Programs & Support

Childhood Cancer Resource Guide

Last updated: October 21, 2016

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Region: East
Organization Name: Kately Bedard Bone Marrow Association
Description: Katelyn Bedard Bone Marrow Association aims to promote awareness about worldwide bone marrow registries, to educate on bone marrow donation, to bring attention to the pressing need for bone marrow donors, and to encourage all adults to consider joining the registry. They also aim to provide support to families that have a family member in need of a bone marrow or stem cell transplant.
Service Type: , ,
Phone: (519) 564-4119
Email: info@givemarrow.net
Website: www.givemarrow.net/index.html
Address: 3064 Fairlane Crescent
City: Windsor
Province: ON
Eligibility: Families of patients in need of a bone marrow transplant that are referred from Windsor Regional Hospital in Windsor, Ontario and the Children's Hospital of Western Ontario.
Referral: Referral from social worker or requesting an application form online.
Fee: No
Application: You can request an application form by contacting info@givemarrow.net
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Region: Central-East
Organization Name: b.r.a.i.n. child c/o SickKids Hospital
Description: b.r.a.i.n.child is a group of parents, family and friends who have the common experience of caring for a child with a brain tumour or who are survivors themselves. They are a volunteer organization providing support, education and research funding.
Service Type: , , , , ,
Phone: (416) 813-7974
Email: brain.child@sickkids.ca
Website: www.sickkids.ca/brainchild
Address: 555 University Avenue
City: Toronto
Province: ON
Eligibility: Parents, family, friends and health professionals.
Referral: Any source, including self-referral.
Location: Community, school, family home and tertiary and community hospitals.
Hours: 24 hour answering machine
Fee: No
Application: Fill out an application with a social worker at the Hospital for Sick Children. Telephone or written request.
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Region: Provincewide
Organization Name: Camp Quality
Description: Camp Quality (CQ) operates six camps across Canada as well as a week-long leadership program for young adults, where there are activities for everyone. At CQ, campers with cancer have the opportunity to make new friends, explore nature, try new activities, master a favourite program, and thrive in an environment where they are not defined by their cancer experience, but by their excitement for the future.
Service Type: ,
Phone: (416) 406 2267
Fax: (416) 406-2260
Email: info@campquality.org
Website: http://campquality.org/
Address: 1444 Queen Street East
City: Toronto
Province: ON
Eligibility: Camp Quality welcomes campers aged 4 – 18. They also offer a teen camp for adolescents aged 14 – 18 and a young adult adventure experience for ages 18-25. All these camps are open to children and young adults with cancer, either on therapy or in remission, siblings of these children and bereaved siblings of children with cancer.
Fee: No
Application: Applications can be found online.
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Region: Provincewide
Organization Name: Canadian Cancer Society – Ontario Division
Description: The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. The Cancer Information Service dedicates its staff and resources to providing the most accurate, current and accessible source of cancer information (general information, support groups, websites etc.), by telephone, in Ontario.
Service Type: , , , , , ,
Phone: National Office: (416) 488-5400
Fax: (416) 961-4189
Email: ccs@cancer.ca
Website: www.cancer.ca
Address: 55 St. Clair Avenue West
City: Toronto
Province: ON
Eligibility: Patients, parents, siblings and other family members, organizations and public where applicable.
Referral: Any source, including self-referral.
Fee: No
Application: Please see the Glossary of Geographic Regions for local offices. Services may differ slightly by community.
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Region: Central-East
Organization Name: Childhood Cancer Canada Foundation (CCC)
Description: CCC is entirely focused on helping children with cancer and their families through strategic, lifesaving Canadian childhood cancer research, support programs and sponsorships. Sponsorships include: Childhood Cancer Canada Survivor Scholarship $1,500:A one-time award for students in any university, college, or vocational training program. Students may be in any year of their studies provided that they are enrolled in school for the fall term that the scholarships are awarded in.TEVA Canada Scholarship $5,000 :A one-time award that will be granted to a maximum of 10 students entering (or already enrolled in) pharmacy, medicine, or health sciences post-graduate programs of study. Students may be in any year of their studies provided that they are enrolled in school for the fall term that the scholarships are awarded in.
