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Education for Survivors


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Todd Cunningham, PhD: Assistive Technology After Childhood Cancer

Posted on April 4, 2018 by Kelly Zorzi

Assistive Technology After Childhood Cancer

While the survival rate for childhood cancer is 82%, approximately 60% of these young survivors will experience long-term effects because of their cancer or treatment. The late effects that affect the brain and learning and cognition can range from mild to severe and can include cognitive impairment resulting in learning difficulties that can affect a young person’s success at school or in the workplace. Assistive technology is any technology that allows someone to use their natural strengths to overcome an area of weakness. Todd Cunningham explains that new technology exists to help with cognition, like reading and identifying important parts of the text. With artificial intelligence, the software can analyze a document and highlight the most important bits of information for the reader, cuing them to pay attention to that passage. Assistive technology reduces the cognition load, allowing you to pay attention to what’s really important and relevant.

Todd Cunningham, PhD, C.Psych is a psychologist with Ontario Institute for Studies in Education, University of Toronto, Toronto, ON. He spoke at POGO’s 2013 Survivor Conference: Life after Childhood Cancer where he presented these and other ideas. 

Download a PDF of Todd’s full presentation

Straight Talk about Childhood Cancer is POGO’s series of video shorts featuring the insights of experts whose leading-edge work impacts the care, treatment and quality of life of childhood cancer patients, survivors and their families.

 

Posted in 2013 Survivor Conference, 2013 Symposium - Innovation in Pediatric Oncology, Education for Survivors, Misc, Straight Talk Videos | Tagged 2013 Survivor Conference, assistive technology, childhood cancer survivors, late effects, survivorship, Todd Cunningham

Dr. Christopher Recklitis: Emotional Health After Childhood Cancer

Posted on December 1, 2016 by Kelly Zorzi

For many patients, the childhood cancer experience takes them away from school, hobbies and friends and thrusts them into the adult world.

In his talk Emotional Health After Childhood Cancer, Dr. Christopher Recklitis stresses the importance of talking to your healthcare professionals about how to maintain balance between regular life and treatment.

Christopher Recklitis, PhD, MPH, is the Director of Research and Supportive Services at the Dana-Farber Cancer Institute and an Assistant Professor of Pediatrics at Harvard Medical School in Boston. He spoke at POGO’s 2013 Survivor Conference: Life after Childhood Cancer.

Straight Talk about Childhood Cancer is POGO’s series of video shorts featuring the insights of experts whose leading-edge work impacts the care, treatment and quality of life of childhood cancer patients, survivors and their families.

Posted in 2013 Survivor Conference, Education for Survivors, Straight Talk Videos | Tagged 2013 Survivor Conference, childhood cancer survivors, Dr Christopher Recklitis, emotional health, late effects, psychological distress, psychosocial, survivorship

Dr. Mike Neal: Male Fertility Concerns for Survivors

Posted on November 18, 2016 by Kelly Zorzi

Dr. Mike Neal: Male Fertility Concerns for Survivors

One false assumption is that childhood cancer treatment won’t have an effect on fertility. It is important to increase awareness about the options men have prior to and post treatment. Procedures can be easy and inexpensive and can offer insurance to young men who are hoping to have a family down the road.

Michael Neal, BSc. (Hons), MSc is the Scientific Director at ONE Fertility in Burlington Ontario. He spoke at POGO’s 2013 Survivor Conference: Life after Childhood Cancer. 

Straight Talk about Childhood Cancer is POGO’s series of video shorts featuring the insights of experts whose leading-edge work impacts the care, treatment and quality of life of childhood cancer patients, survivors and their families.

Posted in 2013 Survivor Conference, Education for Survivors, Straight Talk Videos | Tagged 2013 Survivor Conference, childhood cancer survivors, Dr Mike Neal, fertility, late effects, male fertility preservation, survivorship

Dr. Ellen Greenblatt: Female Fertility Concerns for Survivors

Posted on April 6, 2016 by Kelly Zorzi

Dr. Ellen Greenblatt: Female Fertility Concerns for Survivors

It is crucial for childhood cancer patients to remember that life does go on after cancer. Understandably, fertility is an important aspect of that. Cancer treatments, however, can jeopardize reproductive health, most notably due to certain chemotherapy agents, particularly the class called alkylating agents that can kill off eggs in women and sperm in men. Radiation treatment to the pelvis can also affect ovarian function or the ability for the uterus to carry a pregnancy.

Despite such concerns, Dr. Greenblatt assures young survivors that there are many therapies that are less toxic and that pregnancy after cancer is not associated with a higher risk of abnormalities in children. She recommends visiting a reproductive endocrinologist and infertility centre if you have undergone treatment yourself. While such measures are recommended, Dr. Greenblatt provides a healthy reminder: all women, not only survivors, must think of family planning as planning their family rather than leaving it up to chance.

Ellen Greenblatt, MD, FRCSC is the Medical Director for the Centre for Fertility and Reproductive Health at the Mount Sinai Hospital and Associate Professor of the Department of Obstetrics and Gynaecology at the University of Toronto. She spoke at POGO’s 2013 Survivor Conference: Life after Childhood Cancer. 

Straight Talk about Childhood Cancer is POGO’s new series of video shorts featuring the insights of experts whose leading-edge work impacts the care, treatment and quality of life of childhood cancer patients, survivors and their families.

Posted in 2013 Survivor Conference, Education for Survivors, Straight Talk Videos | Tagged 2013 Survivor Conference, childhood cancer survivors, Dr. Ellen Greenblatt, female fertility preservation, fertility, late effects, survivorship

2015 POGO/Ooch Survivor Conference

Posted on December 3, 2015 by admin


On October 16-18, 2015, Camp Oochigeas and POGO presented the 3rd Life After Childhood Cancer Survivor Conference, a gathering for survivors of childhood cancer aged 19 and over.  More than 70 adult survivors of childhood cancer joined us at Camp Oochigeas in beautiful Muskoka for a weekend of connecting with other survivors, learning about managing their health and living well after childhood cancer.  

VIEW THE PROGRAM

Scroll down to view the Survivor Conference slide presentations that POGO was granted permission to share. If you are interested in a specific subject, click on a subject tag at the bottom of a post to view all the slides or videos that cover that subject.

NOTE: The content of each presentation captures the unedited information and opinions presented by the speaker. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.

PLENARY SESSIONS

We Are All Storytellers: Discovering the Power of Knowing and Sharing Your Story
Michael Lang, MSc
Raymund Ong

Managing Your Fertility: Current Options, Practical Strategies
Sara R. Cohen, LL.B.
Karen Glass, MD, FRCS(C), FACOG

All in the Family:  Talking to Siblings about Childhood Cancer
Norma D’Agostino, Ph.D., C.Psych.
Shamata, sibling of childhood cancer survivor
Kevin Wang, MD/PhD student

Beyond Survival:  Emotional Equilibrium After Cancer
Christopher Recklitis, Ph.D., MPH

WORKSHOPS

Communicating with Family and Friends
Norma D’Agostino, Ph.D., C.Psych.

Common Workplace Issues:  Tools and Strategies
Lori Otte, BA, RRP

Genetic Testing for Cancer Survivors – Who and When
Nikki Parkinson, MSc, CGC

Posted in 2015 Survivor Conference, Education for Survivors | Tagged 2015 survivor conference

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