Claire Slaughter, Author at POGO

Nurse Practitioner is POGO’s Provincial Lead in Pediatric Oncology Nursing

Posted on November 8, 2021 by Claire Slaughter

Denise Mills is a Master of Nursing, Pediatric Acute Care Nurse Practitioner, who began her nursing career over 20 years ago. She is one of those rare people with a true passion for what she does. In fact, when asked about her work, she says, “it’s a privilege to care for a child with cancer.” More than likely, it is this enthusiasm and her significant training, experience and expertise that, in 2018, led to Denise being chosen as POGO’s provincial clinical lead in pediatric oncology nursing.

Denise’s strong interest in multidisciplinary pediatric oncology education ensures the nursing perspective informs all aspects of POGO’s work in system planning, service delivery, quality improvement, education and research.

“I am proud of the work I have been able to participate in at POGO that contributes to our mission,” Denise says. “This includes partnering with Camp Oochigeas to host a retreat for pediatric oncology healthcare professionals across the province to share and learn about resilience; and bringing the nursing voice to POGO’s organizational strategy, programs and work on clinical practice guidelines as a member of POGO’s supportive care committee. I am also humbled to work closely with the POGO Interlink Nurses across Ontario who care for and support patients, and their families, throughout their cancer journey.”

Since her first introduction to POGO in the mid-1990s, Denise has been an avid member of several POGO committees and contributor to many POGO initiatives. She has been actively involved in the planning committees of several POGO multidisciplinary symposia on childhood cancer, including the 2018 Pre-Symposium Nursing Seminar, and has been a member of the POGO Board of Directors. Denise now co-chairs the POGO Nursing Committee with Brennah Holley, a nurse educator at CHEO. In 2020, the Nursing Committee presented two webinars: Supporting Children through COVID-19 and Good Grief! Fostering Healthy Grief in Ourselves and Those We Support.

Denise’s research interest is in patient/family education and she is a recipient of a POGO Seed Grant that funded her published study (2021) Improving Quality and Consistency in Family Education Prior to First Discharge Following a Pediatric Cancer Diagnosis. Denise has contributed to quality improvement and innovation projects, she sits on many prestigious committees, including the Children’s Oncology Group’s (COG) Nursing Steering Committee as the chair of the education sub-committee, and is a protocol nurse for the COG Neuroblastoma and Renal Committee. She has addressed delegates at numerous conferences, contributed countless poster presentations globally and is a member of several professional associations.

Denise Mills is seconded to POGO (two days a week) from The Hospital for Sick Children (SickKids) where she works in the Solid Tumour, New Agents and Innovative Therapy, MIBG Program, and actively participates in leadership roles at the hospital.

LifeLabs and POGO: More than a Corporate Partnership

Posted on September 13, 2021 by Claire Slaughter

From our first meeting with LifeLabs, we knew we were entering into a relationship that would go beyond the typical corporate sponsorship, but we had no idea how rich the collaboration would turn out to be.

In August 2017, LifeLabs pledged $200,000 to POGO, becoming the “Proud Partner” of our Pajamas and Pancakes fundraising campaign. Over the past four years, that pledge has turned into a total of $276,149.83 (to date!), and our relationship with LifeLabs and its employees has evolved and grown greatly over that time. Together, we are improving patient care and transforming the cancer journey for children, youth, their families and survivors in Ontario and beyond.

Raising Funds and Building Awareness

LifeLabs’ endorsement of POGO’s Pajamas and Pancakes Program, a fun and flexible do-it-yourself fundraiser, has not only helped POGO raise more than $276K over the years (including fundraising campaigns generated from their own staff!), but also involved a widespread advertising campaign on GO trains and other media across the GTA to help raise awareness about the program and childhood cancer.

Their annual investment in the POGO Multidisciplinary Symposium has helped our healthcare professionals remain at the forefront of the rapidly advancing field of pediatric oncology.

Supporting Families

As an organization that has been committed to building a healthier Canada for over 50 years, LifeLabs understands the toll cancer treatment can take on our families. In 2019, together with London Health Sciences Centre, we piloted a drop-in blood collection program at select LifeLabs service centres to make it easier for families with children fighting cancer to access lab testing that is required to inform treatment decisions. Lab results were available within 12 hours, saving families both time and money.

“We know that when LifeLabs and its employees contribute to POGO, we are helping children and families access the best available care and supportive services during a very difficult time,” says Charles Brown, President and CEO, LifeLabs. “One of LifeLabs’ core values is caring and our employees live that value by supporting incredible organizations in communities across Canada every day.”

Getting Involved

Whether they are attending POGO events or volunteering at community events to benefit our families across Ontario, LifeLabs’ employees go the extra mile. In 2019, the LifeLabs’ Sudbury Fun Day held at the POGO Satellite Clinic in the Northeast Cancer Centre brought games, crafts, PJs, gift cards and smiles to over 30 families in treatment. This year, 81 employees signed up for the Toronto Women’s Run with all funds raised benefitting POGO and the families we serve.