Service Type: , , , , , ,
Phone: (416) 489-6440
Fax: (416) 489-9812
Email: info@childhoodcancer.ca
Website: www.childhoodcancer.ca
Address: 21 St. Clair Avenue East, Suite 801
City: Toronto
Province: ON
Eligibility: Any interested individuals;Scholarship: students attending post-secondary education;emPower Pack: newly diagnosed families;Benevolent Fund: Families in financial need.
Referral: Referral from social worker or nurse needed for Benevolent Fund.
Fee: No
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Region: Central-East
Organization Name: CNIB
Description: CNIB is a registered charity, passionately providing community-based support, knowledge and a national voice to ensure Canadians who are blind or partially sighted have the confidence, skills and opportunities to fully participate in life.CNIB scholarships will be awarded to Canadian students who are blind or partially sighted for the purpose of attending a Canadian post-secondary institution.
Service Type: , , , , , , ,
Phone: (416) 486-2500
Fax: (416) 480-7677
Email: info@cnib.ca
Website: www.cnib.ca
Address: 1929 Bayview Avenue
City: Toronto
Province: ON
Eligibility: Canadians living with vision loss.
Referral: Any source, including self-referral.
Hours: 8:30 a.m. - 4:30 p.m.
Fee: No
Application: Contact the District Office nearest you.
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Region: Central-East
Organization Name: ELLICSR
Description: ELLICSR is designed as a collaborative space for research into health, wellness and cancer survivorship. Cancer survivors, including family members, friends and caregivers, can:- Find information on health and wellness.- Participate in a class or program, designed through research with survivor input.- Meet other survivors and share experiences, support each other and learn together.
Service Type: , , , , , ,
Phone: (416) 581-8620
Email: ellicsr@rmp.uhn.on.ca
Website: www.ellicsr.ca
Address: 585 University Avenue, Munk Building, B PMB 130
City: Toronto
Province: ON
Eligibility: Cancer survivors, including family members, friends and caregivers.
Referral: Self-referral is acceptable.
Fee: No
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Region: Central-East
Organization Name: Epilepsy Toronto
Description: Epilepsy Toronto is the place where Torontonians living with epilepsy can learn more about their condition, get the help they need and be a part of a family of caring and supporting people.
Service Type: , , , , , , , ,
Phone: (416) 964-9095
Fax: (416) 964-2492
Email: info@epilepsytoronto.org
Website: www.epilepsytoronto.org
Address: 468 Queen East, Suite 210
City: Toronto
Province: ON
Eligibility: People living with, or have an interest in epilepsy. May have other medical conditions in addition to epilepsy.
Hours: Monday to Friday, 8:30-4:30 pm.
Fee: No
Application: Please. An assessment for counseling is usually required.
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Region: Central-East
Organization Name: Gilda’s Club Greater Toronto
Description: Gilda’s Club Greater Toronto is a place where children, teens, women and men whose lives have been touched by cancer, as well as their families and friends, can feel they are part of a welcoming community of support. Gilda’s Club Greater Toronto has a diverse calendar of programming for anyone living with cancer along with their support network.
Service Type: , , , , ,
Phone: (416) 214-9898
Fax: (416) 214-0346
Email: info@gildasclubtoronto.org
Website: www.gildasclubtoronto.org
Address: 24 Cecil Street
City: Toronto
Province: ON
Eligibility: Oncology patients of any age; children, teens, women, men, family and friends whose lives have been touched by cancer.
Referral: Self-referral is acceptable.
Staffing: Child Life Specialists, Mental Health Professionals, Volunteers
Fee: No
Application: Members will meet with a program staff to learn about programming options and discuss what fits best with their needs.
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Region: Central-East
Organization Name: Learning Disabilities Association of Ontario (LDAO)
Description: The Learning Disabilities Association of Ontario (LDAO) is a registered charity dedicated to improving the lives of children, youth and adults with learning disabilities (LDs). LDAO offers many resources, services, information, venues and products designed to help people with LDs and ADHD, as well as parents, teachers, and other professionals. Members get fee rates to all LDAO programs and services, including online workshops, courses, etc. LDAO also offers an annual $1,000 scholarship award.
