals, other institutions, government and the community. While it is not possible to highlight all the programs that POGO has engaged in over the last 30 years, this session  focused on four innovative activities that POGO has led, and that have left indelible marks on the enhancement of care for children both in Ontario as well as beyond its borders.  1) Guidelines for supportive care have been developed, adopted and implemented throughout the pediatric oncology community; 2) the POGO satellite system has enhanced the quality of care close to home and enhanced the quality of life for families across the province; 3) a new initiative of a centralized ethics review will lead to improved efficiencies and comprehensive engagement of all treating centres for children eligible for enrollment on clinical trials; 4) development of a set of benchmarks (quality indicators) has provided a unique framework to evaluate the quality of systems for the delivery of care for children with cancer.  These efforts showcase the impact that POGO has had on the pediatric cancer community.

Guidelines for Supportive Care

Carol Portwine, MD, FRCPC, PhD
Pediatric Oncologist, McMaster Children’s Hospital
Associate Professor, Department of Pediatrics
McMaster University, Hamilton

Satellite system

Childhood cancer care is definitionally intense, arduous and takes place over elongated time frames. Since care is typically centralized in tertiary centers, this pattern of care imposes enormous stress on families and patients. In an attempt to address this disruption of lives, POGO developed a system of devolved designated care centers in which defined components of care can be delivered. This presentation briefly described that system.

Mark Greenberg, OC, MB, ChB, FRCPC
Senior Adviser, Policy & Clinical Affairs
Pediatric Oncology Group of Ontario (POGO), Toronto, ON

Centralized Ethics Review

Ronald M. Grant, MD, FRCPC
Pediatric Oncologist
The Hospital for Sick Children, Toronto

Quality Indicators

Nicole Bradley, MHSc (Epidemiology)
Senior Healthcare Analyst & Project Manager
Pediatric Oncology Group of Ontario (POGO), Toronto

 

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, ethics, OCREB, patient care, Provincial Pediatric Oncology Satellite Program, quality indicators, satellite clinic, supportive care guidelines

Future Directions in the Delivery of Pediatric Cancer Care

Posted on March 4, 2014 by admin


Presentation Description:
Chemotherapy, Supportive Care, Full Treatment Protocols…. all deliverable in the community and satellite setting.

This panel discussion focused on the growing demand to provide increasingly complex levels of care in the community and satellite setting. The panel members spoke specifically to where we should be going with pediatric cancer care delivery. What current opportunities exist? What future opportunities can be realized? What support services will be required for patients and families to enable us to deliver the best care possible?

Speaker:
Vicky Wilton, BPHE, RN
POGO Pediatric Interlink Nurse
Health Sciences North/Horizon Santé Nord, Sudbury

Speaker:
Jennifer Vincelli, MN, CPHON, RN
Outreach Clinical Program Coordinator
Division of Haematology/Oncology
The Hospital for Sick Children, Toronto

Speaker:
Charmaine van Schaik, MD, FRCPC
Pediatrician & Chief of Pediatrics
Southlake Regional Health Centre, Newmarket
Lecturer, Department of Pediatrics, Faculty of Medicine
University of Toronto, Toronto, ON; McMaster University, Hamilton

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, patient care, Provincial Pediatric Oncology Satellite Program, satellite clinic

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April 8, 2021

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