At POGO, we value our partnerships and we are inspired by our passionate donors who share our vision. Thank you LifeLabs!

Written by Lynn Wilson, POGO’s Chief Development Officer responsible for the planning and management of POGO’s fundraising, communications and government engagement initiatives.

Support from LifeLabs has helped provide financial assistance to families so they can pay for out-of-pocket costs associated with their child’s treatment, support survivors with customized school and work counselling when their disease or its treatment has left them with learning challenges, and fund promising research that examines the impact of childhood cancer and its treatment.

Welcome new POGO Board Chair – James Scongack

Posted on July 28, 2021 by Claire Slaughter

Hon. Stephen Goudge and the Board of Pediatric Oncology Group of Ontario (POGO) are pleased to announce James Scongack as the new Chair of the POGO Board of Directors.

For a number of years, James and his wife, Jenny, have been actively involved on several fronts to further POGO’s mission. They have provided advice, raised awareness and secured support from many community champions of childhood cancer care. James will continue to serve as Chair of the POGO Development Cabinet, a volunteer advisory committee supporting POGO’s fundraising and outreach goals and strategies. He is also an advocate within Canada’s cancer care space, as a longtime and ongoing supporter of the Brain Tumour Foundation of Canada and as Chair of the Canadian Nuclear Isotope Council. He also serves on the Board of Directors of LifeLabs.

Outside of his volunteer work, James is currently the Chief Development Officer and Executive Vice-President of Operational Services at Bruce Power and has been recognized as one of Canada’s Top 40 under 40®.

“I’m honoured to continue my volunteer involvement with POGO working with my Board colleagues, a strong management team, committed volunteers, families and passionate care providers to ensure we do everything we can to support children, youth, survivors and their families who are impacted by cancer,” says James. “POGO has made a profound difference to my family and many others across the province and I want to recognize the Hon. Stephen Goudge for his leadership as POGO Board Chair, and Dr. Mark Greenberg, one of POGO’s founders, who treated my wife when she was diagnosed with cancer at the age of two. I also thank the countless others who built this great, internationally recognized organization that is so important to so many families. Under the leadership of Jill Ross as Chief Executive Officer and Dr. David Hodgson as Medical Director, we will all continue to build on the POGO success story.”

As POGO welcomes James, the Board and organization also thank Hon. Stephen Goudge for seven years of remarkable leadership. We are extremely grateful for Stephen’s guidance through the completion of our fifth Childhood Cancer Care Plan in 2018, a new strategic organizational plan in 2019 and his support of our important work in diversity, equity and inclusion. In handing the reins to James, Stephen says, “I am delighted that James will be taking over as Chair. I have every confidence in James, whose ability to build consensus will serve POGO well in the years to come. His commitment has been unwavering, his business acumen extraordinary and his vision strongly aligns with the organization’s goals.”

Please join us in welcoming James and thanking Stephen!

Learn more about POGO.

A Search for Health Care beyond Survival: Rabi’s Story

Posted on June 24, 2021 by Claire Slaughter

My name is Rabi Qureshi. I am 33 years old and I am a three-time cancer survivor who feels as though I’ve fallen through the cracks.

I was 15 when I was diagnosed and treated for thyroid cancer. By all accounts, my life should have returned to normal. Instead, I gained 40 pounds in just two months, developed cystic acne and my grades plummeted.

At 21, I finally lost the weight but was still struggling with depression when the thyroid cancer came back. It had spread to my lymph nodes. The surgeries that followed left me with chronic pain in my head and neck that had me stuck in bed for the better part of three years, contemplating suicide daily. I promise that is not an exaggeration.

Rewiring my Brain Came Years after Treatment

By 2012, at 24 years old, I was feeling better. Nearly all the weight was gone. I had found a new passion and returned to college to pursue my dream of becoming an events specialist. And though everything seemed to take triple the effort or more than it used to, life seemed livable again. So I ignored the small bump under my skin that was slowly getting harder and bigger, and delayed the biopsy until the summer of 2013. What caught me off guard was that this time it was breast cancer. After five surgeries and some aggressive chemotherapy, I felt like a fraction of the person I once was. Mostly, I was living in a haze of foggy thoughts and fractured logic. It took several years out of treatment for me to rewire my brain so that I could articulate my thoughts and speak my mind confidently.

I can’t summarize all that cancer took from me, but I can tell you peace of mind was definitely among the body count. Turns out PTSD among cancer survivors is a more common issue than it is common knowledge.

It’s 2021 and I have a very limited number of functional hours in the week. I am still struggling to take care of my body and brain. I have been ping-ponged from one doctor to another who seem not to know what programs, resources and next steps are available. I work hard every day to teach myself ways of healing on my own but I can’t help but feel that the system is fractured and I am the collateral damage; I don’t believe I should have had to face this alone.

