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Childhood Cancer Resource Guide > Respite Care
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Childhood Cancer Resource Guide

Last updated: October 21, 2016

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Before using the “Advanced Search” option for the Resource Guide, read the explanation at the bottom of this page


Advanced Search

Respite Care

Region: East
Organization Name: Brockville and District Hospice Palliative Care Service
Description: Brockville and District Hospice Palliative Care Service promotes quality of life for people living with a life-limiting illness. The team offers assessments, counseling, pain and symptom management, comfort measures, companionship, respite and transportation. A Community Day Hospice Program offered weekly provides social interaction, therapies, activities and nursing consultations for patients. Bereavement support is provided through support groups, or individual counseling for those who have experienced the death of a loved one.
Service Type: Bereavement (Counselling - General), Bereavement (Support Groups), Nursing Services, Palliative Care, Respite Care, Support Groups
Phone: (613) 345-5649 ext. 4412
Fax: (613) 342-4972
Website: http://www.bgh-on.ca/?PGID=25
Address: 42 Garden Street
City: Brockville
Province: ON
Eligibility: Clients and families in the Counties of Leeds and Grenville who are coping with a life-limiting illness.
Referral: Health Care providers, patients and/or family may make referrals to any service with the exception of hospitalized patients who require a physician referral.
Staffing: Physicians, Consult Nurses, Volunteers
Hours: Mon to Fri; 8:30 a.m. to 4:30 p.m.
Fee: Certain services require a fee. Please contact organization for more information.
Application: Call in to request services.
Region: Central-East
Organization Name: Community Living Hamilton
Description: Community Living Hamilton is an accredited not-for-profit organization and registered charity that offers a full range of services to people with special needs. Each year, they provide service to approximately 1,000 children, teens, adults and families.
Service Type: Employment Support, Residential Programs, Respite Care, SAVTI
Phone: (905) 528-0281
Fax: (905) 528-5156
Email: info@clham.com
Website: www.communitylivinghamilton.com
Address: 191 York Boulevard
City: Hamilton
Province: ON
Eligibility: Varies on program.
Fee: Certain services require a fee. Please contact organization for more information.
Application: Call in for more information.
Region: Central-East
Organization Name: Corbrook
Description: Corbrook is a community-based service organization that has been making an important contribution to the lives of people with physical and developmental disabilities and their families for more than 60 years. They embrace a person-directed philosophy and approach, supporting people to make informed decisions and personal choices that will help them achieve their goals.
Service Type: Disability Services, Employment Support, Respite Care, SAVTI
Phone: Toronto:(416) 245-5565
Email: info@corbrook.com
Website: www.corbrook.com/
Address: 581 Trethewey Drive
City: Toronto
Province: ON
Eligibility: Adults aged 18-60 with a developmental disability. Day respite is for youth 14-18 years.
Fee: For eligible individuals, no fees will be required. Some service are offered on a fee-for-service basis.
Region: Central-East
Organization Name: Emily’s House
Description: Emily’s House is dedicated to caring for children with complex needs while supporting their families. It brings together high quality, respite and palliative care with the warmth and comfort of a child-focused environment. Emily’s House can accommodate a maximum of 10 children at a time. However, capacity may vary at any given time based on the unique needs of patients and their families.
Service Type: Bereavement (Counselling - General), Recreation, Respite Care
Phone: (416) 363-9196
Fax: (416) 363-6983
Email: info@philipazizcentre.ca
Website: www.philipazizcentre.ca/emilys-house
Address: 45 Jack Layton Way
City: Toronto
Province: ON
Eligibility: 0-19 years of age, have a valid Ontario Health Insurance Plan (OHIP), and have a progressive life-limiting illness or major medical disease that demonstrates a progressive decline.
Referral: Referral can come from a parent/guardian, pediatric palliative care physician, family physician, nurse practitioner, nurse, social worker, or case manager.
Fee: Families are responsible for providing the child’s medications, diapers and other supplies. Emily’s House will cover supplies related to advanced respite care as well as all direct costs of care.
Region: Central-East
Organization Name: ErinoakKids