Service Type: , , , , ,
Phone: (416) 929-4311
Fax: (416) 929-3905
Email: resource@LDAO.ca
Website: www.ldao.ca/
Address: 365 Evans Avenue, Suite 202
City: Toronto
Province: ON
Eligibility: Any interested individuals. For the scholarship, the student must be pursuing a bachelor of engineering or a bachelor of science in a physical sciences discipline (please note: physical sciences do not include social sciences or technology majors). Candidates must have been full time high school students during the previous year and be entering their first year of college or university.
Fee: Information is free. There is a fee for membership.
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Region: Central-East
Organization Name: Leukemia & Lymphoma Society of Canada
Description: The Leukemia & Lymphoma Society of Canada (LLSC) is the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients.
Service Type: , , , ,
Phone: (877) 668-8326
Fax: (416) 661-7799
Email: AdminCanada@lls.org
Website: www.llscanada.org/
Address: 2 Lansing Square, Suite 804
City: Toronto
Province: ON
Eligibility: Anyone seeking information on blood cancers.
Fee: No
Application: Call, email or visit website for more information.
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Region: Central-East
Organization Name: North York General Hospital
Description: North York General Hospital, affiliated with the University of Toronto, is one of Canada's leading community academic hospitals. They offer a wide range of acute care, ambulatory and long-term care services across three sites.
Service Type: , ,
Phone: (416) 756-6000
Website: www.nygh.on.ca
Address: 4001 Leslie Street
City: Toronto
Province: ON
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Region: Provincewide
Organization Name: Pediatric Oncology Group of Ontario (POGO)
Description: The Pediatric Oncology Group of Ontario (POGO) champions childhood cancer care and control. POGO is the official source of advice on childhood cancer to Ministry of Health and Long-Term Care; a trusted source of information among colleagues, parents, survivors and the public; and the long-standing leader of a collaboration among five academic pediatric oncology programs and other stakeholders, which has resulted in a highly integrated childhood cancer system that delivers equitable care, accessible to families living across Ontario’s vast geography.
Service Type: , , , , , , , , ,
Phone: (416) 592-1232
Fax: (416) 592-1285
Email: info@pogo.ca
Website: www.pogo.ca
Address: 480 University Avenue, Suite 1014
City: Toronto
Province: ON
Eligibility: POGO services are available to families of children with cancer, children with cancer, survivors of childhood cancers, and healthcare professionals caring for patients and survivors of childhood cancer. Specific programs have unique eligibility; speak with your healthcare team for details.
Referral: Speak with your healthcare team for information about POGO programs and services.
Location: Family home, tertiary hospitals, schools and community.
Staffing: Paid staff and voluntary advisors.
Hours: Mon to Fri; 9:00 a.m. to 5:00 p.m.
Fee: No
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Region: Provincewide
Organization Name: POGO Pediatric Interlink Program
Description: POGO Pediatric Interlink Community Cancer Nurses extend the care of the child and family with cancer from hospital into the home. They assist in the preparation for the demands of treatment and arrange support and services as required throughout the course of illness.
Service Type: , , , , , , , ,
Phone: (416) 592-1232
Fax: (416) 592-1285
Website: www.pogo.ca/care/interlink
Address: 480 University Avenue, Suite 1014
City: Toronto
Province: ON
Eligibility: Children and families affected by cancer.
Referral: Nurse, social worker or self-referral. (JACQUI CHECK THIS)
Location: Family home, tertiary hospital, school and community.
Staffing: Full time registered nurses.
Hours: Mon to Fri; 9:00 a.m. to 5:00 p.m.
Fee: No
Application: Nurse contacts family at diagnosis.
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Region: Central-East
Organization Name: Special Needs Opportunity Windows (SNOW) – Adaptive Technology Resource Centre
Description: SNOW is a project that aims to provide information online and through workshops for educators, parents and students with disabilities on technologies for learning both in and out of the classroom as well as promote understanding of inclusive practices.
Service Type: , , , ,
Phone: (416) 977-6000 ext. 3967
Fax: (416) 977-9844
Website: http://www.snow.idrc.ocad.ca/
Address: 205 Richmond Street West, 2nd Floor
City: Toronto
Province: ON
Eligibility: Students with special needs, their parents and educators.
