Presentation Description: Although the majority of AYA survivors of childhood cancers adjust quite well, subsets of survivors may experience a number of psychological, social and/or family concerns. In addition, AYA survivors are at risk for poor adherence to survivorship follow-up treatment recommendations. These two presentations included information about general adaptation and distress, and models useful for identifying, understanding and treating AYA survivors who could benefit from psychosocial interventions.
Anne E. Kazak, PhD, ABPP
Chief, Section of Behavioural Oncology
Editor-in-Chief, Health Psychology
Director, Centre for Pediatric Traumatic Stress, The Children’s Hospital of Philadelphia
Professor, Department of Pediatrics, University of Pennsylvania, Philadelphia
Christopher J. Recklitis, PhD,l MPH
Clinical Psychologist, Dana-Farber Cancer Institute
Assistant Professor of Pediatrics, Harvard Medical School, Boston
Presentation Description: With the increased use of combination chemotherapy and multi-modality therapy for cancers that occur in childhood, many more children diagnosed with childhood malignancies are becoming long-term survivors. Unfortunately, late effects of these treatments are common and have a significant impact on length and quality of life. Identifying those adolescents and young adults at risk for specific late effects may allow for early intervention designed to minimize the impact of these health problems on the life of the survivor. This workshop focused on pulmonary, endocrine and renal late effects experience by adolescent and young adult survivors of childhood cancer. Specific screening strategies and issues related to surveillance were discussed.
Theodore K. Marras, MD, FRCPC, MSc
Toronto Western Hospital, University Health Network and Mount Sinai Hospital
Assistant Professor, Department of Medicine
University of Toronto
Stacey L. Urbach, MD, MPH, FRCPC
Staff, Division of Endocrinology
The Hospital for Sick Children
Assistant Professor, Department of Pediatrics
University of Toronto
Michael Zappitelli, MD, MSc
Director, Extracorporeal Blood Therapy & Peritoneal Dialysis Program
Pediatric Nephrology, Department of Pediatrics
McGill University Health Center
Montreal Children’s Hospital
Presentation Description: Successful transition for the young adult survivor of childhood/adolescent cancer requires preparation of the survivor, family and health care providers beginning well in advance of the event. As a health care provider, having a fundamental understanding of transition and normal transition benchmarks is essential. Additional topics needing to be addressed include medical information about prior cancer treatment, current health and future risks; when and how to access appropriate care; and the importance of education, employment and interpersonal relationships. Awareness of age-associated risk-taking behaviours and reinforcement of appropriate health promotion is indicated. This workshop incorporated brief presentations and encouraged attendee participation in discussions aimed at enhancing practice in health care transition.
Miriam Kaufman, BSN, MD, FRCPC
Head, Division of Adolescent Medicine, The Hospital for Sick Children
Professor, Department of Pediatrics, University of Toronto
David R. Freyer, DO, MS
Director, LIFE Cancer Survivorship & Transition Program
Children’s Center for Cancer and Blood Diseases
Children’s Hospital Los Angeles
Professor of Clinical Pediatrics, Keck School of Medicine, University of Southern California
Wendy Hobbie, MSN, PNP-BC, FAAN
Cancer Survivorship Program
The Children’s Hospital of Philadelphia
POGO held its first-ever Survivor Conference at the Kingbridge Conference Centre & Institute in King City on May 21-22, 2011. Over 90 survivors of childhood cancer from across the province attended the two-day event. The educational sessions addressed topics including: nutrition, fertility, second cancers (risks and prevention), self esteem and sexuality, relationships and disclosure, heart health, memory challenges, and hormonal issues and their treatment. Videos of all of the presentations from the Survivor Conference that POGO has permission to post are available here, along with the accompanying presentation slides.
NOTE: The content of each presentation captures the unedited information and opinions presented by the speaker. Please note that the information contained in the presentations was current at the time it was presented – there may be further information in subsequent literature. Listed speaker credentials were current at the time of presentation.