medulloblastoma Archives

Presentation Description: The evolution of success in the treatment of childhood cancer is acknowledged as one of the most dramatic achievements of contemporary medicine – a cure rate that rose from 20% to over 80% in 50 years. In the last thirty years, coinciding with the life of POGO, that rate has maintained a steady upward trend. This presentation focused on the concepts and strategies that systematically moved the success rate upward, using acute lymphoblastic leukemia and medulloblastoma as exemplars of the integration of knowledge and building of strategy that made pediatric oncology the focal point of advance in understanding of the biology of cancer and the application of that understanding to therapy. Finally, the presentation addressed the implications of that knowledge pattern for survivorship

Speaker:

Mark Greenberg, OC, MB, ChB, FRCP(C), FAAP
Senior Adviser, Policy & Clinical Affairs
Pediatric Oncology Group of Ontario (POGO), Toronto

Presentation Description: This presentation was a conversation between a nurse researcher and the mother of a now 14 year old survivor of a medullablastoma who was diagnosed at age 8, and was suffering severe consequences of her diagnosis and treatment. The discussion focused on the impacts of multiple limitations that may result from successful therapy, highlighted the enormous burden of care faced by patients and families, and served as a springboard for a discussion of caregiver burnout.

Speakers:

Janet Deatrick, PhD, FAAN, RN
Associate Professor
University of Pennsylvania School of Nursing, Philadelphia, PA
Researcher
The Children’s Hospital of Philadelphia, Philadelphia, PA

Patricia Dillabough
Parent

POGO

Blog

Tag: medulloblastoma

Pediatric Oncology – How Did We Get Here?

Exploring Family Management of Childhood Brain Tumor Survivors