Fee: Yes, for workshops.
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Region: Provincewide
Organization Name: Thyroid Cancer Canada
Description: Thyroid Cancer Canada is a national organization of thyroid cancer survivors dedicated to providing emotional support and information to those affected by the disease through various programs and services. Contact the organization with questions about thyroid cancer by phone or email, and connect with other patients through their Online Forum.
Service Type: , , , ,
Phone: (416) 487-8267
Fax: (416) 487-0601
Email: info@thyroidcancercanada.org
Website: thyroidcancercanada.org
Address: 308 Main Street, First Floor
City: Toronto
Province: ON
Eligibility: Thyroid cancer patients, survivors and their families.
Fee: No
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Region: Central-East, Central-West, Southwest
Organization Name: Wellspring
Description: Wellspring is a network of community-based support centres offering programs and services that meet the emotional, social, practical and restorative needs of people living with cancer and their caregivers. Wellspring programs are offered free of charge, and include one-to-one peer support, group support activities, learned coping skills, rehabilitation programs and much more. Wellspring centres has several locations in Ontario. Visit www.wellspring.ca to learn more about the location nearest to you.
Service Type: , , , , , , ,
Phone: (416) 961-1928 (Downtown Toronto Location)
Fax: (416) 961-3721
Website: http://www.wellspring.ca/
Address: 4 Charles Street East, Suite 400
City: Toronto
Province: ON
Eligibility: Individuals who are living with cancer and their caregivers.
Staffing: Experienced professionals including psychologists, physiotherapists, therapists and dietitians.
Fee: No
Application: Become a Member online.
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Region: Central-East
Organization Name: Youth Link – Human Resources Development Canada
Description: Youth Link is a youth mental health agency in Scarborough dedicated to providing the support, guidance and opportunities youth need to make positive life choices. Youth Link provides a wide range of services such as counselling, educational support, family support and residential services for youth aged 12-21 and their families.
Service Type: , , , , ,
Phone: (416) 967-1773
Fax: (416) 967-7515
Email: info@youthlink.ca
Website: www.youthlink.ca/
Address: 747 Warden Avenue
City: Toronto
Province: ON
Eligibility: Youth between ages 12 and 21, and their families. Visit website for specific eligibility criteria for programs.
Referral: Different referrals are required for some programs. Please contact the organization or visit their website.
Application: Different applications are required for some programs. Please contact the organization or visit their website.
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Region: Central-West
Organization Name: Ontario Brain Injury Association (OBIA)
Description: The Ontario Brain Injury Association (OBIA) is a provincial not-for-profit, charitable organization that aims to enhance the lives of Ontarians living with the effects of acquired brain injury (ABI) through education, awareness and support.
Service Type: , , ,
Phone: (905) 641-8877
Fax: (905) 641-0323
Email: obia@obia.on.ca
Website: http://obia.ca/
Address: 3550 Schmon Parkway, 2nd floor
City: Thorold
Province: ON
Eligibility: Open to any interested individual.
Fee: No
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Region: Northeast
Organization Name: Northern Ontario Families of Children with Cancer (NOFCC)
Description: Northern Ontario Families of Children with Cancer (NOFCC) is a registered charitable organization based in Sudbury and is committed to helping families across Northern Ontario who have a child diagnosed with cancer. Through financial support programs, bursaries, educational supports and a variety of other programs designed to reduce costs associated with travelling, they provide assistance to families and cancer survivors.
Service Type: , , , , ,
Phone: (705) 586-3229
Fax: (705) 673-7715
Website: http://nofcc.ca/
Address: 667 St. Clair Street
City: Sudbury
Province: ON
Eligibility: For the Financial Assistance Program, a daily per diem is available to those who need assistance to offset the costs of travelling for treatment. Families are eligible for these funds for days spent away from home, which is defined by +100kms from the place of residence.
Fee: No
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Region: East
Organization Name: Ottawa Children’s Treatment Centre
Description: OCTC works with children and youth with physical and/or developmental disabilities living in Eastern Ontario who are striving to reach their full potential. Through a variety of bilingual programs and services, OCTC's professional staff work closely with the child and their family across sites in Eastern Ontario to deliver high quality, family-centered service. Services offered include: recreation opportunities for children and youth with special needs, providing out-of-home respite options, helping families access technology to meet their child's needs and more.