Description: ErinoakKids provides a comprehensive range of family-centred treatment, rehabilitation and support services to children with disabilities and their families who reside in Dufferin, Halton, Peel, Waterloo and Wellington - the Ministry of Children and Youth Services’ (MCYS) Central West Region of Ontario. The Ontario government funds the mandatory services offered at ErinoakKids through its Ministry of Children and Youth Services.
Service Type: Assistive Devices, Counselling - General, Disability Services, Family, Recreation, Respite Care, SAVTI, Social Work, Support Groups
Phone: (905) 855-2690
Website: www.erinoakkids.ca
Province: ON
Eligibility: Children and youth (up to age 19) with multiple disabilities, complex disorders and speech delay living in Halton, Peel and, in some cases, Waterloo, Wellington and Dufferin.
Referral: Health professionals, families or self-referral.
Hours: Varies according to program in action.
Fee: Certain services require a fee. Please contact organization for more information.
Application: After the referral is made, the appropriate services required are identified and the applicant is notified afterwards.
Region: Central-East
Organization Name: Hospice Palliative Care Ontario
Description: The Hospice Palliative Care Ontario (HPCO) represents and assists the development, education and enhancement of community hospice services including those services for children. Although services differ slightly by community, most Hospices provide information on available services and programs, education, public information and awareness and public policy development. Hospices also offer emotional support, respite care, palliative care and bereavement support.
Service Type: Nursing Services, Palliative Care, Respite Care
Phone: (416) 304-1477
Fax: (416) 304 1479
Email: Info@hpco.ca
Website: www.hpco.ca
Address: 2 Carlton Street, Suite 707
City: Toronto
Province: ON
Eligibility: Members of the Association and the general public who require general information. Information is available to everyone.
Referral: Any source.
Staffing: All local hospices comprise of few paid staff and many volunteers.
Fee: No
Application: Telephone or written request.
Region: East
Organization Name: Ottawa Children’s Treatment Centre
Description: OCTC works with children and youth with physical and/or developmental disabilities living in Eastern Ontario who are striving to reach their full potential. Through a variety of bilingual programs and services, OCTC's professional staff work closely with the child and their family across sites in Eastern Ontario to deliver high quality, family-centered service. Services offered include: recreation opportunities for children and youth with special needs, providing out-of-home respite options, helping families access technology to meet their child's needs and more.
Service Type: Disability Services, Family Education, Respite Care, SAVTI
Phone: (613) 737-0871
Fax: (613) 523-5167
Email: info@octc.ca
Website: http://www.octc.ca/
Address: 395 Smyth Road
City: Ottawa
Province: ON
Eligibility: Children with physical, developmental and/or communicative disabilities under the age of 19 years old. May vary with service.
Referral: Referrals by Families, Physicians, Professionals (such as Allied Health Care Providers or Educators), Other Agencies or Community Partners.
Staffing: Behaviour consultants, dieticians, early childhood consultants, early childhood educators, family resource workers, liaison teachers, nurses, occupational therapists, psychologists, physicians, physiotherapists, recreation therapists, social workers and speech-language pathologists.
Fee: Varies
Application: Once you have an idea of which programs or services might best meet your needs, call or email to register.
Region: East
Organization Name: Ottawa-Carleton Association for Persons with Developmental Disabilities
Description: The Ottawa-Carleton Association for Persons with Developmental Disabilities' (OCAPDD) supports the community integration and personal well-being of children and adults with developmental disabilities within the Regional Municipality of Ottawa-Carleton. OCAPDD provides support to hundreds of persons with developmental disabilities, in every aspect of life whether seeking work opportunities, securing living arrangements or dealing with day-to-day tasks.
Service Type: Advocacy, Disability Services, Respite Care, SAVTI
Phone: (613) 569-8993
Fax: (613) 569-9865
Email: ocapdd@ocapdd.on.ca
Website: www.ocapdd.on.ca
Address: 229 Colonnade Road South
City: Ottawa
Province: ON
Eligibility: Individuals wishing to receive support from OCAPDD must have a developmental disability and be residents of Ontario with priority given to those persons who are currently or were originally residents of Ottawa-Carleton.
Referral: Referrals to OCAPDD are made through a central point of access at Developmental Services Ontario Eastern Ontario.
