Avoiding Information Overload: What do Families Actually Need to Know?


Presentation Description:
Patients and families are overwhelmed after a child receives a cancer diagnosis. Current literature supports limiting educational content at the time of diagnosis to essential topics necessary for families to know in order to safely care for their child at home. The approach to new diagnosis education should be family-centered, and tailored to the child’s diagnosis, treatment plan, and age or developmental level. In addition, education should be multidisciplinary, involving nursing, providers, and the psychosocial team to ensure that all facets of the child’s care are addressed, including child and family coping.

This presentation provides an overview of current evidence supporting the education of newly diagnosed pediatric oncology patients and families, as well as the application of expert recommendations into practice.

Jen Sullivan
Oncology Patient/Family Education Specialist, Cancer Centre
The Children’s Hospital of Philadelphia

Jeneane received her Bachelor of Science in Nursing from Georgetown University, and has masters degrees as a pediatric nurse practitioner and in nursing education from Villanova University.

Jeneane Sullivan worked as an inpatient oncology/BMT nurse at Children’s Hospital of Philadelphia (CHOP) for 6 years before taking on her current role as Oncology Patient and Family Education Specialist at CHOP. In this role, Jeneane has built an education program for pediatric oncology patients and their families, developing resources and education from new diagnosis through survivorship.

Beyond oncology, she is co-leading the enterprise-wide Digital Health Education Initiative at CHOP. In addition, Jeneane serves as the nursing member-at-large for the Children’s Oncology Group (COG). Jeneane has co-authored publications on oncology patient/family education, and is the co-editor of the COG Family Handbook: New Diagnosis Guide. She has presented on patient/family education and CHOP’s unique program regionally, nationally and internationally. 


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