Service Type: , , ,
Phone: (613) 737-0871
Fax: (613) 523-5167
Email: info@octc.ca
Website: http://www.octc.ca/
Address: 395 Smyth Road
City: Ottawa
Province: ON
Eligibility: Children with physical, developmental and/or communicative disabilities under the age of 19 years old. May vary with service.
Referral: Referrals by Families, Physicians, Professionals (such as Allied Health Care Providers or Educators), Other Agencies or Community Partners.
Staffing: Behaviour consultants, dieticians, early childhood consultants, early childhood educators, family resource workers, liaison teachers, nurses, occupational therapists, psychologists, physicians, physiotherapists, recreation therapists, social workers and speech-language pathologists.
Fee: Varies
Application: Once you have an idea of which programs or services might best meet your needs, call or email to register.
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Region: East
Organization Name: The Ottawa Regional Cancer Foundation’s Maplesoft Centre Maplesoft Center
Description: The Ottawa Regional Cancer Foundation’s Maplesoft Centre provides Cancer Coaching programs and services to people who have been directly impacted by cancer, from the day of diagnosis, through treatment and for the rest of their lives. A variety of service providers, staff, students and volunteers working at the Centre offer holistic, personalized, person-centered Cancer Coaching and are committed to providing services of the highest quality.
Service Type: , , , , , ,
Phone: (613) 247-3527
Fax: (613) 247-3526
Email: info@ottawacancer.ca
Website: https://survivorship.ottawacancer.ca/main.jsf
Address: 1500 Alta Vista Drive
City: OTTAWA
Province: ON
Eligibility: Individuals 18 years and over in Eastern Ontario who has been touched by cancer. Cancer patients, cancer survivors, caregivers, family members, friends, and support network.
Referral: Self-referral is acceptable.
Fee: No
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Region: Provincewide
Organization Name: Victorian Order of Nurses (VON) – National Office
Description: VON is Canada’s only, national, not-for-profit, charitable home and community care organization that provides more than 75 home care, personal support, and community services for people of all ages including nursing, homemaking, family education services and respite/caregiver relief.
Service Type: , , , , , , , ,
Phone: (613) 233-5694
Fax: (613) 230-4376
Email: national@von.ca
Website: www.von.ca
Address: 2315 St. Laurent Blvd., Suite 100
City: Ottawa
Province: ON
Eligibility: People of all ages in need of home care, personal support and/or specific community services. Visit website for more information about services.
Location: In the patient's home or elsewhere within the community.
Staffing: Registered nurses, personal support workers, therapists, volunteers and other health care providers at the VON branches.
Hours: Mon to Fri; 8:30 a.m. to 4:30 p.m. 24 hour service program is also available at some VON branches.
Application: Call local branch for more information.
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Region: Central-East
Organization Name: Hearth Place Cancer Support Centre
Description: Hearth Place Cancer Support Centre is committed to providing community support for people diagnosed with cancer and their families through individual and group support, information, a resource centre, wellness programs and an ongoing lecture and discussion series. Hearth Place is a support centre where cancer patients and their families can come and share their experiences, find resources and discover new ways to care for themselves and each other.
Service Type: , , , , , , ,
Phone: (905) 579-4833
Fax: (905) 579-1204
Email: hearthplace@hearthplace.org
Website: www.hearthplace.org
Address: 86 Colborne Street West
City: Oshawa
Province: ON
Eligibility: Any family member impacted by a childhood cancer diagnosis.
Referral: Self-referral. The family must contact organization directly.
Staffing: Play Therapist, Music Therapist, Art Therapist, Child Life Specialist, Child and Youth Worker, Volunteers, Grief Counsellor
Fee: No
Application: Intake meeting and registration is required prior to attending programs.
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Region: Central-East
Organization Name: Look Good, Feel Better
Description: Look Good, Feel Better is a national public-service program dedicated to helping Canadian women living with cancer learn special cosmetic techniques and hair alternatives to manage the appearance-related side effects of cancer and its treatment. Also offers a workshop for teens.