Staffing: Registered nurse consultants, expertly trained, hard-working and dedicated full-time and part-time staff, families and volunteers.
Fee: Yes, varies with service type.
Region: Southwest
Organization Name: Parents of Technologically Dependent Children of Ontario
Description: Parents of Technologically Dependent Children of Ontario Kids Country Club offers out-of-home respite care for medically fragile and/or technologically dependent children.
Service Type: Respite Care
Phone: (519) 473-1598
Fax: (519) 473-7939
Website: www.ptdc.on.ca
Address: 87 Chestnut Hill
City: London
Province: ON
Eligibility: Families of medically fragile and/or technologically dependent children.
Location: Community, home.
Staffing: Registered nurses, registered practical nurses, and developmental service workers.
Hours: London Location: Thursday Afternoon to Sunday Afternoon. London is also open the 3rd full week of the month. Cambridge Location: Friday Afternoon to Sunday Afternoon. Both offices are also open during the entire summer (July 1 to August 31).
Fee: No
Application: To request services call one of the offices.
Region: Central-East
Organization Name: Philip Aziz Centre
Description: A non-profit hospice providing respite, practical, emotional, spiritual and bereavement care for adults and children living with life-limiting illnesses and support to their loved ones, in the comfort of their own homes.
Service Type: Bereavement (Counselling - General), Camps, Palliative Care, Respite Care
Phone: (416) 363-9196
Fax: (416) 363-6983
Email: info@philipazizcentre.ca
Website: www.philipazizcentre.com
Address: 558 Gerrard Street East
City: Toronto
Province: ON
Eligibility: Cancer patients of all ages that require support in the form of non-medical palliative care, spiritual support, respite and caring volunteers.
Referral: End of Life and Pain and Symptom Management programs require a referral from a practitioner.
Staffing: Professional staff and carefully screened and trained volunteers.
Fee: No
Region: East
Organization Name: Roger’s House
Description: Roger's House enriches the lives of children, youth and their families facing progressive life-limiting illnesses. Their team provides respite, end-of-life, transition-to-home support, pain and symptom management, peri-natal care and bereavement care by ensuring individualized physical, emotional, and spiritual support in a caring, compassionate and continuous learning environment.
Service Type: Bereavement (Support Groups), Palliative Care, Respite Care, Support Groups
Phone: (613) 523-6300 ext. 600
Fax: (613) 523-3617
Email: info@rogershouse.ca
Address: 399 Smyth Road
City: Ottawa
Province: ON
Eligibility: Eligibility criteria includes: referral to CHEO Pediatric Palliative Care Outreach team, children/youth up to their 19th birthday, Ontario resident with valid OHIP coverage, child/youth has life-limiting illness with progressive decline in health status, family and child/youth must be willing to confront the challenging issues around a child's/youth's illness and death with the help of the interdisciplinary team.
Referral: Yes, must be referred by a physician.
Staffing: Personal Support Workers, Registered Nurses, Palliative Care Program Physicians, Social Worker, Recreation Therapist and various volunteers.
Fee: No
Region: Provincewide
Organization Name: Special Services at Home Program
Description: This program, offered by the Ontario Ministry of Community and Social Services, helps families with children who have a developmental or physical disability pay for special services in or outside the family home such as hiring professionals to help the child learn new skills and abilities, and provide respite support to the family.
Service Type: Disability Services, Education, Financial Assistance - General, Respite Care, SAVTI
Government: YES
Website: www.children.gov.on.ca/htdocs/English/topics/specialneeds/specialservices/index.aspx
Province: ON
Eligibility: Children with a developmental or physical disability (or their families) can apply for this money if they live in Ontario, need more support than most families can provide, are living at home with their family, or if they are not living at home with their family and are not being helped by other residential services.
Referral: Medical specialist or general practitioner must provide a diagnosis.
Location: In the family home
Fee: No
Application: Mail the completed application form (available online) and the attached medical statement or psychological assessment outlining the disability and extent of financial need to your nearest regional office.
Region: Southwest
Organization Name: The Children’s Treatment Centre of Chatham-Kent (CTC-CK)
Description: The Children’s Treatment Centre of Chatham-Kent (CTC-CK) provides specialized services for children and youth, from birth through to 18 years, with physical, developmental or communication needs.
