Description
The POGO School and Work Transitions Program Database contains demographic information on childhood cancer survivors who need assistance in transitioning to post-secondary education or the workforce. It is a consent-based data holding wherein clients provide consent for their information to be collected and used in the data holding.
Statement of Purpose
What is the purpose of the data holding?
The purpose of this database is for reporting academic or vocational outcomes to the Ministry of Education. The data collected will be used for program evaluation, retrospective study and longitudinal study in the future. The data holding contains the electronic client files that are maintained throughout the counselling process. Data captured in the data holding is both linked and compared with POGO’s childhood cancer database, POGONIS, to ensure accuracy, facilitate additional analysis and support potential research endeavours.
What PHI is contained in the data holding?
The client personal health information (PHI) contained in the data holding includes:
- Name
- Address
- Date of birth
- Telephone number and email address
- Cancer diagnosis
- Date of cancer diagnosis
- Cancer treatment
- Health documents (e.g., medical letters, neuropsychological assessments)
- Workplace or school documents (e.g., accommodation letters)
- Educational attainment and vocational goals
What is the source of the PHI?
Clients or parents/caregivers provide consent for the client’s PHI to be collected and entered into the data holding by POGO School and Work Transitions Counsellors at our hospital partners where POGO School and Work Transitions Program services are provided.
Why is PHI needed in relation to the identified purpose?
POGO School and Work Transitions Counsellors must accurately identify each client to deliver, record and track targeted counselling services. In addition to collecting and using PHI to deliver services, the program collects and analyzes data to monitor its impact and plan future services. PHI is also required to verify the accuracy of the POGONIS Registration ID for analysis and research through linkages.
Why won’t de-identified and/or aggregate information serve the identified purpose?
De-identified and/or aggregate information will not serve the identified purposes because:
- It cannot verify the accuracy of the POGONIS Registration ID which is necessary to facilitate analysis and research using linkages and
- The POGO Transitions Program Database is a client-level database for a service delivery program.
Contact Us
For any questions or concerns about the POGO School and Work Transitions Program Database, please contact transitions@pogo.ca.
Data Requests
We welcome requests for the use of the data in the POGO School and Work Transitions Program Database and other POGO PHI data holdings for analysis and/or research purposes.
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Data Privacy
POGO values privacy and protects the personal health information (PHI) of children and youth with cancer, survivors of childhood cancers and their families.