Service Type:
Phone: (905) 890-5161
Fax: (905) 890-2607
Email: lgfb@lgfb.ca
Website: www.lgfb.ca
Address: 420 Britannia Road East, Suite 102
City: Mississauga
Province: ON
Eligibility: Young females and women who are experiencing or have experienced cancer.
Referral: Self-referral is acceptable.
Location: Workshops are facilitated in over 70 hospitals.
Hours: Depends on the workshop.
Fee: No
Application: Call (800) 914-5665 and the office will set you up with a workshop that best meets your locality and time.
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Region: Central-East
Organization Name: Lymphoma Foundation Canada
Description: Lymphoma Foundation Canada connects patients, their family and friends, medical professionals, researchers, volunteers, and donors to build a strong lymphoma community: A community that conducts research to learn lymphoma's causes, to develop better treatments, and to find a cure. A community that helps people talk about and cope with the fifth most common cancer in Canada. A community that invites you to get and give support.
Service Type: , , , ,
Phone: (905) 858-5967
Email: info@lymphoma.ca
Website: www.lymphoma.ca
Address: 6860 Century Avenue, Suite 202
City: Mississauga
Province: ON
Eligibility: Anyone seeking information on Lymphoma.
Fee: No
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Region: Southwest
Organization Name: Brain Tumour Foundation of Canada
Description: The Brain Tumour Foundation of Canada (BTFC) is a national, not-for-profit organization dedicated to providing support services to those affected by brain tumours.
Service Type: , , , , ,
Phone: (519) 642-7755
Fax: (519) 642-7192
Email: braintumour@braintumour.ca
Website: www.braintumour.ca
Address: 620 Colborne Street, Suite 301
City: London
Province: ON
Eligibility: Parents, patients and other family members.
Referral: Any source, including self-referral.
Location: Community, school, family home and tertiary and community hospitals.
Hours: Office: Mon to Fri, 9:00 a.m. - 5:00 p.m.
Fee: No
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Region: Provincewide
Organization Name: Ontario Parents Advocating for Children with Cancer (OPACC)
Description: OPACC is a registered charity whose overall goal is to be the parent voice for families with children diagnosed with cancer across Ontario. OPACC Educates, Advocates, Supports and Enables (E.A.S.E.s) families of children with cancer. OPACC offers support through parent liaisons who can help families affected by childhood cancer from a non-medical point of view and can guide them through the myriad of services and opportunities that exist for families both in and out of the hospital. OPACC also offers weekly drop-in support groups, one-on-one visits to families, distribution of free support materials, and more.
Service Type: , , ,
Phone: (705) 828-7965
Email: info@opacc.org
Website: www.opacc.org/
Address: 524 Bayfield Street North, PO Box 20005
City: Barrie
Province: ON
Eligibility: Any Ontario families affected by childhood cancer.
Staffing: Trained parents, guardians, survivors, or close relatives of a child/teen diagnosed with childhood cancer.
Fee: No
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Region: Provincewide
Organization Name: Bayshore Home Health
Description: Bayshore Home Health offers a wide range of home care services that include nursing, personal care, home support and companionship to residents across Canada, allowing them to continue to live in their own homes with dignity and independence.
Service Type: ,
Phone: (877) 289-3997
Email: clientservice@bayshore.ca
Website: www.bayshore.ca/
Province: ON
Eligibility: Persons requiring health care services.
Referral: Varies on program.
Location: Community
Hours: 24 hours a day
Fee: Certain services require a fee. Please contact organization for more information.
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Region: Provincewide
Organization Name: Childhood Cancer Guides
Description: Childhood Cancer Guides write, update, and publish a number of books that help families of children with cancer. The website also comprises of information on childhood cancer and links to various resources.
Service Type: , , ,
Website: http://www.childhoodcancerguides.org/
Eligibility: Anyone seeking information on childhood cancer.
Fee: Books range in cost; the rest of the information is free.
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When using the “Region” search option, here’s how to improve your search results.
1) Choose “Provincewide” to find individual organizations providing services across Ontario
2) Choose a specific region to find individual organizations whose services are available only in that region
3) Choose “Provincewide” and click another region(s) to find all of the organizations that provide services both province-wide and in the regions selected, i.e., both provincewide organizations and region-specific organizations