Service Type: Assistive Devices, Disability Services, Physiotherapy, Recreation Centres, Respite Care, SAVTI, Social Work, Speech
Phone: (519) 354-0520
Fax: (519) 354-7355
Email: info@ctc-ck.com
Website: www.ctc-ck.com
Address: 355 Lark Street
City: Chatham
Province: ON
Eligibility: Children with doagnosed physical or developmental disability.
Referral: Yes, varies with service.
Staffing: Trained professionals.
Fee: No
Region: Northeast
Organization Name: Timiskaming Palliative Care Network
Description: Timiskaming Palliative Care Network offers various programs and services that provide support and/or care for Cancer, Cardiovascular Disease, Infectious Diseases (i.e. HIV/AIDS, Hepatitis-C), Neurological Disorders, Renal Disease, Respiratory Disease, Anticipatory Grief and Bereavement, and Emotional/Spiritual Support.
Service Type: Bereavement (Counselling - General), Bereavement (Support Groups), Counselling - General, Homemaking, Nursing Services, Nutrition Counselling, Palliative Care, Physiotherapy, Respite Care, Speech, Support Groups
Phone: (705) 568-2238
Fax: (705) 568-2261
Website: http://www.chpca.net/family-caregivers/directory-of-services/timiskaming-palliative-care-network.aspx
Address: 145 Government Road East
City: Kirkland Lake
Province: ON
Eligibility: Individuals with a life limiting illness.
Location: Within the community.
Staffing: Counsellors, Dietitians, Nurses, Occupational Therapists, Personal Support Workers, Pharmacists, Physicians, Physiotherapists, Psychologists, Social Workers, Speech Work/Language Therapists, Spiritual/Pastoral Care Workers, Volunteers
Hours: 15 hours per week of service are available.
Fee: No
Application: Call in to request services.
Region: Southwest, Central-West, Central-East, East
Organization Name: VHA Home HealthCare
Description: VHA Home HealthCare (VHA) is a not-for-profit, charitable organization that offers 24/7 health care and support services to people of all ages and cultural backgrounds. They deliver quality client support at home, in the community and in long-term care facilities. Services include nursing, personal/home support, rehabilitation services and palliative care.
Service Type: Homemaking, Nursing Services, Palliative Care, Respite Care
Phone: (416) 489-2500
Fax: (416) 482-8773
Email: info@vha.ca
Website: http://www.vha.ca/
Address: 30 Soudan Avenue, Suite 600
City: Toronto
Province: ON
Eligibility: Individuals who need help at home, school, work or in a long-term care facility. 
Staffing: Nurses, occupational therapists, physiotherapists, personal support workers, home support workers, cleaners, social workers, dietitians, and speech-language pathologists.
Fee: Most services are provided free of charge through your local Community Care Access Centre (CCAC) in the Greater Toronto Area and in Southwestern Ontario. If you are not eligible for government-funded care or need more service hours, contact 416-489-2500 ext. 4649.
Application: Call to request services.
Region: Provincewide
Organization Name: Victorian Order of Nurses (VON) – National Office
Description: VON is Canada’s only, national, not-for-profit, charitable home and community care organization that provides more than 75 home care, personal support, and community services for people of all ages including nursing, homemaking, family education services and respite/caregiver relief.
Service Type: Bereavement (Counselling - General), Bereavement (Support Groups), Family Education, Homemaking, Nursing Services, Palliative Care, Respite Care, Support Groups, Transportation
Phone: (613) 233-5694
Fax: (613) 230-4376
Email: national@von.ca
Website: www.von.ca
Address: 2315 St. Laurent Blvd., Suite 100
City: Ottawa
Province: ON
Eligibility: People of all ages in need of home care, personal support and/or specific community services. Visit website for more information about services.
Location: In the patient's home or elsewhere within the community.
Staffing: Registered nurses, personal support workers, therapists, volunteers and other health care providers at the VON branches.
Hours: Mon to Fri; 8:30 a.m. to 4:30 p.m. 24 hour service program is also available at some VON branches.
Application: Call local branch for more information.

 


When using the “Region” search option, here’s how to improve your search results.
1) Choose “Provincewide” to find individual organizations providing services across Ontario
2) Choose a specific region to find individual organizations whose services are available only in that region
3) Choose “Provincewide” and click another region(s) to find all of the organizations that provide services both province-wide and in the regions selected, i.e., both provincewide organizations and region-specific organizations

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@POGO4Kids

January 21, 2021

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