Up to this point, I experienced a severe disconnect between programs and services and my healthcare specialists. I believe the result is an unassembled Mr. Potato Head model and that interdisciplinary coordination and cooperation among fields of medicine should be at the centre of a more efficient patient care model.

Discovering POGO AfterCare

I recently spoke about my health struggles and lack of support from the healthcare system at the 2021 POGO AfterCare Education Day. I was encouraged by how receptive the doctors, nurses and psychologists were to what I had to say and how supportive everyone was. A friend of mine, another survivor who also spoke at the POGO event, convinced me to make an appointment at the POGO AfterCare Clinic in Toronto, something I had only recently become aware of and had yet to explore. It has only been a couple of weeks since that first intake call, but already there seems to be a plan in place for an integrated approach to treating the variety of issues that my cancers have left me with; I will have to keep you posted. I am cautiously optimistic, in spite of myself.

Modern Health Care Should Aim for Quality of Life

Class, ability, gender, a safe home, pre-existing conditions and race/culture can all contribute to unique challenges in survivorship. My story, only one of many, is evidence that it is more important than ever to create holistic systems designed with compassion at their roots, as a complete and comprehensive patient care model, systems that take the whole person into account—mind, body and circumstance. Modern health care, after all, shouldn’t stop at quantity of life; it’s well past time to prioritize quality of life.

Access to primary care in a shared-care model with AfterCare is critical for survivors

Rabi Qureshi is an author, advocate and three-time cancer survivor. She is also a special events manager and an artist who is outspoken in matters of mental health care and holistic and preventative medicine.

POGO AfterCare Clinics promote health and health education, and monitor survivors regularly for late effects of cancer treatment, identifying these effects as early as possible. Ultimately, POGO AfterCare Clinics contribute to advances in cancer care; if a particular form of treatment is found to cause a certain long-term effect in cancer survivors, current treatment practices can be modified, ultimately improving outcomes of future survivors.

Finding Strength by Embracing my Vulnerability

Posted on April 26, 2021 by Claire Slaughter

Dealing with trauma, anxiety and depression as a two-time leukemia survivor, Marell Tomeh shares her story

When I was 19, I was starting to make decisions about where my life would take me. I was planning a trip with friends, working hard at university and thinking long-term about my aspirations. This came to a sudden halt the moment I was diagnosed with acute lymphoblastic leukemia.

I cancelled my trip, but didn’t want to burden my friends with my bad news. I had always been the one to support other people, rarely asking for help myself. To protect my vulnerability and preserve some sense of normalcy, I kept my diagnosis private, and in retrospect, this is probably the worst thing I could have done.

I spent much of the next two years of my treatment worrying about who knew what, and about people seeing me without hair and potentially judging my significant weight gain, not knowing the steroids I was taking contributed to this. The medication caused my mood to fluctuate, making my mental health harder to manage. I had trouble managing my expectations of myself, comparing myself to my peers and feeling a sense of urgency to “catch up.”

Virtual Counselling can Help Childhood Cancer Survivors

I fell into a deep depression and it took some time to acknowledge it and admit that I was struggling. I became more and more anxious in public and social settings. I developed a stutter and felt as though I had lost my sense of humour and ability to engage in conversation. Socializing became awkward and uncomfortable, and schoolwork became frustrating.

A few years after my treatment ended, I relapsed. This time, I needed a bone marrow donor and had no choice but to open up about my cancer. This made a huge difference in my mental health and my healing. I stopped seeing vulnerability as a weakness and, as a result, quit being so afraid.

A cancer diagnosis interrupts life. As a young adult with cancer I feel like my life milestones have been pushed back and I am falling further behind all of my peers. Before my diagnosis, I took pride in knowing I worked well under pressure and could multitask with ease. I thought getting back to school would help me get back to ”normal,” but I am still struggling with “chemo brain’” and dealing with the repercussions—mental and physical—that come with cancer, and find it all too stressful and overwhelming.

Surviving Childhood Cancer: From Confidence Buster to Confidence Builder

After going through something as traumatic as cancer, my stress response has become more sensitive. So, I have decided to take some time away from school and work to care for myself. I am re-examining my priorities and figuring out how to build a meaningful life that can also support my real-world concerns, like finding health coverage for my ongoing medical expenses.

My goal is to use my cancer experience to help other people. I want to create a safe space for other patients and survivors to express themselves and support their healing. Nothing good comes from leaving your wounds unattended but we can find strength in acknowledging and embracing them.

Marell Tomeh is a two-time leukemia survivor and bone marrow transplant recipient. As a young adult cancer survivor, Marell shares her story and hopes to shed light on the obstacles associated with trauma, anxiety and depression.

Marell shared her story first-hand on May 14 at 2021 POGO AfterCare Education Day, where she spoke about The Lived Experience: Navigating School and Work after Cancer.

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Author: Claire Slaughter