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POGO > Blog > decision-making
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Tag: decision-making


Genetic Testing: Another Sword of Damocles? Psychological and Social Implications

Posted on February 7, 2013 by admin

Presentation Description: Genetic testing for hereditary cancer susceptibility offers the promise, in some cases, of providing a clear explanation of why cancer has occurred in a child, potential access for targeted treatments as they emerge, and screening and possible early detection for healthy siblings.  However, the impact of pediatric cancer genetic testing on children is largely unknown, and raises a host of psychological, social, and ethical issues. This presentation reviewed existing research literature on children and genetic testing, offered clinical examples, and discussed the developmental, familial, medical and cultural factors which should be considered in decision-making about cancer genetic testing for children.

Speaker:

Andrea Farkas Patenaude, PhD
Associate Professor of Psychology, Department of Psychiatry
Harvard Medical School, Boston, MA
Director of Psycho-Oncology Research, Division of Pediatric Oncology
Dana-Farber Cancer Institute Boston, MA

Posted in 2010 Pre-Symposium Seminar: Cancer & Genetics, Education for Health Professionals | Tagged 2010 pre-Symposium, decision-making, genetic testing, genetics

A Chain of Voices in Family Decision-Making

Posted on February 7, 2013 by admin

Presentation Description: This panel explored the challenging decisions that families face when presented with the option of genetic testing. The panelists provided details about their personal and family experience with cancer and discussed factors that persuaded them to make the decisions they made surrounding genetic testing and the implications of these decisions.

Moderator (joined by parent panelists):

Harriet Druker, MSc
Genetic Counsellor
Cancer Genetics Program, The Hospital for Sick Children
Lecturer
Department of Molecular Genetics and Microbiology, University of Toronto
Associate Member, Department of Molecular and Medical Genetics, University of Toronto

Posted in 2010 Pre-Symposium Seminar: Cancer & Genetics, Education for Health Professionals | Tagged 2010 pre-Symposium, decision-making, genetic testing, genetics, parents

Diversity Beyond Culture: Challenges of the Clinic Today

Posted on February 1, 2013 by admin

Presentation Description:  Caregivers are sometimes at a loss with the diversity of norms and values they encounter as well as how differently these norms and values may be voiced, from family to family.  What is common, what is specific – where do we start, where do we stop?  Is there a “universal stance” one can take or must we embrace every event as unique?  Multidisciplinary team work, professional cultures and subcultures, continuity of care within units and between units, issues related to the progress of medicine and decision making processes alternating between a “logic of care” (Mol, 2008) and a logic of choice are the backdrop upon which to understand the social space of the clinic as a site of negotiation where social, cultural, religious diversity comes into play.  The hospital is indeed a site of negotiation amongst caregivers of different backgrounds, caregivers and families, migrants and non-migrants of majority and minority status (in the Canadian context).

Speakers:

Sylvie Fortin, PhD
Anthropologist, Associate Professor
Université de Montréal, Montréal, QC
Researcher
CHU Sainte-Justine, Montréal, QC

Rani Srivastava, RN PhD
Assistant Professor
Lawrence Bloomberg Faculty of Nursing, Toronto, ON
Adjunct Professor
York University School of Nursing , Toronto, ON
Chief of Nursing and Professional Practice
Centre for Addiction and Mental Health, Toronto, ON

Posted in 2010 Symposium, Education for Health Professionals | Tagged 2010 Symposium, cultural diversity, decision-making, pediatric sarcomas

Whose Choice is it? The Dilemma of Complex Decision Making

Posted on February 1, 2013 by admin

Presentation Description:  This panel discussion explored the ethical dilemma of decision making by young adolescents considered cognitively able to make treatment decisions, but potentially challenged by the time horizon typical of their age.  It explored the decision making options available for local control of osteosarcoma of the lower limb through the eyes of a young survivor, his mother, a second survivor who now practices orthopedic oncology, and an ethicist.

Speakers:

Mark Greenberg, OC, MB, ChB, FRCPC, FAA
Medical Director, Pediatric Oncology Group of Ontario (POGO)
Professor of Paediatrics and Surgery, University of Toronto
POGO Chair in Childhood Cancer Control, University of Toronto

Michelle A. Mullen, MHP, PhD
Associate Professor Departments of Paediatrics & Women’s Studies
University of Ottawa, Ottawa, ON
Consultant Bioethicist
Children’s Hospital of Eastern Ontario, Ottawa, ON

Kurt Richard Weiss, MD
Parent and Survivor
Assistant Professor, Department of Orthopaedic Surgery
University of Pittsburgh School of Medicine, Division of Musculoskeletal Oncology
Pittsburgh, PA

Posted in 2010 Symposium, Education for Health Professionals | Tagged 2010 Symposium, adolescents, decision-making, ethics, osteosarcoma, pediatric sarcomas, rhabdomyosarcoma

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January 30, 2023

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