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Post-traumatic Stress and Post-traumatic Growth: Pathways to Resilience

Posted on March 4, 2014 by admin


Presentation Description:
Childhood cancer has been widely viewed as a traumatic event, and traumatic stress models have become a dominant approach to understanding the experiences of children with cancer. This approach, which focused on psychopathology rather than adjustment, overlooked the generally positive adjustment of most children to this significant health challenge. The speaker presented an alternative approach, based on a view that cancer is a significant life event that represents not only a potential trauma, but also a potential catalyst for growth and positive change. This session presented some recent findings which demonstrate how subtle changes in methodology can produce significantly different outcomes, and which support our contention that resilience and psychological growth are the most common outcomes of the childhood cancer experience.

Speaker:
Sean Phipps, PhD
Chair, Department of Psychology
St. Jude Children’s Research Hospital, Memphis

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, post-traumatic stress, psychological distress, psychosocial, PTSD

Biomarkers and the Future of Pediatric Cancer Care

Posted on March 4, 2014 by admin


Presentation Description:
This presentation provided an overview of genetic predispositions to specific diseases, as well as the therapies and theories currently being investigated.

Speaker:
John M. Maris, MD
Giulio D’Angio Professor of Pediatrics
Director, Center for Childhood Cancer Research
Children’s Hospital of Philadelphia, Philadelphia

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, biomarkers, targeted therapies

New & Now – Four Innovative Studies that are Changing the Landscape of Care

Posted on March 4, 2014 by admin


Presentation Description:
This presentation highlighted four innovative studies that are having a major impact on the diagnosis and/or treatment of childhood cancer.

Impact of Ethnicity on the Donor Search for Pediatric Patients Considered for Stem Cell Transplantation

Speaker:
Julia DiLabio, MSc, MD Candidate
University of Toronto, Toronto

Neuropathic Pain Related to Vincristine: A Pediatric Descriptive Study

Speakers:
Catherine Goudie, MD
Fellow in Pediatric Hematology-Oncology
McGill University, Montreal

Christine Racette, MD
Pediatric Resident
Laval University, Quebec City

Bringing 131I-MIBG Therapy Closer to Home

Speaker:
Denise Mills, RN(EC), MN, NP Pediatrics, CPN, ACNP
Division of Haematology/Oncology
The Hospital for Sick Children, Toronto

Relations Among Anxiety and Depression, Autonomy and Mothers’ Overprotective Parenting Practices in Young Adult Survivors of Childhood Cancer

Speaker:
Amanda Sherman, MA, PhD Candidate
Department of Psychology, University of Toronto, Toronto
POGO Research Fellow

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, adolescents, anxiety, ethnicity, MIBG, neuropathic pain, parents, Pediatric Stem Cell Transplantation

Facebook, Twitter, Tumblr…and Cancer – Social Media in Pediatric Oncology

Posted on March 4, 2014 by admin

Presentation Description: The advent of social media has prompted a major shift in the clinician-patient relationship. The opportunities for patients and their family members to engage with health care providers using social networking sites hold the promise of enhancing communication, strengthening the therapeutic alliance, and bolstering patient satisfaction. Indeed, some would argue that clinicians have an ethical obligation to interact with their patients in the electronic space and we now have numerous examples of providers who have succeeded in doing so. On the other hand, clinicians’ increasing use of social media and their interactions with patients in that setting can yield new ethical dilemmas. The potential for lapses in medical professionalism has led some to adopt very restrictive policies which would limit or even prevent clinicians from communicating with patients using social media.

This presentation elucidated both the promise and the pitfalls of integrating social media into the clinician-patient relationship. Unique considerations relevant to both cancer care and pediatric practice were reviewed. Moreover, we considered how to educate clinicians and develop ethically sound policy to allow for optimal interactions with patients using social media.

Speaker:

Jennifer Kesselheim, MD, MBE, EdM
Pediatric Oncologist
Dana-Farber/Boston Children’s Cancer and Blood Disorders Center
Arnold P. Gold Foundation Assistant Professor of Pediatrics
Harvard Medical School, Boston

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, ethics, patient care, social media

POGO Programs Update – From Innovation to Application

Posted on March 4, 2014 by admin

Presentation Description: The umbrella that POGO provides to ensure the equity of care for children with cancer across the province encompasses a wide range of programs and activities. These commonly engage numerous stakeholders in the hospitals, other institutions, government and the community. While it is not possible to highlight all the programs that POGO has engaged in over the last 30 years, this session  focused on four innovative activities that POGO has led, and that have left indelible marks on the enhancement of care for children both in Ontario as well as beyond its borders.  1) Guidelines for supportive care have been developed, adopted and implemented throughout the pediatric oncology community; 2) the POGO satellite system has enhanced the quality of care close to home and enhanced the quality of life for families across the province; 3) a new initiative of a centralized ethics review will lead to improved efficiencies and comprehensive engagement of all treating centres for children eligible for enrollment on clinical trials; 4) development of a set of benchmarks (quality indicators) has provided a unique framework to evaluate the quality of systems for the delivery of care for children with cancer.  These efforts showcase the impact that POGO has had on the pediatric cancer community.

Guidelines for Supportive Care

Carol Portwine, MD, FRCPC, PhD
Pediatric Oncologist, McMaster Children’s Hospital
Associate Professor, Department of Pediatrics
McMaster University, Hamilton

Satellite system

Childhood cancer care is definitionally intense, arduous and takes place over elongated time frames. Since care is typically centralized in tertiary centers, this pattern of care imposes enormous stress on families and patients. In an attempt to address this disruption of lives, POGO developed a system of devolved designated care centers in which defined components of care can be delivered. This presentation briefly described that system.

Mark Greenberg, OC, MB, ChB, FRCPC
Senior Adviser, Policy & Clinical Affairs
Pediatric Oncology Group of Ontario (POGO), Toronto, ON

Centralized Ethics Review

Ronald M. Grant, MD, FRCPC
Pediatric Oncologist
The Hospital for Sick Children, Toronto

Quality Indicators

Nicole Bradley, MHSc (Epidemiology)
Senior Healthcare Analyst & Project Manager
Pediatric Oncology Group of Ontario (POGO), Toronto

 

Posted in 2013 Symposium - Innovation in Pediatric Oncology, Education for Health Professionals | Tagged 2013 Symposium, ethics, OCREB, patient care, Provincial Pediatric Oncology Satellite Program, quality indicators, satellite clinic, supportive care guidelines

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